“Help! My parents won’t believe me!”

I got this question just today:

I’m a 12 year old girl and I have ocd but my mom doesn’t believe me I’ve emailed many people who study ocd and they have said that I have pure ocd so what do I do.

This is hard stuff. Really hard.

What do you do when you are truly struggling but you feel too young and dependent to do much about it? When the person or people you rely on for help tells you that you’re fine?

Here are a few ideas, dear one. I also invite readers to leave ideas in the comment section, so be sure to check that out as well.

  1. Continue to educate yourself. The more you know about OCD, the more power you have over it– and the more justification you have when you discuss it with your mom next time. Read about it online, check out books from your local library, etc.
  2. Consider free resources. It’s hard to get treatment when you’re 12 and under your parents’ insurance and likely have very little means to an income. Sadly, babysitting money just won’t cut it here, and that stinks! But there are free resources. For example:
    * If you have a smartphone, download the nOCD app.
    * On Facebook, search for Pax the OCD Bot.
    * Check out a book at the local library about how to do ERP therapy (exposure and response prevention) at home on your own.
  3. Think through why your mom won’t believe you. I’m not saying that there are any good reasons, but I do know that sometimes our parents, who are often our biggest fans, don’t want to believe that we have something wrong with us. It’s scary for them, and actually, sometimes it makes them feel guilty– they wonder if it’s their fault. Again, not great reasons, but if this seems to be the case, it might help you in how you approach your mom the next time.
  4. You might find a book that really resonates with you– share it with your mom. For me, I gave my mother a copy of Kissing Doorknobs by Terry Spencer Hesser– a copy in which I had underlined all the quotes that resonated with me. At that time, it was the best I could do to explain what I was experiencing.
  5. Speak with another trusted adult. From Angie, one of my blog readers:

    I’m wondering if there are other people in your reader’s life that she might confide in and who might talk with her mom with her (or for her). In particular, I was thinking about other family members, like a trusted aunt; or perhaps a close family friend; or even a teacher or counselor from school. As an OCD therapist (and also the mom of someone with OCD) sometimes young people end up in my office for treatment because a teacher or another family member had a talk with the parent. Thinking of you, question writer! You are brave for reaching out. – Angie

I’m not an expert or a therapist, and I always encourage people to get professional help, but in this case, I can see where it’s feeling impossible to get that. Keep learning. Educating yourself about OCD empowers you, disarms OCD, gives you ideas for now, and prepares you for later. 

Hang in there, sweetheart, no matter what. And if you are feeling suicidal, call the suicide hotline at 1-800-273-8255 and be sure to let your mom know how serious it is.

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5 Months of OCD Questions

Back in November, I noted that 99% of the questions I’m asked are related to HOCD. So I tried to write ONE GIANT REPLY (which you can read here), but it didn’t stop the questions from pouring in.

Frankly, I was exhausted and overwhelmed by HOCD questions, especially when I felt like I’d shared everything I could on the subject. But of course, everyone wants a personalized answer. I understand that, but I’m also not an HOCD expert or any kind of therapist.

So I let the questions sit for a while. Especially when I have a link to the above article right in the form where people can ask their questions.

But today, home sick on the couch, I wanted to tackle some more. A lot more. 🙂

Here we go.

I’m doing self-directed ERP now but I don’t know when should I stop doing exposure works. Do you have any clue?

I do. When you begin, you should rate your anxiety level 0-100. Continue to rate your anxiety level before, during, and after each exposure. Keep doing the exposure until your anxiety level drops to 50% of your original level.

Since my onset of OCD, I’ve become plagued with these fears and dark thoughts…especially the feeling that i am an a ‘bad’ person. Who will hurt others or myself. i feel unworthy and yearn to be the person i was before this illness- light and ‘good’ and kind. I fear greatly that I am an awful and terrible person. Is this normal and what can be done to help?

It is normal for OCD. 🙂 This sounds a lot like a combination of harm OCD plus hyper-responsibility plus depression, if I had to guess! ERP therapy will help. Check out http://www.jackieleasommers.com/OCD.

I don’t know anymore if it’s compulsive or not.. I used to watch different kinds of porn like gay or cuck*old to figure out what I may like.. I watched it but didn’t think about it a lot afterwards but felt disgusted.. like hijacked..maybe I’m looking for an excuse.. Just tried to sleep when images of a porn came and scared me.. like that must be the final proof that its not HOCD.

Proof that it’s not HOCD? To me, being scared or feeling wrong about it is proof that it is HOCD. ERP will help!

Please read https://jackieleasommers.com/2017/11/01/hocd-4-steps-to-freedom.

I live in a country where there is probably no erp therapy available (I’d be very surprised if there was), and these apps you listed are for iOS, i have an Android :(. Do you have any other tips/resources for self therapy? Thanks ❤ much love. I appreciate what you are doing :))

(My kind of ocd is religious one if that matters, I’m a christian) 

Hello dear one, yes, if you have Facebook, try the Pax the OCD Bot (just search it in your Facebook searchbar). This article might also help: https://jackieleasommers.com/2014/10/05/self-directed-erp-therapy.

You don’t have any intrusive thoughts then? Or you do, and just don’t care?

I don’t have them nearly so often! When I do, I am usually able to pass them off now because ERP has re-wired my mind not to give them more worth than they deserve. On the occasion (usually once or twice a year) that the intrusive thoughts do get to me, I use my ERP tools and exposures and usually can get past it within a matter of hours and a good nap.

What is erp, to be honest? They expose you to your fears until you don’t care/find they annoying? Sorry for my ignorance

ERP is exposure and response prevention therapy. Here are some links where you can learn more:

About CBT/ERP
Gaining Certainty through Embracing Uncertainty
Resisting treatment?

What life was like before & after CBT
Obsessing vs. Brainstorming: before & after
A Detailed Post about ERP
ERP is the RIGHT Answer
Better than a Band-Aid
Embracing Uncertainty
What CBT was like for me
Will treatment change me?
Why You Need CBT/ERP
Have Reservations about ERP?
Preparing for CBT/ERP
ERP & Imaginal Exposures
Uncertainty is the Key
The Problem with Seeking Reassurance
Finding a cognitive-behavioral therapist
Medication vs. Exposure Therapy
Can’t afford CBT/ERP?  Try this app or do self-directed ERP!

 I already am no longer afraid at my thoughts, no longer check, i just find them to be annoying as hell. Will i live with this “annoying friend” forever? Ugh. (i mean i believe one day God will heal me but while He doesn’t, will i just have to tell my brain to shut the hell up everyday? Man is that annoying). Thanks 🙂

Essentially, are you saying that you still have intrusive thoughts but they don’t cause you to perform compulsions? This is just real life, unfortunately! Everyone has ugly thoughts that come and go. The important thing is that when they come, they can also go. If you have a hard time letting them go, then ERP is your answer.

I’m afraid to go thought erp because my ocd is the religious kind. Is the doctor going to “make” me (i know no one can make anyone do anything, it’s just a manner of speech) do bad things (ex denying Jesus, wich i wouldn’t do not now not ever but my brain keeps shouting at me to do so)? I rather live my life like hell then actually going to hell, thank you

Completely understand that. Here’s a fictionalized version of how I had to approach such a tricky concept: https://jackieleasommers.com/2012/09/05/tipping-point-my-entry/

I really don’t want to be gay and I used to be so confident in my sexuality (I’m a girl btw) I just recently got a boyfriend and I didn’t like him that much but I still kinda liked him and I thought being with him would make me know I’m not gay but for some reason I just don’t want to hang out with him does that make me gay 

Doesn’t make you gay at all. Probably just means what you said it does: you don’t actually like him that much. Don’t date a boy as a compulsion to prove your heterosexuality. Date a boy because you truly care about him. ERP can help with both HOCD and ROCD. Check out http://www.jackieleasommers.com/OCD.

I think I have HOCD but I’m not sure. My therapist is doing CBT but I don’t think it’s ERP and it’s making me anxious. Like what if this therapy goes know where and just becomes me talking about my problems.(what happened with my last therapist). Should I trust that she knows what she is doing? Her Website says she does CBT so by saying she does CBT does that mean she is also an expert on ERP? 

CBT (cognitive behavioral therapy) is the umbrella term, and ERP (exposure and response prevention therapy) falls beneath the CBT umbrella. The best way to know if your therapist knows what he or she is doing is by educating yourself about what ERP looks like. I suggest reading the posts at http://www.jackieleasommers.com and also going through the list of questions to ask a therapist at https://iocdf.org/about-ocd/treatment/how-to-find-the-right-therapist.

am I actually recovering from HOCD? I am trying to manage my intrusive thoughts and no checking as well. I’m feeling much better however what’s causing me anxiety is that all my straight attraction is gone for a toss. I have had no history of experimenting with girls or having a crush on them. But I feel  scared. I have always wanted to be with a guy. Will my attraction for guys ever come back?

ERP cannot change your sexual orientation. But I do hear from many sufferers that their attraction to others (the opposite gender if they are straight and have HOCD; same gender if they are gay and have HOCD) vanishes for a time. It’s normal for OCD.

Hi Jackie, I’m not having any kind of anxiety over my thoughts anymore. So I woke up and I got a feeling which said “I want to be lesbian” but there was no anxiety that followed. Which freaked me out. And today I was like okay fine, what if I am? That doesn’t change anything. But i know i want to be with a guy. Does that mean I’m recovering or does it mean I’m gay? I want to be with a guy.

This is meant gently and tongue-in-cheek, hon: “there was no anxiety” is followed immediately by “which freaked me out.” Which means there was actually still anxiety. 🙂 Your thought process here is actually correct! But I suspect it will still be bothersome for you until you do ERP. This will help: https://jackieleasommers.com/2017/11/01/hocd-4-steps-to-freedom.

G~Always thought of myself as straight,loved women and the female body always had 100s of crushes. Lately ive watched some gay porn and it actually has excited me to a certain point and i hate it so much.have felt like i would enjoy doing certain things and cant believe im thinking like this. Even been losing my attraction for the female body which i used to be crazy for. Is all this hocd related?

Very, very consistent with the HOCD experience. ERP can help! https://jackieleasommers.com/2017/11/01/hocd-4-steps-to-freedom/

So I’m a 16 year old and a female, for he past few months I’ve been having a thoughts like “what if I’m bi? Or a lesbian?” I know deep down that I’m not but these thoughts are making me think I am. I’ve always liked guys my whole life and have had crushes on them. I’ve never had a crush on a girl or liked one either. It makes me anxious every time I’m around a girl could it be HOCD?

Sounds exactly like HOCD! Exposure therapy can help: https://jackieleasommers.com/2017/11/01/hocd-4-steps-to-freedom/

I keep on crying idk what to do I feel alone I keep on thinking about having s*x with other girls but when I think about i get discussed I’m only 14 years old I can’t be going through this please give me advice on how to control it or get rid of it please I cant even look at my friends anymore without thinking do I like hereading? It’s really uncomfortable and weird I can’t stop crying please help

Oh you poor dear! OCD is hard at any age, but to be 14 and dealing with it … and with something as personal as HOCD … so uncomfortable and lonely and difficult. Exposure therapy can help. It’s up to you whether you’d like to tell your parents what you’re dealing with in detail, or whether you’d like to just tell them you’re confident it’s OCD but you want to discuss details only with a therapist, or if you’d prefer to do ERP on your own. Here are some links that might help:

Can’t afford CBT/ERP?  Try this app or do self-directed ERP!
https://jackieleasommers.com/2015/07/29/hocd-a-letter-to-loved-ones/
Also please considering trying Pax the OCD Bot on Facebook. Just look it up in the FB searchbar and enable it. It’s a computer program, but feels like you’re chatting with a therapist for real!

Is it a normal symptom to feel an urge to kiss the same sex then get extreme anxiety during hocd? I feel so lost.

That is almost the literal definition of HOCD! ERP therapy can help: https://jackieleasommers.com/2017/11/01/hocd-4-steps-to-freedom/

Jackie, I need help. My boyfriend and I are believers and he has been struggling with OCD. Much of it is related to his faith. He just graduated Bible college and he can convince me it’s all spiritual warfare. I’m exhausted, he is too but he doesn’t think he’s OCD. I’ve looked all over for a therapist who does ERP near Rochester NY and I can not find a male. He won’t go to a woman. Plz help!Thanks

My OCD specifically attacked my faith. It goes after the things that are most important to a person, so that makes sense that– for someone like your boyfriend who cares about scripture and God– it would attack that in his life. I hope he will read through the following posts:

OCD & Christianity
(or other religious scrupulosity)
OCD, ERP, and Christianity
I’m a Christian and Take Meds!
Unashamed of my OCD
Is the thought from OCD … or God?
God’s Sovereignty, OCD, the Cross, & His Purposes
Is Mental Illness a Spiritual Issue?
Is ERP Sinful?
OCD & Faith (or Lack Thereof): a Double Interview

The past year I have been struggling with a  fear of selling my soul through intrusive thoughts. I recently had a thought that if I didn’t write everything I write in perfect grammar, then my soul belonged to Satan. I didn’t fight the thought as I usually do, and this was before I learned that I was supposed to ignore the thought. Does that mean that I meant the thought?

I’ve had similar thoughts before. I think most people have, except that for those of us with OCD, it’s far harder to say, “Well, that was ridiculous!” and move on. 🙂 ERP therapy changed my life in this manner; I’m not being dramatic. I hope it will help you too. Lots of details at http://www.jackieleasommers.com/OCD.

I think I am suffering from hocd I’d like to talk to you about it please

Hi friend! I am not a therapist. Here’s how to find one: https://iocdf.org/about-ocd/treatment/how-to-find-the-right-therapist/

Also consider trying Facebook’s Pax the OCD Bot. It’s just a robot, but it feels like chatting with a therapist!

Is it normal to feel false attractions and feelings towards the same sex with OCD. I was clinically diagnosed by 2 doctors with OCD yet I still doubt I have it and am scared that some things aren’t OCD even tho I never felt them before this obsession started. Sometimes I notice that the “attractions and feelings” are just normal feelings and such but they feel really real and unwanted and scary.

This is all normal for OCD. In fact, doubting that you have OCD is also normal for OCD– I’m not sure I’ve ever met someone with OCD who hasn’t doubted that they truly have it! Exposure therapy is the key to disarming the doubt. Check out http://www.jackieleasommers.com/OCD.

Continuing from the false feelings and attractions thing. So they don’t feel good and I get them for my sister and mom too!!! And objects like random objects! They confuse me because they feel like attraction or something but I know it can’t be cause it just doesn’t make sense but it can feel pretty real. How do I know for sure they aren’t real??? What if I’m bi/gay??? I fear both I fear all attra

cont’d below

Continuation again these attractions and such Do not feel good no matter how much my mind convinces me they do like I don’t lay back and just think about them and be happy no I fear them and hate them and when they show up it’s like LEAVE ME ALONE YOU RUON MY LIFE. Ok do u think I really have hocd???? How do I know for 100% sure I don’t feel anything for the same sex I don’t want to feel anything 

OCD is a real beast, isn’t it? It goes after things that are most important to us, like our personal sexuality and even the pure feelings we have toward our families. You can take down this beast of an illness with exposure therapy. Check out http://www.jackieleasommers.com/OCD.

Our son, Nick is 17 yrs old, turned 16 yrs old, and developed signs of depression. He appears to have HOCD. Older brother revealed to family that he was gay. Nick was then 13. Nick was a very social and talkative kid until the last 2 yrs. One love – very gifted competitive swimmer. Seeing a therapist and psychiatrist,, taking meds- not seeing great results. No ERP close by? Struggling terribly.

First of all, it’s clear you are an amazing parent. Great work!! ERP is truly the answer here, and the great thing about it is that you don’t need a professional in order to do it.

Read this post about self-directed ERP. Also consider the free app nOCD or the Facebook bot Pax the OCD Bot. They are both amazing tools.

Hi jackie, I’m suffering from i think religous OCD, i keep on praying until i am satisfied with my praying. Also i am thinking about Jesus Christ is different from God, can you help me please? Thanks jackie

The important thing here is to understand that OCD is an illness, treated like an illness. You don’t treat OCD with learning theology. You treat it with ERP therapy and meds, okay? Once you do that, then you will be able to enjoy your relationship with Christ and dive wholeheartedly into theology in a healthy way. Check out https://jackieleasommers.com/2017/07/25/does-my-erp-therapist-need-to-share-my-faith.

I am being treated by a Psychiatrist for depression/anxiety. I am also rather sure i have OCD, as I have all the symptoms but I am afraid to tell my doctor about my intrusive HOCD related thoughts as they are strange and taboo. I am also worried she will think I am crazy and maybe not know about HOCD. My HOCD is also under control now and that making me procrastinate telling the DR. Any advice?

I can appreciate the fear that goes into telling someone about taboo intrusive thoughts. If your therapist or psychiatrist is an OCD expert, they will not be shocked at all. This is common territory within OCD. Unfortunately, many doctors and therapists are still unfamiliar with OCD/HOCD and end up giving awful advice that only makes things worse. The more you educate yourself on OCD and HOCD, the more you will be able to recognize whether or not your therapist/psychiatrist knows about it!

This article may help: https://iocdf.org/about-ocd/treatment/how-to-find-the-right-therapist/

Dear Jackie, sorry for another HOCD question (I am a straight male), I know HOCD can make you feel a loss of attraction to the sex you’ve always been attracted to, but can it make you fearful of that sex? This occured after reading an account from a female perspective of HOCD that got me really confused, like I’m now afraid of women despite wanting to be attracted to them like my normal self.

I hear narratives like this all the time. I always say “normal for OCD.” 🙂 ERP can help, friend. Check out http://www.jackieleasommers.com/OCD.

Hi Jackie,

I’ve been suffering with hocd or what I think is hocd for just over 3 years. I have just recently started to see a cbt therapist. I was wondering when you went through this did you have a nagging feeling constantly in your head. Also how did you accept the uncertainty that all of this brings to get rid of the obsessional ruminations. 

First of all, check out https://iocdf.org/about-ocd/treatment/how-to-find-the-right-therapist. It’s important to find a therapist who truly understands OCD and how to treat it with exposure therapy.

Secondly, ERP therapy is how you learn to accept the uncertainty. It takes about 12 weeks, and it’s very hard, but it’s life-changing. It re-wires your brain back into a healthy pasture. 🙂

Hi I’m not sure if Hocd or am I gay or bi I keep checking gay porn hundred times a day but my mind telling me I like it but I have no arousal then when switch to female I get aroused instantly so I can’t figure what going on 

The key word here is “checking”– that is a very, very common compulsion. ERP therapy can help: https://jackieleasommers.com/2017/11/01/hocd-4-steps-to-freedom/

Was diagnosed with other types of ocd, but now not sure if I have HOCD or gay? Always had crushes on boys/had straight relationships.I feel like my personality is straight but once I started worrying I was gay i put pressure on sexual arousal to men/penises and now it feels like I’m no longer sexual attracted to men but am to women..emotionally speaking/crushes never wanted to be with a woman. 

You can have OCD and then experience many different “themes” within it. For me, until I treated OCD with exposure therapy, my themes just got harder and worse as I went along untreated. Once I treated OCD for one theme, it took care of them all. 🙂 Read about it at http://www.jackieleasommers.com/OCD.

Hi Jackie I’ve think I’ve been suffering from pocd but I can’t tell it started once I graduated high school I’m an 18 yo male I had never worried I was attracted to kids but now I’m constantly worried about it all of a sudden I started having thoughts of kids but in sexual situations and they tormented me I’m seeing a therapist and she says it’s ocd but I’m scared it’s not

Ahhh, the doubting disease … where it even causes us to doubt whether we have it! What you wrote is the textbook description of POCD, and it means that you actually value healthy sexuality and would never hurt a child. That’s why you have all the anxiety and torment! (A pedophile would enjoy it.) Exposure therapy can help, even though it is really difficult. It’s 12 hard weeks, but it is wayyyyy better than a lifetime plagued by such thoughts. Check out http://www.jackieleasommers.com/OCD.

Is this HOCD or am I in denial?  I am 13 and I suffer from depression and anxiety, a month ago I thought to myself ‘what if I’m gay?’ Which stared this torment. I had never had any crushes on girls only guys and I felt it getting worse each day. Now I feel like I have no orientation but still an plagued with thoughts images and sensations. I don’t know if it’s the antidepressant or I’m in denial. 

May I introduce a third option? What if it’s not the antidepressant OR denial, but you just suffer from HOCD, a treatable illness? ERP therapy can help, truly: https://jackieleasommers.com/2017/11/01/hocd-4-steps-to-freedom/

Hi Jackie, I was in therapy but left because the exposures were too scary: he wanted me to ‘agree’ with my thoughts…I was worried I was aroused by horrible sexual intrusive thoughts, so I would say “yes, I was turned on by that!” I saw that this is basically what you did?  I thought saying “maybe I was” would be effective, too…or even “it’s just OCD.”

I completely understand this. Here’s a fictionalized version of how I was able to side-step things in ERP and still beat OCD: https://jackieleasommers.com/2012/09/05/tipping-point-my-entry/

hi

Hello buddy. 🙂

I’m a 16 year old girl who is struggling w HOCD. I am 99% sure I have HOCD. However, when I read about the difference between gay and HOCD or even about gay, my mind makes me feel like I am truly relating to the gay side of things even if I relate more to hocd when it comes down to it. Is that normal?

OCD/HOCD will make you doubt everything. Does the idea give you anxiety or stress? If so, that’s very telling! Try to take deep breaths and continue to read up on HOCD. Knowledge is powerful!

Hi Jackie, this question is also about HOCD, it’s just that I can’t find anyone who at the moment has the same problem. Not only am I scared of people of the same sex but also of people of the opposite sex because I’m so worried I might not be attracted to them. So basically I am avoiding both genders.. What should I do? Should I be doing ERP for both?

As you can see, I was asked this question (or something similar) by two other people even in this thread! So you are not alone. 🙂 Do ERP for HOCD, and it should eventually kick everything else’s butt too. I did ERP specifically around my religious/spiritual obsessions, but it also took care of any other themes I was experiencing too, because ultimately ERP is restoring a healthy brain wiring to you.

Hi Jackie i am 15 year old girl and i feel like am going crazy. I think i am dealing with HOCD i never been diagnosed with ocd before but am not sure i been dealing with this ever since i was 13 but i never told anyone or gotten help. I feel like it’s different this time i feel like am always in denial. I have lost my attraction to the oppsite sex it it depresses me.i always had crushes on guys

You’re not crazy. As you can read above, what you’re going through is a very common experience within HOCD, even down to losing attraction to the gender you’re usually into.

It’s up to you whether you’d like to tell your parents what you’re dealing with in detail, or whether you’d like to just tell them you’re confident it’s OCD but you want to discuss details only with a therapist, or if you’d prefer to do ERP on your own. Here are some links that might help:

Can’t afford CBT/ERP?  Try this app or do self-directed ERP!
https://jackieleasommers.com/2015/07/29/hocd-a-letter-to-loved-ones/
Also please considering trying Pax the OCD Bot on Facebook. Just look it up in the FB searchbar and enable it. It’s a computer program, but feels like you’re chatting with a therapist for real!

Should You Trust Your Therapist? Depends.

Got this excellent question from a blog reader:

I think I have HOCD but I’m not sure. My therapist is doing CBT but I don’t think it’s ERP and it’s making me anxious. Like what if this therapy goes know where and just becomes me talking about my problems.(what happened with my last therapist). Should I trust that she knows what she is doing? Her Website says she does CBT so by saying she does CBT does that mean she is also an expert on ERP?

It’s sad, but so many mental health professionals are not very educated on OCD or how to treat it. CBT (cognitive-behavioral therapy) is a pretty vague, blanket term, whereas ERP (exposure and response prevention) is a specific type of CBT.

Two things I’d suggest:

  1. Read up about ERP. As much as you can. It will help you recognize if it is being done correctly. Start with this article on the IOCDF website. Also read any/all of the CBT/ERP posts at www.jackieleasommers.com/OCD.
  2. Ask your therapist the following questions. These questions– and the answers you should listen for— are pulled from this page on the IOCDF website.
  • “What techniques do you use to treat OCD?”If the therapist is vague or does not mention cognitive behavior therapy (CBT) or Exposure and Response Prevention (ERP) use caution.
  • “Do you use Exposure and Response Prevention to treat OCD?”
    Be cautious of therapists who say they use CBT but won’t be more specific.
  • “What is your training and background in treating OCD?”
    If they say they went to a CBT psychology graduate program or did a post-doctoral fellowship in CBT, it is a good sign. Another positive is if a therapist says they are a member of the International OCD Foundation (IOCDF) or the Association of Behavioral and Cognitive Therapists (ABCT). Also look for therapists who say they have attended specialized workshops or trainings offered by the IOCDF like the Behavior Therapy Training Institute (BTTI) or Annual OCD Conference.
  • “How much of your practice currently involves anxiety disorders?”
    A good answer would be over 25%.
  • “Do you feel that you have been effective in your treatment of OCD?”
    This should be an unqualified “Yes.”
  • “What is your attitude towards medication in the treatment of OCD?”
    If they are negative about medication this is a bad sign. While not for everyone, medication can be a very effective treatment for OCD.
  • “Are you willing to leave your office if needed to do behavior therapy?”It is sometimes necessary to go out of the office to do effective ERP.

 

Healed Not Cured: OCD Remission & Relapses

I got an email this past weekend from a lovely blog reader who has found victory over obsessive-compulsive disorder through exposure therapy. It’s such a joy any time someone shares a story of freedom, and it does my heart so much good. It reminds me of the reason I preach the benefits of ERP therapy. It reminds me of when I first went into OCD remission back in 2008.

But I also find it important to mention that while the person with OCD has experienced healing, it does not mean that they are cured. In the vast majority of cases, OCD is never cured; it is treated and maintained. What does this mean?

First of all, it’s definitely something to celebrate. I revel in my remission, and in fact, after eight years of this freedom, sometimes I even find myself taking it for granted. It’s a victory to come out of exposure therapy with a new tolerance for uncertainty. It’s a joy and a relief and, for me, at least, a whole new life.

But it doesn’t mean that I don’t have OCD. 

not you again

There are days of intense stress where I buckle a bit and find myself having some obsessive thought patterns or even resorting to old compulsions. This disorder is mostly dormant in me … but it is still in me. And it can wake when I am stressed or fearful. Every once in a while, there is something that will trigger my OCD, and it’s like there’s a CLICK in the way my brain works, a little BLIP in the new system.

But, usually

  1. I recognize it for what it is. I am able to do this because of ERP.
  2. I do not beat myself up over it or assume “all is lost.” It’s merely a step back. I don’t have to start the race over.
  3. I refuse compulsions. (Notably, I allow myself to ask a group of people [usually my coworkers] ONE TIME for what they would deem the appropriate response, and then I DO IT, whatever they say. I know that when my OCD is triggered, I have a hard time understand what is or isn’t a valid response. So I give the decision to others.)
  4. If it’s particularly bad, I listen to my ERP audio track.
  5. I go to sleep, as early as I need to. It is–almost without fail–better in the morning.

I don’t mean this to be bad news–not at all; rather, it’s just something to take note of, something to have in the back of your mind for those stressful days, for those moments when your OCD wakes up and starts to whisper in your ear.

Here’s some anecdotal data about my remission and relapses:

  • In the first 1.5 years after completing ERP, I didn’t experience obsessions or practice compulsions at all.
  • In the years after that, I have had about 1-2 relapse incidents a year.
  • Each incident has lasted on average just a couple of hours. One lasted about two days.

This is nothing compared to my life before ERP. This is manageable. This is freedom. This is remission.

This is good news, people.

If you want to learn more about the exposure therapy that got me to this point, you might want to check out the following links:

jackieleasommers.com/OCD: a collection of my posts about all things OCD
jackieleasommers.com/OCD-help: a letter from me to OCD sufferers, along with a list of next steps
jackieleasommers.com/twin-cities-OCD: resources for OCD sufferers living in or around Minneapolis and St. Paul

Question & Dancer: August 2017

question-and-dancerI’m an artist not an expert, one who is learning to embrace questions more than answers.

These are some questions I got last month. Ask yours here.

Is it normal for you to feel as though you’re losing your attraction to the sex you’ve always desired bc of HOCD? I know I want to be with a man and only a man but focusing on checking and reassuring myself has started to make me lose my passion for the opposite sex:( will my attraction ever come back (I hope so)? And is it also normal to lose your sex drive bc of HOCD? 

Friend, you are describing HOCD. All this is typical for HOCD and can be treated with exposure therapy. The joy and passion that you so desperately want can be yours again if you work hard through ERP.

I’ve done ERP and reduced my HOCD symptoms drastically. Yet, I still have some worries about my sexuality. I’m no longer sure if this is normal lingering of OCD doubts or a real concern- my compulsions are less but i still do remunerate and  try to imagine my self in a same-sex relationship to cope. I don’t know if this inability to find clarity means that there a real concern as well as the OCD. 

Hi dear, it sounds like you are on the right track! I say keep up the hard work of doing exposure therapy– and don’t forget the “response prevention” part. That means keeping yourself (as best you can) from all the ruminating and checking. I am not a therapist, but I know that for my own ERP, I practiced approximately 40 minutes a day for 10 weeks before everything “clicked” for me.

Hi Jackie, I have hocd. Unfortunately there are no OCD specialists near me or anyone certified to do ERP training. The therapist I see now is only a trauma specialist but it was the best I could do. I know I can always do ERP on my own but I’m too scared and it feels too overwhelming. What should I do?

I can completely understand feeling scared and overwhelmed, my dear one. How would it feel if you were to just begin by exploring ERP, by learning about it but not actually doing it yet? I would recommending getting a book about ERP and reading it strictly for the sake of education. You will still be moving yourself forward, and perhaps it will take some of the fear and mystery out of ERP for you.

I recommend a few books to choose from here.

Hi, recently I’ve been seeing a lot of hocd related questions on your blog. Does it surprise you how many people suffer from hocd? Most people don’t even know what it is, or even believe it to be a real issue. 

You know, at first it surprised me, but after a couple years of hearing from primarily HOCD sufferers, I am no longer shocked. I suspect that people might end up on my blog because HOCD is not talked about as frequently elsewhere on the internet. I don’t know if that is true, but I do know that if you google HOCD, my blog appears twice on the first page. This month I received 16 questions via my blog, and 15 were about HOCD. I promise you: it is very, very real.

my OCD is currently under control but i wonder how it is i’ll ever learn to live with this mind of mine? the endless doubt- never knowing whether something is just OCD or Real?

Hello dear one, wow, I can remember feeling that same way, and for SO LONG too. Life is no longer like that for me, and I trust that you can have the same experience. Part of it for me was having doubt lose its power over me (this was via ERP therapy), and part of it is starting to recognize which of my thoughts fit the “community standard” and which did not.

I talk a little about “community standard” here.

Jackie, I feel so lost and scared. I’m a female with hocd and there are sometimes when I get terrifying thoughts like, I should just try being with a female and not care because I might like it, and then I see a female I know in my head. My worries never end. Besides doing ERP, what other advice can you give me?

Well, of course ERP is always my #1 suggestion. Other things that might help can include medication like an SSRI. Many people with OCD have found relief via mindfulness, but that is not something I have explored much on my blog, since I always recommend ERP. If you are not ready for exposure therapy, consider at least taking the time to read a book about it. Education is a great weapon against OCD.

Jackie, the phrase “don’t knock it till you try it” is really scaring me because I have hocd and this is making me feel like I should try a same sex relationship!!
😦

I know what it’s like to have a phrase seemingly take the rug out from under my feet. But try not to assign so much meaning to a phrase. There are certain things that phrase makes sense with– like trying new vegetables or taking an art class. There are plenty of things it doesn’t make sense with– like trying cocaine or quitting your job to start a crocodile petting zoo. It’s just hard for someone with OCD to sort through it all. The best suggestion I have is exposure therapy. Lots of details here.

Hi Jackie, I have had hocd for a while now. I was texting a friend from church (we are both females) and suddenly I got a thought that, I keep checking my phone because I want her to text me back. I like the attention she’s giving me etc. it’s got me all worried now that maybe I’m crushing on her? Or this is attraction?

Hi dear, this is so similar to many stories I have heard about how HOCD suddenly flared up for them … thinking a friend looked pretty that day, wanting to hear from someone, etc. We assign too much meaning to it. Theoretically, I’m sure you know that most people love attention from their friends, love to hear from them, especially if the conversation is an exciting one. But most do not suddenly worry that means they like that friend romantically. That is where someone with OCD shows how differently their brain is wired. You can rewire it through ERP.

Okay I am 100% sure I’m straight but this is where it gets weird. For some reason nothing was turning me on so instantly my mind thought I was gay. Dumb, right? I thought it’d eventually go away but it got worse. When I’m not thinking about it I can watch normal videos fine but when I watch a video of a male and it pops up I think I’m about to get turned on but mind you, I’m completely soft.

I know this can feel so scary, as if you’ve lost all attraction, but that is commonly reported by people with HOCD. The only question you (technically) asked is, “Dumb, right?” To which I would say, “No. Not dumb. Just HOCD.”

Hi Jackie, I have hocd and it’s terrible. Every time I hear or watch something that just has a normal positive message of, “be your true self, never hide who you are and love yourself ” I automatically think that I’m gay and should come out and not be afraid. Is this just my OCD?

It sure sounds like it. Many people with OCD twist well-intentioned words, giving them too much meaning. The best thing that you can do for yourself is pursue exposure therapy. Read more at http://www.jackieleasommers.com/OCD.

I’m a female with hocd. Why does it FEEL like I’m gay when I know I don’t want to be with girls, when I know I don’t want to be in a relationship with them? Often times my brain feels like it tries to convince me to even like a pretty girl I know! Please help I’m so confused 

It feels that way because of OCD. In non-OCD minds, there is a gate that opens and closes easily– thoughts can come and go as they please, and with fairly little stress. But in an OCD mind, a thought enters and the gate locks shut, which means that that thought just goes around and around and around and around. It is hard to find relief. With exposure therapy (ERP), that gate begins working properly again.

I’m worried. I have hocd and sometimes when I do get my attraction to guys back I’m a female btw, I now worry I’m bi??? Because I’m still thinking about girls and being afraid to look at pretty ones and worrying if I might like one. So I’m all confused that now I’m bi since I’m thinking about both??

I know that this probably sounds like the opposite of what you want, but the truest relief and freedom comes from not having to be certain about these things. I detail the benefits of that here. Please, please read it. I think it might help to make ERP make more sense.

Jackie I have hocd and I’m scared because I keep getting groinal responses every time I look at girls. It feels so automatic like I can always expect for it to come and I’m so aware of it. I have read that a lot of other people experience this too but I’m still pretty worried. 

It feels like your body is betraying you, doesn’t it? You’re right– that’s a very common experience for those with ERP. Start by not assigning it too much meaning, and please read these interviews with Hannah, who formerly struggled with HOCD. I think they will help.

Interview with a Former HOCD Sufferer
Another Interview with a Former HOCD Sufferer
A Third Interview with a Former HOCD Sufferer
A Fourth Interview with a Former HOCD Sufferer
Q&A with Former HOCD Sufferer

Hi I’m 15 years old, I’ve never thought I was gay/bisexual before. Always like boys (I’m a girl by the way). Never had a girl crush. But now everytime I see a girl I think Could I kiss her, have sex with her or could i see a future ( like dating or marriage) with her? Whenever I think about it I frown and get upset. I have OCD/Anxiety disorder, which I was diagnosed with.

Hi dear, a very common experience amongst those with HOCD. I recommend ERP. This might help: https://jackieleasommers.com/2015/07/29/hocd-a-letter-to-loved-ones.

Hi I’m 14 and I found out I have OCD I’ve told my parents and I had a really bad panic attack bc of thinking I will hurt my family then months go by and my sister called me a lesbian to impress her crush. Then I have theses thoughts of being bisexual but I’m not bc I like guys and not girls I freak out bc if I see a girl who is pretty my thoughts are all like your bisexual and I know I’m not 

Hello friend, I’m so sorry that your sister did that. I’m guessing she didn’t know what kind of agony it would cause for you. Please read this post and consider sharing it with your family if you think it might help: https://jackieleasommers.com/2015/07/29/hocd-a-letter-to-loved-ones.

Is it part if HOCD to experience an errection while watching gay porn? Like first there is an extreme tension in the chest followed by an errection. 

Yes, this can definitely happen! Exposure therapy is the answer!

Jackie, I have hocd and I’m worried about the whole “sexuality is fluid” thing. I know it’s different for everyone, but the it’s scaring me that I often see for example, celebs who have been with the opposite sex, just start relationships with the same ones and say they like it? So now I’m wondering, well what if I do the same, and I end up liking it too?? 

Hi friend, I hope this post will help.

Hey. So I know that many of us look up to celebs and think they’re very pretty or love their movies and songs etc. I have hocd, but I’ve always really liked Jennifer Lawrence. I was watching an interview of hers and suddenly it made me feel like I am gay for her and wouldn’t mind being in a same sex relationship with someone like her. Now I’m very confused/worried. Help??

Is it causing you anxiety? If so, it may very well be HOCD. Check out these posts about it and see if you can relate!

HOCD
A Closer Look at HOCD
Interview with a Former HOCD Sufferer
A Big Ol’ HOCD Post
Another Interview with a Former HOCD Sufferer
A Third Interview with a Former HOCD Sufferer
A Fourth Interview with a Former HOCD Sufferer
Q&A with Former HOCD Sufferer
HOCD Story: Meet Mae, Part One
HOCD Story: Meet Mae, Part Two

Hi Jackie, I’m a teen with hocd. Recently I decided I’m not gonna be scared of the thoughts and to stop avoiding stuff that triggers my anxiety. However, as I was doing exposure today by watching a coming out video which explained how the girl didn’t enjoy sleeping with men, I suddenly got worried wondering. well what if I’m the same? I’ve never had a bf. How do I know I’ll even like it??? 

I know that people with HOCD can see or hear one thing and then– BAM!– their minds are off to the races, so to speak. You are doing the right thing by not avoiding stuff that triggers your anxiety; next, you need to stop doing things that alleviate that anxiety (the compulsions, whether that means seeking reassurance, checking your body for reactions, etc.). This is how exposure therapy works. Read more at http://www.jackieleasommers.com/OCD.

I consider myself a straight man suffering from HOCD. i am completely cured, but when I think of having romantic attraction to same sex, i feel grossed out but at the same time I feel a sensation in my groinal area. It has occurred atleast 3 times now. I have not experienced anything similar for girls being a boy. So, is this a sign of being gay or is this just a groinal response?

Does it cause intense anxiety for you? That sounds like HOCD. You say you’re completely cured, but OCD is not cured typically (though I have heard of a couple miraculous recoveries). Usually it is just managed and maintained.

Hi! 4 years ago my obsession about my sexual orientation started. A couple of months ago I heard about HOCD & felt completely identified. I was wondering whether is possible to have this disorder without being previously diagnosed with OCD. I’ve been through my past trying to find OCD signs & some things made me think that they were ocd’s behaviors. I also went through anorexia. What do u think?

Remission
Healed Not Cured: Remission & Relapse
OCD in Remission
Life after Treatment
When to expect a relapse
Am I Bitter?
Lies I Sometimes Still Believe
Managing OCD-in-Remission

Im a female with hocd but I’m not trying to ask for reassurance, but more so recognize the way OCD likes to behave. Whenever I read a book or watch a video in the perspective a guy, and he’ll be talking about a girl, just ordinary stuff, it makes me feel as though I’m in his situation and I can see myself with the girl, and it makes me anxious. Is this my hocd? 

Sounds like it, yes. I’m a young adult author, and right now, half of the book I’m writing is from the male perspective. It can definitely be interesting to write about “oh she’s so gorgeous,” etc. 🙂 If the anxiety becomes intense, please don’t hesitate to pursue exposure therapy, which you can learn about at http://www.jackieleasommers.com/OCD.

Do you know many people who did self-oriented ERP and succeeded? Thank you very much Jackie :D.

The best example I know is Shannon Shy, who is now president of the board of directors for the International OCD Foundation. Follow him here. He is endlessly encouraging.

Thanks for all the questions, folks! If you have questions for me about anything (but especially faith, creativity, and mental illness), add yours here.

As I said, I’m an artist not an expert. I will leave you with these, some of my favorite questions in one of my favorite poems, “Questions about Angels.” Click here to hear Billy Collins himself read it. (P.S. It starts with questions, ends with a dancer.

Compendium

I was just writing up a giant blog post about Charlottesville, and I decided to sit on it for a day or so before posting. So, even though this post might be about everything BUT Charlottesville, know that it is at the forefront of my mind and in the center of my heart. I am just wanting to ask a friend to read my post before it goes live. ❤

OCD Study
Last week, I read about this Cambridge study, which found that OCD sufferers might be able to find relief through watching someone else perform their compulsions. The article suggests that maybe a video series could be created to help bring relief to sufferers. This actually troubles me because it ignores the root issues– and I think that you run a HUGE risk of now having those videos become the new compulsion. Compulsions are NOT the solution to OCD– they are a temporary alleviation of anxiety that will almost always become an uncontrollable monster in their own right. In exposure therapy, on the other hand, immediate relief is not the goal. The goal is learning how to live with uncertainty (which is ultimately what causes the anxiety for OCD sufferers) and letting that new way of behavior re-wire the brain for more long-lasting relief. Exposure therapy is clearly the better option.

Salt Novel
I feel so good about where I’m at with this, and especially since we decided to push all the deadlines back a tiny bit. I believe this means it will come out early 2019, which feels far away, but truly, I think it’s perfect timing. I want this book to be the very best it can be, and I’m so grateful for an editor who is on the same page!

Work
Work has been absolutely insane this summer. For those of you who don’t know, my day job is working in enrollment at a local university. We have been up 12% in visitors this year, even as three of our coworkers left this summer for other jobs. Busier than ever, fewer people, plus adding to that interviewing, hiring, and training. It’s just been wild. I’ve worked there 14 years, and we’ve never had a summer like this one.

Reading
Has been slower than I’d like. I finished Hallelujah Anyway by Anne Lamott, which was lovely and like having an auntie whisper healing words over you. I am reading The Smell of Other People’s Houses by Bonnie-Sue Hitchcock right now, and next up I’m excited to dive into If Birds Fly Back by Carlie Sorosiak (check out the incredible cover!).

Balance
This is the key, isn’t it? How do I balance writing, recruitment, healthy routines, and finding time for the greatest set of friends on earth? I guess I’ll start by being grateful.

20991582_10101869764754350_592358811_o

 

Question & Dancer: This & That

question-and-dancerI’m an artist not an expert, one who is learning to embrace questions more than answers.

These are some questions I got last month. Ask yours here.

I have hocd, and I’m a 17 year old girl. I was wondering, is it weird if I still get crushes on guys during this? sometimes I doubt if I even do like them and the feelings feel fake and forced. Other times, no. Since my hocd started I haven’t been able to really like a guy. If I do, my crush goes away quickly. This makes me worried and makes me think that I can never truly like a guy ever again. 

Dear one, not weird at all. HOCD will do whatever it can to confuse you. Please be sure to read about HOCD and ERP at http://www.jackieleasommers.com/OCD.

Hi Jackie! My question concerns telling my significant other about my HOCD. I have already told him a bit about my same sex attraction fears (around 1.5 yrs ago) but at the time, I didn’t realize it was HOCD. Now that I know HOCD is the culprit I am wondering if you have any advice as to how to explain… I am afraid he won’t believe its HOCD and indefinitely doubt my affection for him. 

This is definitely up to you. I think this is the one of the hugest fears for someone with OCD. I did write a letter you can give to your SO to try to explain things better. It’s available here: https://jackieleasommers.com/2015/07/29/hocd-a-letter-to-loved-ones.

I just want to say, a massive thank you. I´ve been on hell for the past six months, or maybe more. i even thought about killing myself. and i trully did search for so many blogs, but they are mostly about guys so i didnt feel like i found answers. But this is the first site that is from a girl. Made me feel like there is hope. I hope eventually i get to tell you how truly straight i feel i am.

Thank you for your sweet message. I promise you there is hope, and I look forward to hearing from you after you’ve undergone treatment. In the future, if you are feeling suicidal, don’t hesitate to call the National Suicide Prevention Lifeline at 1-800-273-8255 or chat with them here.

I feel like I have accidently made vows to give up things that i enjoy and i didnt want to give them up. I have OCD, but would the vows be binding? For example: “if i step on a crack, i have to stop doing this activity” but sometimes i feel like i mentally agree to it for a split second after the thought comes in my head. Like its 90% intrusive, but 10% my intentional.

I experienced this intrusive vow-making too, back when I was in high school, and it was a dark, dark time of my life. I don’t think that you are bound to these because it is OCD making the vow, not you. In any case, it is better not to focus on “solving” the vow-making but on treating OCD with exposure therapy. Best wishes!

Another vow question. I just feel so stressed because I really feel like I have to give up my two favorite activities according to the vows. After that I am left with no form of enjoyment. Even when I try ERP,  i feel like i am sinning by breaking promises to God and I dont even enjoy doing the activities anymore because of the anxiety.I feel like there is no hope. What do I do?

I also worried that my ERP might be sinful. I hope this post will help you: https://jackieleasommers.com/2014/08/03/ocd-scrupulosity-is-erp-sinful.

Hi Jackie, I have hocd. What worries me a lot is that I don’t have any attraction to guys (I’m a female). I want to like someone but I feel empty and don’t feel any attraction even though they might be perfect for me. What do you think?

Hello lovely, this is perfectly normal for someone with HOCD, and you can defeat it with exposure (ERP) therapy, which you can read about at http://www.jackieleasommers.com/OCD. There are resources there too in case you can’t afford therapy but would like to do it on your own.

Jackie, I’m a female with hocd. I know it is common for people to lose attraction to the opposite sex during this, but will I ever like another guy again?? It honestly feels like I won’t. 

Oh dear one, yes, I truly believe that you will. ERP therapy can help. You are not alone by any means, and I hope that as you read through the questions in this post, you will see that.

Hello! I believe that I have been suffering from HOCD for the past 8 years (this started when I was only 12, unfortunately). I’ve never been diagnosed or treated. However, my question is: is it normal/common for OCD compulsions to change over time?? 

Yes indeed! As obsessions and compulsions shift, we call this “theme hopping,” and you can read about it here: https://jackieleasommers.com/2014/01/19/theme-hopping.

I’ve been told I have HOCD. I have worried about this  on and off. My first time I was 12 & I remember crying to my parents & I think I said something along the lines “I’m staying straight & then I don’t have to be made fun of” now that scares me because that means I’m afraid of society & that’s what gay people go through. Now I feel like I want to be straight just for society reasons. Please help

It is very common for people with OCD to think back on old memories (even ones that have never bothered them before) and suddenly become fixated on them. Sounds like your experience is very consistent with OCD/HOCD. Have you explored ERP therapy? You can read about it at http://www.jackieleasommers.com/OCD!

Hi, I’m a 16 year old girl who has been suffering with HOCD for roughly 8 months now. I have come to the conclusion that the only way to overcome this is through therapy, but I’m scared to ask for help and recieve it. How do I ask my parents? I feel like if I sit them down to ask them for help, they will assume that I’m coming out or they’ll try to get too much information out of me. Help!

I hope that this will help, my dear: https://jackieleasommers.com/2015/07/29/hocd-a-letter-to-loved-ones.

How can I begin ERP for my HOCD by myself?

Hi friend, you can read about self-directed ERP therapy here: https://jackieleasommers.com/2014/10/05/self-directed-erp-therapy.

Should I open up to family & my boyfriend about my HOCD? It terrifies me to think about telling them about it. Can I deal with it alone?

You can choose to do whatever makes YOU feel most comfortable. Please don’t overthink this (I know that’s a silly think to say to someone with OCD, but I want to give you permission to do what you choose). The links in the answers to the two questions just above yours will be useful (I hope!) in choosing whether it is a better option for you to tell your family and boyfriend or whether to go after ERP therapy alone. Best wishes.

Jackie, I’m scared. I had a dream last night in which I married a female I know. (I’m a female with hocd). It was very detailed, including me being with her in bed. This is the second time this female has appeared in my dreams, I have no idea why. I was unhappy in my dream but I’m lost and terrified that this is a prediction to my future???

I know why: because you have HOCD and have been obsessing about this. It makes sense that it would carry over into your dreams. In this interview with a former HOCD sufferer, she talks about having the same experience: https://jackieleasommers.com/2013/10/20/interview-with-a-former-hocd-sufferer. It is not a prediction of your future, dear. It is natural for our waking concerns to sometimes leak into our dreams.

Can HOCD turn into straight OCD, i´ve spent many times on internet which made it worse. and since truly gay ppl have straight ocd, its now like i kinda have that. To be honest i am about to take sleep pills. Hope there is light

There is light. I promise. Firstly, if you are feeling suicidal, don’t hesitate to call the National Suicide Prevention Lifeline at 1-800-273-8255 or chat with them here. OCD can twist and morph through the weeks and years, so that is not unusual. It will do what it can to make you miserable until you learn to be comfortable with uncertainty. The best method for doing so is the evidence-based approach of ERP (exposure and response prevention) therapy, which you can learn about at http://www.jackieleasommers.com/OCD.

Where’s the best place to get diagnosed in the Twin Cities? I’m positive I have HOCD but I’ve never been diagnosed with any form of OCD and I’m worried I’m in denial.

Hi friend, here are a couple resources for you:
https://jackieleasommers.com/twin-cities-ocd
https://jackieleasommers.com/2017/07/24/qa-with-an-erp-therapist

If I’m struggling with hocd, do you think I should stay away from psych forums? I’m already getting help for therapy and medicine though. But do you think it’s my way of just reassuring myself? 

Yes, I really do think it is unhealthy for you to be on the psych forums. Part of your ERP should be avoiding compulsions, and I think this way of seeking reassurance is one. I’m so excited for you that you’re doing therapy and meds though! Are you doing ERP and not talk therapy, I hope?

Please read the following: https://jackieleasommers.com/2014/11/16/talk-therapy-vs-erp-therapy.

I have Hocd been going for 4 months.i always got aroused from girl and lez porn,but I did not wanted to do anything with girls.I once thought about kissing a girl and these things are fuelling my hocd.Yesterday I was horny.I decided to watch lesbian porn to check and I got really aroused i tried to think about having sex with a girl and I felt real arousal like i feel with men.Is my hocd or Im bi?

Does it feel intrusive and unwanted? This is part of how we define OCD.

What do you think of group therapy like DBT for OCD? Specifically hocd

I’ll admit that I’m not very familiar with DBT, though I have heard great things about it, especially in regard to treating things like borderline personality disorder. The evidence-based #1 treatment for OCD is exposure and response prevention (ERP) therapy, a type of cognitive-behavioral therapy (CBT).

Have you read, “All the light we cannot see” by Anthony Doerr? “Everything Everything” by Nicola yoon? And “Unbroken” by Laura Hillenbrand? Those are very good reads. Also, what’s your most favorite book of all time? 

I have read the first two, and I own the third book, but I haven’t had a moment to read it yet! My most favorite book of all time? Man, that’s difficult! I am going to go with Saving Francesca and its companion The Piper’s Son by Melina Marchetta. But everything Marchetta writes is magical. I also love The Chronicles of Narnia by C.S. Lewis, The Book Thief by Markus Zusak, The Scorpio Races by Maggie Stiefvater, The Last Unicorn by Peter S. Beagle, Peace Like a River by Leif Enger. (Sorry, it’s just so hard for me to only say one!!)

https://jackieleasommers.com/2014/08/04/read-these-10-novels-and-we-can-be-friends

Jackie I’m scared. I find myself constantly fearful because of my OCD. I have hocd, and I’m always terrified of the “what if..” although I have never questioned my sexuality, I feel as though nothing helps convince me I’m not gay. Some days I’m just depressed. My mind also wanders a lot. I’m not ready for ERP, but what should I do?

If you are not ready for ERP, the next best thing you can do is start to learn more about OCD and ERP. Education matters. It’s an incredible way to fight back. Track down some books and learn. You begin to steal back power this way.

I’m a female junior in high school, and I sometimes feel hopeless if I will ever get a guy. Every where I look people are in relationships. I’ve never had a boyfriend or even a first kiss. I know god always has a plan, but how can I trust him and know I won’t be alone forever?

Hi honey. I’m 35 and single. I completely get it, I promise. In fact, just this last week, I found myself asking my friends this same question, “will I be alone forever?” I guess that is where trust comes into play. We just don’t know, do we? BUT I do believe that when we love and honor God and follow him, he is the one who gives us our desires– in two ways. He gives us the actual desire– and then fulfills it too. I am being inarticulate. Let me try again. I think that God has given me the desire to be in love. I trust that he will also fulfill that God-given desire with a partner.

Is it normal for HOCD to play a part into ur relationship and make u question ur feelings for a person when u know in ur heart that you love/are attracted to them? Where when ur having guilt&questioning yourself about ur sexuality bc of HOCD u feel like maybe ur not in love w ur s/o or that ur not attracted to them when you know you are but ur intrusive thoughts try to make u think otherwise. 

HOCD and ROCD both cause havoc in relationships, yes. The best thing you can do is to treat the OCD itself with exposure therapy. You can do this, if not for yourself then for your relationship.

I have had HOCD it’s only getting worse. im starting to feel like I’m not in control of my mind. Sometimes Ill convince myself I want to be w a girl when really I just think they’re pretty! I feel like I have to accept being gay to get rid of these awful thoughts&everytime I try to I get so mad bc I know that isn’t me. I’ve always wanted to be with a man, never a woman. I’m scared of my own mind. 

Oh dear one, you are not alone. I promise there is help and hope and light. In exposure therapy (ERP), your brain gets rewired in a healthy way, a way that allows room for uncertainty. That might sound terrible, but it is one of the greatest gifts ever: to be able to let thoughts come and go without having to be sure about everything. It’s a new life. It’s freedom. Please read more at http://www.jackieleasommers.com/OCD.

Thanks for all the questions, folks! If you have questions for me about anything (but especially faith, creativity, and mental illness), add yours here.

As I said, I’m an artist not an expert. I will leave you with these, some of my favorite questions in one of my favorite poems, “Questions about Angels.” Click here to hear Billy Collins himself read it. (P.S. It starts with questions, ends with a dancer.

nOCD, an ERP App/Hero

If you’ve spent time around this blog, you know that I wrestled my life and freedom back from the clutches of obsessive-compulsive disorder in 2008. (Read more about my story at jackieleasommers.com/OCD).

From the onset of my symptoms to my diagnosis: 15 years.
From my diagnosis to appropriate treatment (ERP): 5 years.
From treatment to freedom: 12 weeks. (<–Read that again please.)

Exposure and response prevention (ERP) therapy is powerful, friends.

On average, it takes OCD sufferers 14-17 years to get the correct diagnosis and treatment. This is not okay. 

So many OCD sufferers cannot afford treatment. In some countries, ERP therapy is simply not available. In fact, in some countries, the stigma associated with having a brain disorder like OCD is so strong that sufferers would not dare admit to needing help. This is not okay. 

The creators of the nOCD app felt the same way. One contacted me and said, “Our goal is to reduce the time it takes for people with OCD to get effective treatment (from decades to minutes).” He said, “One thing advocacy has shown me is the need for OCD treatment in other countries! There are people in Bangladesh, India, etc that have literally nobody! My team is actually building a 24/7 support community within nOCD to combat this issue.”

The app is FREE and, I-hope-I-hope-I-hope, going to change the world.

Some of the very best things about this app:

nocd.jpg

Right now it’s available for iPhones, but this fall, the Android version will come out. Please check it out here. And be sure to tell me what you think!

xoxo Jackie

Guest Post: My ERP Experience

With her permission, I am sharing a comment from ashley1234567890, one I found particularly insightful.

And here she is …

I went through ERP and had fantastic results. It was a huge blessing for me, and I thank God that he gave me the courage to try it.

I am no expert, but i did have a really bad case of OCD, which got a lot better after ERP, so here are my recomendations, that in hindsight, were key to my success.

NOTE: my ocd did not get worse with ERP (it got so much better) even though the treatment was very intense!

If you qualify for ERP therapy, and you are considering it, then do not let fear keep you from going. The only caveat is to make sure you find an expert who treats ERP because it is specialized therapy. For example, my therapist was willing to meet me outside of their office for exposures, because my ocd spiked at a particular place. I also recommend finding someone who has experience with whatever ocd you are facing. For example, my therapist had experience with germ ocd, harm ocd, religious ocd, sexual oreintation ocd, etc… so i knew they were highly qualified. they should also give you exercises so you can do your own exposures.

As for ERP, It seems counterintuitive at first, since the patient will go through exercises and narrations that are asking them to run towards their fears (instead of running away from them), which in turn causes anxiety to spike, and while super anxious the patient will be asked to temporaily stay in that state while resisting compulsions that are normally used to reduce the anxiety. If you face the obsession and not give in to the compulsion, then the cycle breaks, which in turn makes you less anxious. That is where “exposure and response prevention” comes from.

My treatment was gradual at first (small fears first then you move onto bigger ones) also, my initial exposures were designed so that anxiety was moderate so I could handle it, and then over additional sessions, they were changed to more intense ones.

For me, it took me about 12 sessions to complete treatment. I noticed some big gains after the first couple of sessions so i knew it was helping. After treatment i am a new person. I still have the ocd, triggers, and the spikes, but it does not cause much distress anymore. Before ERP my distress level was a 10 and it was constant. My life sucked.

So heres an example of what what ERP might look like. let’s say you have germ OCD. You may be asked to touch a door knob and not wash your hands afterwards for 5 minutes. As the sessions go on, and you grow stronger, you may be asked to do the same excercise, then refrain from washing for 15 minutes. Eventually, beloeve it or not, you will be able to do the excercise then not wash at all! Or, one exposure may be a narrative, where you write a short story, and in this story you get a little dirty, or exposed to germs, etc… over the treatments, the story may get more and more disgusting and intense, so you will be in a situation that gets really dirty, and theres no place to wash up etc…

As the sessions and exposures go on, the anxiety for each trigger gets weaker, which in turn makes the spikes less intense. Consequently for me, the ocd got better over time.

Again, the key is to find a qualified expert who has a lot of experience in OCD and ERP, because you will be asked to do things that will make you feel temporarily uncomfortable and the therapist will need to work with you at the right pace so that you are not overwhelmed. They should be willing to leave their office to do an exposure where you need it. So for example, if you are afraid of heights they should be up for going with you to a balcony etc… to face that fear.

Like some of the previous comments, I was anxious before starting too, and I was scared that it would make my condition worse. But i was wrong! that’s just the ocd trying to keep you in the bad place.

In fact thats how i first came across this blog. Jackie had wrote some content on ERP and it gave me the confidence to try it. Thank you jackie you are such a blessing from the Lord! Hopefully this post will do the same for someone else!

Question & Dancer: OCD & Family, Romanticizing Mental Illness, and What to Expect in OCD Remission

question-and-dancerI’m an artist not an expert, one who is learning to embrace questions more than answers.

These are some questions I got last month. Ask yours here.

How do you explain OCD to your family? Especially when you’re not sure whether or not your family has mental illness?

First I’ll say that I think that it’s up to each individual to determine whether or not they’d like to share– and how much. With OCD, many of our obsessions are taboo, which– quite honestly– makes the idea of sharing seem terrifying. I hear from a lot of younger sufferers too, who are under their parents’ roof and parents’ health insurance, which complicates treatment.

I heard from so many teens with HOCD that I wrote this post in 2015 so that they could share it with their parents and not have to say a word themselves. I’d be happy to write a general OCD one, if you guys think that would help.

As for me? I gave my mother a copy of Kissing Doorknobs by Terry Spencer Hesser– a copy in which I had underlined all the quotes that resonated with me. At that time, it was the best I could do to explain what I was experiencing. These days, I’m more articulate– but I have lived for longer with my diagnosis, been through treatment, and come out shame-free. I know many aren’t there yet.

Is HOCD a physical illness as well as mental?

Briefly, yes.

Hi, does OCD make you want to confess something even when it’s not true?

I have Pure-O, and confession was one of my biggest compulsions. I would confess to bad thoughts, things I thought might be sinful, anything that my OCD took and throttled me with. And yes, sometimes those were things that I didn’t even need to apologize for. But the anxiety would grow so intense that the only “release” was to confess. I got a lot of weird looks in those days.

Here is the thing: if you (like most people with OCD) can understand when you’re thinking or doing something off (you know it is not quite logical, even if you have created a weird sort of logic for it; or if you know it is something that the general public would not care about or confess), then don’t. This is fighting back against your OCD with the tools of exposure therapy. It will, for a time, feel like the anxiety will go so high that things will never be okay again, but that is the lie of OCD. The anxiety will diminish, and you will be okay. Stay in the cold pool long enough to adjust, and eventually the water will not feel cold anymore. But this can only happen by staying in the pool.

I read your post about OCD and creativity. Could those two ideas be linked to intelligence?

Great question. You’re likely referring either to this post or to this one.

Research has shown that high IQ is correlated with anxiety. Anecdotally, many people with OCD are also very creative (did you know popular YA authors John Green and Maggie Stiefvater both have OCD, along with unpopular YA author Jackie Lea Sommers? ;-))

HOWEVER, OCD is not something to be embraced. I know that in the past, I thought if I didn’t have OCD, I wouldn’t be as funny or quirky or creative. John Green, in a talk I once heard, shared that he also had that false understanding for a time– that his OCD was what fueled his creativity. He’s written about that here. Please read it; it’s very good.

The point is that– whether or not there is a link between OCD (bad, awful thing) and creativity and/or intelligence (good, excellent things)– we need to be careful not to romanticize mental illness or to give props to it. If you are smart or intelligent, kudos go to you, not to the disorder.

I treated my OCD in 2008, and now I am more creative, more me, more productive, more intelligent. So it wasn’t OCD that made me what I am at all. In fact, OCD was holding me back. Don’t romanticize mental illness. Treat it.

Hi…this is a weird question, but I’m worried ERP won’t work on one of my particular obsessions. I made some account on a website and now feel the compulsive urge to delete it because maybe I don’t like the username and it’s “contaminated.” But at the same time, I don’t want to delete it because I’ve invested some time into building it up (it’s a writing website, more articles you write higher rating you get)…but I’m worried if I don’t delete it, this anxious feeling will never go away!

That is a lie: the anxious feeling will go away … and possibly sooner than you’d think. ERP works great for situations such as these. You can do this.

With OCD, can it be possible that you don’t know the difference between what thoughts are even yours anymore or the OCD’s?

That is possible– and sometimes happens to me when I’m in sort of a manic state.

Most often, I can tell the difference. I know that one thing feels a bit ridiculous. And this is a hallmark of OCD (except in very young children): that people with OCD usually have some understanding that what they are obsessing about is not something that most people would worry over.

My ERP therapist taught me to look at these things through the lens of the “community standard.” That is, how would most people react in this situation? Because if my reaction is way off from that, then for ERP, I need to go with the community standard instead, even if it’s scary or hard.

When I am in the throes of an obsession, I sometimes can’t tell what the community standard is. I have literally sat down my friends or coworkers, explained the situation, asked for the standard response, and then BELIEVED IT and DONE IT, no matter how difficult. Because this too is part of exposure therapy, the very best treatment for OCD. (If you’re not familiar, you can read up on ERP at http://www.jackieleasommers.com/OCD.)

I have thoughts about death and how we will all disappear after this…and if life is meaningless or not I’m diagnosed with OCD and i had HOCD , harm ocd , etc… Is that a new theme or is that something new ?

This sounds like an existential theme of your diagnosed OCD. This was a huge part of my own experience, and what my first novel is about! See http://www.jackieleasommers.com/truest.

With your OCD, do you ever feel that you’re wearing a mask everyday?

Not anymore– but before, YES YES YES.

I used to talk about this with high school students in the midwest, and I would read this poem aloud.

I’ve been struggling with ‘Pure-O OCD’ for a while and because my compulsions are almost exclusively mental, I’m afraid I’ve been automatically engaging the negative sensations associated with the thoughts I get. Although I know the thoughts are very irrational, I can’t seem to be mindful enough to sit with the negative emotions and not have them affect my mood. Little by little, over the years the thoughts are triggered by almost any activity I’m involved in and I feel like I’m running around in a circle and not making much progress. Activities and events that are supposed to be enjoyable are viewed by my brain as hurdles and obstacles to overcome. As far as CBT goes, I tried following the 4-step method by Dr. Schwarz which help a little to put me in the right mind set but I haven’t had much sustainable success. Being a Christian, I feel like I’m wasting time giving in to the negative pull the thoughts I get have on my behavior, which in turn, rob me of valuable time spent acting as a true follower of Christ. Based on your experience with Pure O, what would you say is the best CBT method to effectively manage it? Is it ERP or mindfulness, or a combination of both? Thank you

While I know a lot of OCD sufferers who practice mindfulness, the #1 treatment recommended by all OCD experts is ERP (exposure and response prevention) therapy. Your story sounds so, so, so, so similar to my own. I went around in circles for 20 years before doing ERP. After just 12 weeks of ERP, I have had tremendous freedom, peace, joy, and spiritual growth for the last 9 years. You can do this!

I hope you’ll take the time to read my post about Post-ERP Spiritual Growth. It really summarizes all the healthy changes that came about in my life and faith after treatment. Blessings!

I feel like I might have OCD..maybe ROCD for a while, but that cleared up so I’m unsure about that. I’m 13 years old (a girl) and I think I have been dealing with hocd since the end of 6th grade (11 years old). I have been with my boyfriend for 7, almost 8 months. This hocd is getting better…I think. I always feel like there is another person in my mind telling me that I’m gay. I sometimes don’t feel as disgusted as I usually do when that happens, and that scares me even more. I wish I could tell my boyfriend, but I feel like he would think I actually am gay. Also, Recently i have the tendency to look at girls’ butts and boobs! Is this normal? Is it not hocd? It bugs me so much, and I feel so disgusted and guilty. I’ve never wanted to kiss, date, or do anything sexual with a girl. Whenever I see a girl, I think “she’s pretty.” And then I start questioning myself. And I think “is she attractive? Do u want to do stuff with her?” And soon it calms down. But it comes back as quickly as it goes. It’s so scary. I want it to go away for good. I told my dad two years ago when it wasn’t as bad. So he doesn’t know the full story. My mom knows and I told her recently. She doesn’t understand how horrible it is. I don’t want to tel her everything I question and feel because I don’t want her thinking that I am gay. Even though she would be fine with it. But I’m not. I want that therapy. I’m on medication for anxiety, but it’s not helping too much. This hocd causes me anxiety and depression. I went through a really bad period of this about a month ago, for two weeks. I wanted to die, and I’d use my nails to scratch myself. I don’t know what to do. I wish I could tell my parents, friends and boyfriend, but I don’t know what they would think. Please help me. I want an OCD free life.

Oh sweetheart, please read my answer to the first question above. I think it will help you. Consider sharing this post with your parents. ERP works; it truly does. You are thirteen and have so many exciting things ahead of you– your whole life! The earlier you treat OCD, the sooner you can get to enjoying things again. If you really feel like you can’t tell your parents about your OCD, and if you’re driven, you can treat it yourself at home, using one of the books listed in this post. Don’t give up, honey. Gosh, I can remember being in the same hell that you’ve been living in when I was your age. It feels so horrible and hopeless and exhausting. But you won’t be there forever. ERP will help. Hang in there.

Want to know more about consequences of years of compulsive behavior and thinking haunting life…even after ocd is gone

This is a really good question, one I’ve not been asked much before.

First things first, OCD is very rarely ever gone. Except in the case of a miracle, OCD is a chronic disorder that a sufferer has until death. That said, ERP therapy can subdue it to the point where it feels gone, which is just about as good as the real thing, right?

I’ve written a pretty detailed post about remission and relapses here. While I think it will answer an aspect of your question, the spirit of your question seems to be: what lingers?

For me, not much. (Thank God!) OCD has little to do with my daily life anymore. That said, there are seasons (and in fact, I’m in one right now) when it is like opening a rarely used door in my life only to find that OCD has actually been chilling out there for years, just waiting for you to reenter that old room. (For me, it’s dating. I haven’t dated in a while, and so I haven’t had to deal with the whole ROCD thing. It’s okay. I’m battling it, and I have all the confidence in the world that I can subdue it because I’ve done it successfully now for nine years.) For me, the 12 weeks of ERP therapy I underwent had a far longer-lasting influence on my thought patterns than the 20 years of obsessions and compulsions that came before. It is that powerful. Learn more about ERP at http://www.jackieleasommers.com/OCD.

Thanks for all the questions, folks! If you have questions for me about anything (but especially faith, creativity, and mental illness), add yours here.

As I said, I’m an artist not an expert. I will leave you with these, some of my favorite questions in one of my favorite poems, “Questions about Angels.” Click here to hear Billy Collins himself read it. (P.S. It starts with questions, ends with a dancer.)