Question & Dancer: August 2017

question-and-dancerI’m an artist not an expert, one who is learning to embrace questions more than answers.

These are some questions I got last month. Ask yours here.

Is it normal for you to feel as though you’re losing your attraction to the sex you’ve always desired bc of HOCD? I know I want to be with a man and only a man but focusing on checking and reassuring myself has started to make me lose my passion for the opposite sex:( will my attraction ever come back (I hope so)? And is it also normal to lose your sex drive bc of HOCD? 

Friend, you are describing HOCD. All this is typical for HOCD and can be treated with exposure therapy. The joy and passion that you so desperately want can be yours again if you work hard through ERP.

I’ve done ERP and reduced my HOCD symptoms drastically. Yet, I still have some worries about my sexuality. I’m no longer sure if this is normal lingering of OCD doubts or a real concern- my compulsions are less but i still do remunerate and  try to imagine my self in a same-sex relationship to cope. I don’t know if this inability to find clarity means that there a real concern as well as the OCD. 

Hi dear, it sounds like you are on the right track! I say keep up the hard work of doing exposure therapy– and don’t forget the “response prevention” part. That means keeping yourself (as best you can) from all the ruminating and checking. I am not a therapist, but I know that for my own ERP, I practiced approximately 40 minutes a day for 10 weeks before everything “clicked” for me.

Hi Jackie, I have hocd. Unfortunately there are no OCD specialists near me or anyone certified to do ERP training. The therapist I see now is only a trauma specialist but it was the best I could do. I know I can always do ERP on my own but I’m too scared and it feels too overwhelming. What should I do?

I can completely understand feeling scared and overwhelmed, my dear one. How would it feel if you were to just begin by exploring ERP, by learning about it but not actually doing it yet? I would recommending getting a book about ERP and reading it strictly for the sake of education. You will still be moving yourself forward, and perhaps it will take some of the fear and mystery out of ERP for you.

I recommend a few books to choose from here.

Hi, recently I’ve been seeing a lot of hocd related questions on your blog. Does it surprise you how many people suffer from hocd? Most people don’t even know what it is, or even believe it to be a real issue. 

You know, at first it surprised me, but after a couple years of hearing from primarily HOCD sufferers, I am no longer shocked. I suspect that people might end up on my blog because HOCD is not talked about as frequently elsewhere on the internet. I don’t know if that is true, but I do know that if you google HOCD, my blog appears twice on the first page. This month I received 16 questions via my blog, and 15 were about HOCD. I promise you: it is very, very real.

my OCD is currently under control but i wonder how it is i’ll ever learn to live with this mind of mine? the endless doubt- never knowing whether something is just OCD or Real?

Hello dear one, wow, I can remember feeling that same way, and for SO LONG too. Life is no longer like that for me, and I trust that you can have the same experience. Part of it for me was having doubt lose its power over me (this was via ERP therapy), and part of it is starting to recognize which of my thoughts fit the “community standard” and which did not.

I talk a little about “community standard” here.

Jackie, I feel so lost and scared. I’m a female with hocd and there are sometimes when I get terrifying thoughts like, I should just try being with a female and not care because I might like it, and then I see a female I know in my head. My worries never end. Besides doing ERP, what other advice can you give me?

Well, of course ERP is always my #1 suggestion. Other things that might help can include medication like an SSRI. Many people with OCD have found relief via mindfulness, but that is not something I have explored much on my blog, since I always recommend ERP. If you are not ready for exposure therapy, consider at least taking the time to read a book about it. Education is a great weapon against OCD.

Jackie, the phrase “don’t knock it till you try it” is really scaring me because I have hocd and this is making me feel like I should try a same sex relationship!!
😦

I know what it’s like to have a phrase seemingly take the rug out from under my feet. But try not to assign so much meaning to a phrase. There are certain things that phrase makes sense with– like trying new vegetables or taking an art class. There are plenty of things it doesn’t make sense with– like trying cocaine or quitting your job to start a crocodile petting zoo. It’s just hard for someone with OCD to sort through it all. The best suggestion I have is exposure therapy. Lots of details here.

Hi Jackie, I have had hocd for a while now. I was texting a friend from church (we are both females) and suddenly I got a thought that, I keep checking my phone because I want her to text me back. I like the attention she’s giving me etc. it’s got me all worried now that maybe I’m crushing on her? Or this is attraction?

Hi dear, this is so similar to many stories I have heard about how HOCD suddenly flared up for them … thinking a friend looked pretty that day, wanting to hear from someone, etc. We assign too much meaning to it. Theoretically, I’m sure you know that most people love attention from their friends, love to hear from them, especially if the conversation is an exciting one. But most do not suddenly worry that means they like that friend romantically. That is where someone with OCD shows how differently their brain is wired. You can rewire it through ERP.

Okay I am 100% sure I’m straight but this is where it gets weird. For some reason nothing was turning me on so instantly my mind thought I was gay. Dumb, right? I thought it’d eventually go away but it got worse. When I’m not thinking about it I can watch normal videos fine but when I watch a video of a male and it pops up I think I’m about to get turned on but mind you, I’m completely soft.

I know this can feel so scary, as if you’ve lost all attraction, but that is commonly reported by people with HOCD. The only question you (technically) asked is, “Dumb, right?” To which I would say, “No. Not dumb. Just HOCD.”

Hi Jackie, I have hocd and it’s terrible. Every time I hear or watch something that just has a normal positive message of, “be your true self, never hide who you are and love yourself ” I automatically think that I’m gay and should come out and not be afraid. Is this just my OCD?

It sure sounds like it. Many people with OCD twist well-intentioned words, giving them too much meaning. The best thing that you can do for yourself is pursue exposure therapy. Read more at http://www.jackieleasommers.com/OCD.

I’m a female with hocd. Why does it FEEL like I’m gay when I know I don’t want to be with girls, when I know I don’t want to be in a relationship with them? Often times my brain feels like it tries to convince me to even like a pretty girl I know! Please help I’m so confused 

It feels that way because of OCD. In non-OCD minds, there is a gate that opens and closes easily– thoughts can come and go as they please, and with fairly little stress. But in an OCD mind, a thought enters and the gate locks shut, which means that that thought just goes around and around and around and around. It is hard to find relief. With exposure therapy (ERP), that gate begins working properly again.

I’m worried. I have hocd and sometimes when I do get my attraction to guys back I’m a female btw, I now worry I’m bi??? Because I’m still thinking about girls and being afraid to look at pretty ones and worrying if I might like one. So I’m all confused that now I’m bi since I’m thinking about both??

I know that this probably sounds like the opposite of what you want, but the truest relief and freedom comes from not having to be certain about these things. I detail the benefits of that here. Please, please read it. I think it might help to make ERP make more sense.

Jackie I have hocd and I’m scared because I keep getting groinal responses every time I look at girls. It feels so automatic like I can always expect for it to come and I’m so aware of it. I have read that a lot of other people experience this too but I’m still pretty worried. 

It feels like your body is betraying you, doesn’t it? You’re right– that’s a very common experience for those with ERP. Start by not assigning it too much meaning, and please read these interviews with Hannah, who formerly struggled with HOCD. I think they will help.

Interview with a Former HOCD Sufferer
Another Interview with a Former HOCD Sufferer
A Third Interview with a Former HOCD Sufferer
A Fourth Interview with a Former HOCD Sufferer
Q&A with Former HOCD Sufferer

Hi I’m 15 years old, I’ve never thought I was gay/bisexual before. Always like boys (I’m a girl by the way). Never had a girl crush. But now everytime I see a girl I think Could I kiss her, have sex with her or could i see a future ( like dating or marriage) with her? Whenever I think about it I frown and get upset. I have OCD/Anxiety disorder, which I was diagnosed with.

Hi dear, a very common experience amongst those with HOCD. I recommend ERP. This might help: https://jackieleasommers.com/2015/07/29/hocd-a-letter-to-loved-ones.

Hi I’m 14 and I found out I have OCD I’ve told my parents and I had a really bad panic attack bc of thinking I will hurt my family then months go by and my sister called me a lesbian to impress her crush. Then I have theses thoughts of being bisexual but I’m not bc I like guys and not girls I freak out bc if I see a girl who is pretty my thoughts are all like your bisexual and I know I’m not 

Hello friend, I’m so sorry that your sister did that. I’m guessing she didn’t know what kind of agony it would cause for you. Please read this post and consider sharing it with your family if you think it might help: https://jackieleasommers.com/2015/07/29/hocd-a-letter-to-loved-ones.

Is it part if HOCD to experience an errection while watching gay porn? Like first there is an extreme tension in the chest followed by an errection. 

Yes, this can definitely happen! Exposure therapy is the answer!

Jackie, I have hocd and I’m worried about the whole “sexuality is fluid” thing. I know it’s different for everyone, but the it’s scaring me that I often see for example, celebs who have been with the opposite sex, just start relationships with the same ones and say they like it? So now I’m wondering, well what if I do the same, and I end up liking it too?? 

Hi friend, I hope this post will help.

Hey. So I know that many of us look up to celebs and think they’re very pretty or love their movies and songs etc. I have hocd, but I’ve always really liked Jennifer Lawrence. I was watching an interview of hers and suddenly it made me feel like I am gay for her and wouldn’t mind being in a same sex relationship with someone like her. Now I’m very confused/worried. Help??

Is it causing you anxiety? If so, it may very well be HOCD. Check out these posts about it and see if you can relate!

HOCD
A Closer Look at HOCD
Interview with a Former HOCD Sufferer
A Big Ol’ HOCD Post
Another Interview with a Former HOCD Sufferer
A Third Interview with a Former HOCD Sufferer
A Fourth Interview with a Former HOCD Sufferer
Q&A with Former HOCD Sufferer
HOCD Story: Meet Mae, Part One
HOCD Story: Meet Mae, Part Two

Hi Jackie, I’m a teen with hocd. Recently I decided I’m not gonna be scared of the thoughts and to stop avoiding stuff that triggers my anxiety. However, as I was doing exposure today by watching a coming out video which explained how the girl didn’t enjoy sleeping with men, I suddenly got worried wondering. well what if I’m the same? I’ve never had a bf. How do I know I’ll even like it??? 

I know that people with HOCD can see or hear one thing and then– BAM!– their minds are off to the races, so to speak. You are doing the right thing by not avoiding stuff that triggers your anxiety; next, you need to stop doing things that alleviate that anxiety (the compulsions, whether that means seeking reassurance, checking your body for reactions, etc.). This is how exposure therapy works. Read more at http://www.jackieleasommers.com/OCD.

I consider myself a straight man suffering from HOCD. i am completely cured, but when I think of having romantic attraction to same sex, i feel grossed out but at the same time I feel a sensation in my groinal area. It has occurred atleast 3 times now. I have not experienced anything similar for girls being a boy. So, is this a sign of being gay or is this just a groinal response?

Does it cause intense anxiety for you? That sounds like HOCD. You say you’re completely cured, but OCD is not cured typically (though I have heard of a couple miraculous recoveries). Usually it is just managed and maintained.

Hi! 4 years ago my obsession about my sexual orientation started. A couple of months ago I heard about HOCD & felt completely identified. I was wondering whether is possible to have this disorder without being previously diagnosed with OCD. I’ve been through my past trying to find OCD signs & some things made me think that they were ocd’s behaviors. I also went through anorexia. What do u think?

Remission
Healed Not Cured: Remission & Relapse
OCD in Remission
Life after Treatment
When to expect a relapse
Am I Bitter?
Lies I Sometimes Still Believe
Managing OCD-in-Remission

Im a female with hocd but I’m not trying to ask for reassurance, but more so recognize the way OCD likes to behave. Whenever I read a book or watch a video in the perspective a guy, and he’ll be talking about a girl, just ordinary stuff, it makes me feel as though I’m in his situation and I can see myself with the girl, and it makes me anxious. Is this my hocd? 

Sounds like it, yes. I’m a young adult author, and right now, half of the book I’m writing is from the male perspective. It can definitely be interesting to write about “oh she’s so gorgeous,” etc. 🙂 If the anxiety becomes intense, please don’t hesitate to pursue exposure therapy, which you can learn about at http://www.jackieleasommers.com/OCD.

Do you know many people who did self-oriented ERP and succeeded? Thank you very much Jackie :D.

The best example I know is Shannon Shy, who is now president of the board of directors for the International OCD Foundation. Follow him here. He is endlessly encouraging.

Thanks for all the questions, folks! If you have questions for me about anything (but especially faith, creativity, and mental illness), add yours here.

As I said, I’m an artist not an expert. I will leave you with these, some of my favorite questions in one of my favorite poems, “Questions about Angels.” Click here to hear Billy Collins himself read it. (P.S. It starts with questions, ends with a dancer.

Question & Dancer: This & That

question-and-dancerI’m an artist not an expert, one who is learning to embrace questions more than answers.

These are some questions I got last month. Ask yours here.

I have hocd, and I’m a 17 year old girl. I was wondering, is it weird if I still get crushes on guys during this? sometimes I doubt if I even do like them and the feelings feel fake and forced. Other times, no. Since my hocd started I haven’t been able to really like a guy. If I do, my crush goes away quickly. This makes me worried and makes me think that I can never truly like a guy ever again. 

Dear one, not weird at all. HOCD will do whatever it can to confuse you. Please be sure to read about HOCD and ERP at http://www.jackieleasommers.com/OCD.

Hi Jackie! My question concerns telling my significant other about my HOCD. I have already told him a bit about my same sex attraction fears (around 1.5 yrs ago) but at the time, I didn’t realize it was HOCD. Now that I know HOCD is the culprit I am wondering if you have any advice as to how to explain… I am afraid he won’t believe its HOCD and indefinitely doubt my affection for him. 

This is definitely up to you. I think this is the one of the hugest fears for someone with OCD. I did write a letter you can give to your SO to try to explain things better. It’s available here: https://jackieleasommers.com/2015/07/29/hocd-a-letter-to-loved-ones.

I just want to say, a massive thank you. I´ve been on hell for the past six months, or maybe more. i even thought about killing myself. and i trully did search for so many blogs, but they are mostly about guys so i didnt feel like i found answers. But this is the first site that is from a girl. Made me feel like there is hope. I hope eventually i get to tell you how truly straight i feel i am.

Thank you for your sweet message. I promise you there is hope, and I look forward to hearing from you after you’ve undergone treatment. In the future, if you are feeling suicidal, don’t hesitate to call the National Suicide Prevention Lifeline at 1-800-273-8255 or chat with them here.

I feel like I have accidently made vows to give up things that i enjoy and i didnt want to give them up. I have OCD, but would the vows be binding? For example: “if i step on a crack, i have to stop doing this activity” but sometimes i feel like i mentally agree to it for a split second after the thought comes in my head. Like its 90% intrusive, but 10% my intentional.

I experienced this intrusive vow-making too, back when I was in high school, and it was a dark, dark time of my life. I don’t think that you are bound to these because it is OCD making the vow, not you. In any case, it is better not to focus on “solving” the vow-making but on treating OCD with exposure therapy. Best wishes!

Another vow question. I just feel so stressed because I really feel like I have to give up my two favorite activities according to the vows. After that I am left with no form of enjoyment. Even when I try ERP,  i feel like i am sinning by breaking promises to God and I dont even enjoy doing the activities anymore because of the anxiety.I feel like there is no hope. What do I do?

I also worried that my ERP might be sinful. I hope this post will help you: https://jackieleasommers.com/2014/08/03/ocd-scrupulosity-is-erp-sinful.

Hi Jackie, I have hocd. What worries me a lot is that I don’t have any attraction to guys (I’m a female). I want to like someone but I feel empty and don’t feel any attraction even though they might be perfect for me. What do you think?

Hello lovely, this is perfectly normal for someone with HOCD, and you can defeat it with exposure (ERP) therapy, which you can read about at http://www.jackieleasommers.com/OCD. There are resources there too in case you can’t afford therapy but would like to do it on your own.

Jackie, I’m a female with hocd. I know it is common for people to lose attraction to the opposite sex during this, but will I ever like another guy again?? It honestly feels like I won’t. 

Oh dear one, yes, I truly believe that you will. ERP therapy can help. You are not alone by any means, and I hope that as you read through the questions in this post, you will see that.

Hello! I believe that I have been suffering from HOCD for the past 8 years (this started when I was only 12, unfortunately). I’ve never been diagnosed or treated. However, my question is: is it normal/common for OCD compulsions to change over time?? 

Yes indeed! As obsessions and compulsions shift, we call this “theme hopping,” and you can read about it here: https://jackieleasommers.com/2014/01/19/theme-hopping.

I’ve been told I have HOCD. I have worried about this  on and off. My first time I was 12 & I remember crying to my parents & I think I said something along the lines “I’m staying straight & then I don’t have to be made fun of” now that scares me because that means I’m afraid of society & that’s what gay people go through. Now I feel like I want to be straight just for society reasons. Please help

It is very common for people with OCD to think back on old memories (even ones that have never bothered them before) and suddenly become fixated on them. Sounds like your experience is very consistent with OCD/HOCD. Have you explored ERP therapy? You can read about it at http://www.jackieleasommers.com/OCD!

Hi, I’m a 16 year old girl who has been suffering with HOCD for roughly 8 months now. I have come to the conclusion that the only way to overcome this is through therapy, but I’m scared to ask for help and recieve it. How do I ask my parents? I feel like if I sit them down to ask them for help, they will assume that I’m coming out or they’ll try to get too much information out of me. Help!

I hope that this will help, my dear: https://jackieleasommers.com/2015/07/29/hocd-a-letter-to-loved-ones.

How can I begin ERP for my HOCD by myself?

Hi friend, you can read about self-directed ERP therapy here: https://jackieleasommers.com/2014/10/05/self-directed-erp-therapy.

Should I open up to family & my boyfriend about my HOCD? It terrifies me to think about telling them about it. Can I deal with it alone?

You can choose to do whatever makes YOU feel most comfortable. Please don’t overthink this (I know that’s a silly think to say to someone with OCD, but I want to give you permission to do what you choose). The links in the answers to the two questions just above yours will be useful (I hope!) in choosing whether it is a better option for you to tell your family and boyfriend or whether to go after ERP therapy alone. Best wishes.

Jackie, I’m scared. I had a dream last night in which I married a female I know. (I’m a female with hocd). It was very detailed, including me being with her in bed. This is the second time this female has appeared in my dreams, I have no idea why. I was unhappy in my dream but I’m lost and terrified that this is a prediction to my future???

I know why: because you have HOCD and have been obsessing about this. It makes sense that it would carry over into your dreams. In this interview with a former HOCD sufferer, she talks about having the same experience: https://jackieleasommers.com/2013/10/20/interview-with-a-former-hocd-sufferer. It is not a prediction of your future, dear. It is natural for our waking concerns to sometimes leak into our dreams.

Can HOCD turn into straight OCD, i´ve spent many times on internet which made it worse. and since truly gay ppl have straight ocd, its now like i kinda have that. To be honest i am about to take sleep pills. Hope there is light

There is light. I promise. Firstly, if you are feeling suicidal, don’t hesitate to call the National Suicide Prevention Lifeline at 1-800-273-8255 or chat with them here. OCD can twist and morph through the weeks and years, so that is not unusual. It will do what it can to make you miserable until you learn to be comfortable with uncertainty. The best method for doing so is the evidence-based approach of ERP (exposure and response prevention) therapy, which you can learn about at http://www.jackieleasommers.com/OCD.

Where’s the best place to get diagnosed in the Twin Cities? I’m positive I have HOCD but I’ve never been diagnosed with any form of OCD and I’m worried I’m in denial.

Hi friend, here are a couple resources for you:
https://jackieleasommers.com/twin-cities-ocd
https://jackieleasommers.com/2017/07/24/qa-with-an-erp-therapist

If I’m struggling with hocd, do you think I should stay away from psych forums? I’m already getting help for therapy and medicine though. But do you think it’s my way of just reassuring myself? 

Yes, I really do think it is unhealthy for you to be on the psych forums. Part of your ERP should be avoiding compulsions, and I think this way of seeking reassurance is one. I’m so excited for you that you’re doing therapy and meds though! Are you doing ERP and not talk therapy, I hope?

Please read the following: https://jackieleasommers.com/2014/11/16/talk-therapy-vs-erp-therapy.

I have Hocd been going for 4 months.i always got aroused from girl and lez porn,but I did not wanted to do anything with girls.I once thought about kissing a girl and these things are fuelling my hocd.Yesterday I was horny.I decided to watch lesbian porn to check and I got really aroused i tried to think about having sex with a girl and I felt real arousal like i feel with men.Is my hocd or Im bi?

Does it feel intrusive and unwanted? This is part of how we define OCD.

What do you think of group therapy like DBT for OCD? Specifically hocd

I’ll admit that I’m not very familiar with DBT, though I have heard great things about it, especially in regard to treating things like borderline personality disorder. The evidence-based #1 treatment for OCD is exposure and response prevention (ERP) therapy, a type of cognitive-behavioral therapy (CBT).

Have you read, “All the light we cannot see” by Anthony Doerr? “Everything Everything” by Nicola yoon? And “Unbroken” by Laura Hillenbrand? Those are very good reads. Also, what’s your most favorite book of all time? 

I have read the first two, and I own the third book, but I haven’t had a moment to read it yet! My most favorite book of all time? Man, that’s difficult! I am going to go with Saving Francesca and its companion The Piper’s Son by Melina Marchetta. But everything Marchetta writes is magical. I also love The Chronicles of Narnia by C.S. Lewis, The Book Thief by Markus Zusak, The Scorpio Races by Maggie Stiefvater, The Last Unicorn by Peter S. Beagle, Peace Like a River by Leif Enger. (Sorry, it’s just so hard for me to only say one!!)

https://jackieleasommers.com/2014/08/04/read-these-10-novels-and-we-can-be-friends

Jackie I’m scared. I find myself constantly fearful because of my OCD. I have hocd, and I’m always terrified of the “what if..” although I have never questioned my sexuality, I feel as though nothing helps convince me I’m not gay. Some days I’m just depressed. My mind also wanders a lot. I’m not ready for ERP, but what should I do?

If you are not ready for ERP, the next best thing you can do is start to learn more about OCD and ERP. Education matters. It’s an incredible way to fight back. Track down some books and learn. You begin to steal back power this way.

I’m a female junior in high school, and I sometimes feel hopeless if I will ever get a guy. Every where I look people are in relationships. I’ve never had a boyfriend or even a first kiss. I know god always has a plan, but how can I trust him and know I won’t be alone forever?

Hi honey. I’m 35 and single. I completely get it, I promise. In fact, just this last week, I found myself asking my friends this same question, “will I be alone forever?” I guess that is where trust comes into play. We just don’t know, do we? BUT I do believe that when we love and honor God and follow him, he is the one who gives us our desires– in two ways. He gives us the actual desire– and then fulfills it too. I am being inarticulate. Let me try again. I think that God has given me the desire to be in love. I trust that he will also fulfill that God-given desire with a partner.

Is it normal for HOCD to play a part into ur relationship and make u question ur feelings for a person when u know in ur heart that you love/are attracted to them? Where when ur having guilt&questioning yourself about ur sexuality bc of HOCD u feel like maybe ur not in love w ur s/o or that ur not attracted to them when you know you are but ur intrusive thoughts try to make u think otherwise. 

HOCD and ROCD both cause havoc in relationships, yes. The best thing you can do is to treat the OCD itself with exposure therapy. You can do this, if not for yourself then for your relationship.

I have had HOCD it’s only getting worse. im starting to feel like I’m not in control of my mind. Sometimes Ill convince myself I want to be w a girl when really I just think they’re pretty! I feel like I have to accept being gay to get rid of these awful thoughts&everytime I try to I get so mad bc I know that isn’t me. I’ve always wanted to be with a man, never a woman. I’m scared of my own mind. 

Oh dear one, you are not alone. I promise there is help and hope and light. In exposure therapy (ERP), your brain gets rewired in a healthy way, a way that allows room for uncertainty. That might sound terrible, but it is one of the greatest gifts ever: to be able to let thoughts come and go without having to be sure about everything. It’s a new life. It’s freedom. Please read more at http://www.jackieleasommers.com/OCD.

Thanks for all the questions, folks! If you have questions for me about anything (but especially faith, creativity, and mental illness), add yours here.

As I said, I’m an artist not an expert. I will leave you with these, some of my favorite questions in one of my favorite poems, “Questions about Angels.” Click here to hear Billy Collins himself read it. (P.S. It starts with questions, ends with a dancer.

nOCD, an ERP App/Hero

If you’ve spent time around this blog, you know that I wrestled my life and freedom back from the clutches of obsessive-compulsive disorder in 2008. (Read more about my story at jackieleasommers.com/OCD).

From the onset of my symptoms to my diagnosis: 15 years.
From my diagnosis to appropriate treatment (ERP): 5 years.
From treatment to freedom: 12 weeks. (<–Read that again please.)

Exposure and response prevention (ERP) therapy is powerful, friends.

On average, it takes OCD sufferers 14-17 years to get the correct diagnosis and treatment. This is not okay. 

So many OCD sufferers cannot afford treatment. In some countries, ERP therapy is simply not available. In fact, in some countries, the stigma associated with having a brain disorder like OCD is so strong that sufferers would not dare admit to needing help. This is not okay. 

The creators of the nOCD app felt the same way. One contacted me and said, “Our goal is to reduce the time it takes for people with OCD to get effective treatment (from decades to minutes).” He said, “One thing advocacy has shown me is the need for OCD treatment in other countries! There are people in Bangladesh, India, etc that have literally nobody! My team is actually building a 24/7 support community within nOCD to combat this issue.”

The app is FREE and, I-hope-I-hope-I-hope, going to change the world.

Some of the very best things about this app:

nocd.jpg

Right now it’s available for iPhones, but this fall, the Android version will come out. Please check it out here. And be sure to tell me what you think!

xoxo Jackie

Question & Dancer: What is “Normal” with OCD?

question-and-dancerI’m an artist not an expert, one who is learning to embrace questions more than answers.

These are some questions I got last month. Ask yours here.

My question is this.. I have hocd but whatever I do it just seems like I get afraid or concerned when a guy comes around me.. it’s like sometimes I look just to check if im attracted to them.. and it’s annoying because the action is becoming involuntary and it’s scary because people read what you send them .. and people are starting to think that I’m gay! And thats very false! What should I do to combat that?

Exposure and response prevention (ERP) therapy, which I’ve written about extensively on this blog: check out http://www.jackieleasommers.com/OCD, friend. Educate yourself on ERP; then seek out an ERP specialist or track down one of the books I recommend so that you can do ERP on your own. Either way, ERP is the solution.

Please read here about Self-Directed ERP.

i’ve met we a psychologist- but she doest seem to have any experience with HOCD and thus has not really been catching it’s symptoms/mentioned it, she does think i have an anxiety disorder and excessive worry- but not specifically anything on OCD. Note she is relatively inexperienced psychologist, as i’m a student and needed to find someone low cost. Not the psychologist has little experience as i’m a student and need a low cost specialist. She has mentioned CBT and ERP as helping methods though. so, what i wanted to ask is form what i have described do i sound like i have HOCD or an i in denial. I am not trying to seek reassurance but guidance, I don’t have anyone to turn to (from a very backwards society in asia) – should i be looking for an OCD specialist or a general psychologist to help me come to term with who i am?

Hi dear! You need an OCD specialist, specifically an ERP specialist. If you can’t afford to meet with one in person, then definitely track down a book (I list four on my website) that will guide you through doing ERP on your own! And kudos to you for being ultra-aware of seeking reassurance. That is one of the primary compulsions for many who suffer from HOCD– the more you are aware of it and resist it, the better! Click here to read more about the Problem with Reassurance.

Hi Jackie. I was wondering if you have any strategies to just letting the thoughts be thoughts in your head. On the web (when I looking for reassurance yes I know its sooooo bad but I can’t help it), people say to let those intrusive thoughts wonder in your mind, but do I just sit there and think nothing as those thoughts wreak havoc on my emotions? Do I just try to calmly breathe through it when my heart is beating super hard? It’s also so hard to not check for reassurance online! How did you have the strength to not reassure yourself? What did you say or think to yourself to prevent it? (I can’t afford a diagnosis, much less ERP so I’m scared that my HOCD may be actually be in denial, but I do know that I’ve had many obessions and compulsions in the past and when the professor talked about OCD, my first thought was THATS ME but then it’s also never been severe to the point where it has disrupted too much of my life. I would just cry myself to sleep most of the time when I’m obsessing)

When I read questions like this, it takes me back to specific memories– horrible, manic ones where I could not calm down, could not do much of anything except to cry and ask for reassurance. It feels so helpless and hopeless in those moments, but I promise it’s not! First of all, since you can’t afford an ERP therapist, please track down one of the books I recommend on my site so that it can guide you through ERP at home. For me, I had a set amount of time when I was intentionally practicing ERP– for me, it was about 40 minutes, twice a day (total of 80 minutes). In the grand scheme of the day, that’s under an hour and a half of putting myself through these exercises (which sometimes felt like torture). Although I did try to avoid compulsions throughout the day, it was only during these 80 minutes that I was specifically triggering myself (exposure) and resisting compulsions (response prevention). It is hard. Don’t let anyone tell you differently. It’s hard and exhausting and feels masochistic. But for me– and for many others– it worked. And it was worth 80 minutes a day for 12 weeks in order to experience this freedom– I’m coming up on nine years of it.

Hi! I’ve been having what I (hope)think is HOCD for two months now and it’s been an intense hell for me. I’ve always been confident that I’m straight and I’ve even intensely championed for gay rights and everything. I used to read articles about gay people and watch videos about people coming out and be fine. But now I avoid all of those and even romance novels because I’m basically terrified of being aroused for the wrong reasons (like if I read a love scene from a guy’s point of view that means I want to do that to a woman when I dont!??!?!?!?). I’ve been trying to do self-ERP and I’ve read that I’m suppose to embrace those “you are gay” “you are turned on because you actually want to do that to a woman” thoughts and the arousal that comes with it. My question is, if I embrace these thoughts for 10-12 weeks, will I really be healed? I JUST WANT THIS HOCD THING TO END.

I don’t think I or anyone can guarantee that 12 weeks of ERP will work for you. But it is an evidence-based treatment, meaning that the statistics of ERP working are in your favor. One thing I can almost for sure guarantee is that if you don’t do ERP, then your OCD will not go away on its own. I suppose it’s possible; miracles do happen. But, for 99% of us in the OCD community, we had to do the hard work of ERP.

Hi Jackie! I’m doing self-ERP for my HOCD right now and although I feel like it would be best with a therapist, I can’t afford it 😦 (maybe one day!) But anyways, my question is that I know when I’m doing ERP, I’m suppose to accept and AGREE with those thoughts of “Yes, you’re probably a lesbian” (gosh it was hard to even type that), but when I’m not doing ERP, do I still have to agree with my intrusive thoughts or should I just let it float around in my head? I know for my past OCD fears (earthquake, breast cancer, blackholes, intersex, death, etc) I would just stop checking and doing my compulsions and would let the thought float around in my head (never did ERP for those things) and a couple hellish months later it would disappear, but HOCD is taking my anxiety to another level (especially since I’m 20 and never been in a relationship with a guy because I’m soooooo shy so now my HOCD is using it as ammunition). Also when I have those OCD-free moments, can I go back to thinking about my crush and the imaginary life we may have one day (wow I’m so weird, I can’t believe I confessed this on the internet) or is that counter-productive to my ERP?

No, I don’t think that’s counter-productive to your ERP. That’s the goal! But during the moments where you are doing your ERP exercises, then yes– you will want to be all in: experiencing the anxiety completely, resisting the compulsions as completely as you’re able. One thing that you wrote specifically interests me: “I would just stop checking and doing my compulsions and would let the thought float around in my head (never did ERP for those things)” … this sounds like it was ERP, friend. Letting thoughts come and not doing compulsions to alleviate the anxiety … that is what ERP is. You can do this.

Hi Jackie, I’ve recently stumbled upon your blog because I am suffering from hocd. I’ve been dealing with it for around 9 months now. I feel so lost because it’s the worst time to really be dealing with all of this. I am a sophomore in high school and all around me people are questioning their sexualites or coming out etc. I line up with all hocd symptoms and anxiety runs in my family. The intrusive thoughts just popped out of no where one afternoon. All my life I’ve liked boys! I talked to my therapist about ERP but she’s not a specialist and I’m scared to even try it. My psychiatrist prescribed medicine that ended up making me worse. Like you I am an avid Christian, but I have always been doubtful and indecisive with everything. I FEEL SO LOST. I’ve lost my hope and feel like nothing is gonna work. I have a hard time believing this could be a disorder. I feel like I should just accept my intrusive thoughts are real but that just depresses me further. What do you think?

Hi honey. If your intrusive thoughts were real, I don’t think they would be intrusive or cause this intense anxiety. For a short time, just suspend your concern that you are dealing with anything other than OCD and tell yourself, “Yes, it IS OCD, and I will treat it.” There is no harm to doing ERP even if you didn’t actually have OCD. Be kind to yourself: accept your self-diagnosis at least for three months while you do ERP on your own with a book to guide you. “Doubtful,” “indecisive,” “so lost,” “lost my hope and feel like nothing is gonna work” … all of these described ME. For nearly 20 years, this is how I would have categorized myself. And, for whatever it’s worth, my sophomore year of high school was HELL, one of the worst and hardest years of my entire life, as I dealt with all of this while undiagnosed. When I was your age, I still faced another 12 years of clawing my way through this alone before I found and did ERP. Please don’t wait as long as I did.

These three questions all reminded me of each other:

1. I have been diagnosed with OCD (HOCD) and have been doing CBT and ERP. I feel as though I am getting better and the intensity of my obsessions and compulsions has reduced but I have this strange feeling of sowmhing not being right and as whole as it use to be? My attraction and desire for relationships and such seems very reduced. It just doesn’t seem to feel or come authentically – is that normal?

2. Is it normal to feel no attraction or interest in romantic relationships when suffering with HOCD, even when recovering (reduced obsessions and compulsions, but the feeling of not knowing your sexuality and not being attracted to the gender you always have been attracted to?

3. Is it normal to become hypersensitive to the looks of your same sex with the onset of HOCD? even if you’ve known and seen the person before they just appear a lot more attractive now? Is that a symptom of a change in sexuality or another Possible HOCD Symptom?

Yes, my dear ones, all of this is normal for someone with HOCD. Please don’t give up. ERP can help.

Hi Jackie, Did you ever feel like your hocd would never end? As a current hocd sufferer, I feel a lot that it’s never going to be over. I question and doubt even the most logic of facts I’ve been told to use in order to help cope with the intrusive thoughts. Everyday it’s a new “what if” question and it makes me terrified and sad.

Hello sweetie, YES. I felt that way about all of my OCD themes … that things would always be this way and that, to me, was probably the scariest thing about it. We can go through any pain so long as we see an end in sight, don’t you think? But OCD lies to us, makes us believe there is no end in sight, and that robs us of hope and joy. Please read this blog post I wrote back in 2014: THINGS WILL NEVER BE OKAY AGAIN [& other lies I sometimes still believe].

I am 54 years old recently my ocd has become worse for last 6 months since i changed my job and because of ocd anxiety i am not able to work at present. My ocd is mostly god related i have to pray and touch god photos everytime i pass through them and think i have not prayed properly and become anxious. Also there are lots of thoughts coming and going in my head always about touching god photos etc and i am not satisfied with my praying i tried medicines and they made my condition worst,Please help me Sir

Hello friend, have you heard of ERP therapy? My OCD was also based primarily around religious obsessions; I battled this for 20 years before undergoing ERP, and just 12 weeks of ERP therapy snapped my OCD in half. The last nine years have been so peaceful, so free. Here are a few posts that might help:

OCD & Christianity
(or other religious scrupulosity)
OCD, ERP, and Christianity
I’m a Christian and Take Meds!
Unashamed of my OCD
Is the thought from OCD … or God?

God’s Sovereignty, OCD, the Cross, & His Purposes
Is Mental Illness a Spiritual Issue?
Is ERP Sinful?
OCD & Faith (or Lack Thereof): a Double Interview

Hi Jackie, I have been suffering from hocd for a while now. One of my biggest problems besides the intrusive thoughts and fear I can’t shake off is the EXTREME SADNESS I have. I feel like I get sucked into this dark hole where I can’t get rid of feeling hopeless and sad. I lose all motivation to do my homework and just feel angry at god. Have you ever felt this way? If so, what did you do to help yourself?

My gosh, YES. 100% yes. I am guessing that you have depression comorbid (alongside) OCD, as I did. For me, the OCD was the root issue and what was causing the depression, so when I treated the OCD, the depression alleviated as well. I talk about my anger at God a little bit in this post. Ultimately, I got so sad and felt so lost that I hit rock bottom– and God was there. He looked like a Korean psychiatrist who gave me hope, a prescription, and a phone number for a local ERP therapist.

Hi Jackie, I finally realized my problem is OCD. My question is, do people with this “doubting disease” have the capacity to have faith? I’m so worried I might lose faith altogether, because of what’s wrong with me.

Yes, absolutely! In Yes Novel (my work in progress that has been temporarily set aside), the main character has this interaction with his professor:

He nodded, headed toward the door. But before he left, he turned around and asked, “What you teach us in class, do you really believe it?”

Dr. Morgant pursed his lips thoughtfully. “On my worst days and my best days, yes. But not every day. There’s only one thing in I believe every day.”

“Doubt,” said Asa, as his teacher said, “Faith.”

“Same thing,” said Dr. Morgant with a smile.

Anne Lamott has said it best:

I have a lot of faith. But I am also afraid a lot, and have no real certainty about anything. I remembered something Father Tom had told me–that the opposite of faith is not doubt, but certainty. Certainty is missing the point entirely. Faith includes noticing the mess, the emptiness and discomfort, and letting it be there until some light returns.

Thanks for all the questions, folks! If you have questions for me about anything (but especially faith, creativity, and mental illness), add yours here.

As I said, I’m an artist not an expert. I will leave you with these, some of my favorite questions in one of my favorite poems, “Questions about Angels.” Click here to hear Billy Collins himself read it. (P.S. It starts with questions, ends with a dancer.)

HOCD Questions?

Out of the OCD sufferers I hear from, 9 out of 10 are battling HOCD.

In the past, a friend “Hannah,” who has come out on top of HOCD, has been happy to answer questions about her hocd questionsexperience with HOCD.

Hannah’s 1st Interview
2nd Interview
3rd Interview

If you have HOCD-related questions for Hannah, please read the above interviews first to see if she has already answered them. If not, you can anonymously submit your question(s) for Hannah by clicking here.

Once I collect a handful of questions for her, I’ll send them her way and post the answers!

Thanks!

HOCD: A Letter to Loved Ones

Here are a couple hard truths:
1) I hear from more OCD sufferers dealing with HOCD than with any other theme.
2) Many of these sufferers are quite young, still in school, unsure how to seek out help, and scared to share their hard-to-explain concerns with parents or other trusted people in their lives.

I want so much to do something meaningful to help them find their footing.

So, I’m writing here a letter that they can show their parents/trusted advisors. I’m hoping to be a voice if they can’t find their own.

Friends, feel free to share this as needed.

hocd letter

Dear friend of a reader of my blog, hello.

You’ve likely been sent to this blog post by someone who wasn’t able to articulate what he or she is going through– suffering from– or someone who was too scared to trust their own voice and explanation. I hope I can help explain a few things.

The person who sent you this has a strong suspicion that he or she is suffering from what is called HOCD or “homosexual OCD.” Two things to know up front: one, this type of OCD affects both gay and straight people, and two, it does NOT mean that the person who sent you here is gay (if they identify as a straight person) or straight (if they identify as gay).

Confused yet? 🙂 Let me explain.

Obsessive-compulsive disorder can take a lot of forms. What most people think about when they hear OCD is someone who is overly worried about germs or order. While those concerns can be true of an OCD sufferer, the stereotype really misses the point, which is that an OCD sufferer has obsessions– the “O”– unwanted thoughts or images that plague them and cause intense anxiety. They try to relieve the anxiety with compulsions– the “C”– which can take almost any form … really, anything that alleviates the panic they feel. For people who have obsessions about germs, illness, or death, the compulsions often include washing their hands, visiting a doctor, or asking for reassurance (“Do you think I’ll get sick? Do you think I’ll die? Do you think I’m okay?”). For those who have religious obsessions, the compulsions often include repetitive prayer, confession, and (again) seeking reassurance (“Do you think that was sinful? Do you think I’ll go to heaven?”).

One common “theme” of OCD is to question one’s sexuality. We call this theme HOCD. It often comes out of nowhere. Someone who is perfectly comfortable with their sexuality, someone who has never, ever questioned it before, can suddenly be triggered– and now, it’s the only thing they can think about. It becomes their obsession, and to alleviate the anxiety, their compulsions are often things like continually checking their bodily responses to men and women, comparing them, seeking reassurance (sometimes from others, sometimes just from themselves). Often, they will end up spending a great deal of time on the internet, trying to find out why they suddenly are worried they are gay (or straight). I’ve talked to many HOCD sufferers who fit every profile of a straight person– except that they cannot shake the obsession of “what if I’m gay?” Some of these sufferers (both gay and straight, remember) feel absolutely tortured– and no wonder! Our sexual identities are so close to our core. I might hear from a young girl who wants nothing more than to fall in love with a man and get married, but all she can think about is “what if I’m actually gay? what if I get married and years from now, have to leave my husband because it turns out I’m a lesbian?” She will start looking at other young woman, wondering, “Do I find her attractive?” She may start losing her usual attraction to men. She might want to stop hanging out with her girl friends for fear of “turning gay.” (Again, note that HOCD can happen for both men and women, those who identify as straight and gay.) The inability to be 100% certain about their sexuality causes them tremendous distress.

(Even that– “tremendous distress”– is not saying enough. HOCD is sheer torture. And for those who are young and not sure where to turn or who are scared that vocalizing their worries will label them as something they are not– or that they deeply fear being– it is hell.)

A conversation with someone struggling with HOCD can be very confusing.

“So, you like men and want to date and marry a man, but you think you like women?”
“No. I mean, yes. I mean, I’m not gay. I mean, I *think* I’m not gay. I don’t want to be gay.”

“So, wait, you’ve identified as a homosexual man and told us all that you are attracted to men, but now you think you might be straight?”
“No. I don’t know. I don’t want to be straight. But I’m scared I might be. I just need to know for sure.”

That– “I just need to know for sure”– is the battle cry of every person with OCD (whether it manifests itself as HOCD or not).

What you need to know is that, no matter what this looks like, HOCD is not really a battle over sexuality– it is really a brain disorder in which the sufferer’s mind demands a certainty that is quite simply not available in real life. A “normal” mind lets thoughts come and go as they please, but someone with OCD has a mind that traps thoughts so that they only go around and around in circles.

That is why, in the proper treatment of OCD (HOCD or otherwise), we don’t treat the symptoms– the obsessions or compulsions. We treat the OCD and the desperate need for certainty.

Treating the symptoms is like reacting to a fire while the arsonist sets another one somewhere else.
Treating the OCD is like going after the arsonist itself.

How is that done? Through ERP (exposure and response prevention) therapy or through ERP plus medication.

ERP is a therapy in which the brain is re-wired to be able to better deal with uncertainty. It uses exposures that trigger the patient’s anxiety but requests that the patient not respond with compulsions. Instead of getting out of the cold water, the patient is taught to stay in the cold water and get used to it. After a time, as most of us know, it no longer feels cold.

ERP therapy can be done with a professional therapist (there is a great database on the International OCD Foundation’s site) or, with dedication, it can be done from home on one’s own, or with the help of family and friends. I have a list of books that will explain how to do that here.

The most important thing for you to know is that this is not really a battle over this child’s sexuality. It is really a larger, overarching brain disorder and inability to handle uncertainty. OCD will typically move on to harder and scarier themes until it is treated, so I recommend that you help the person who directed you here to get professional help sooner than later. Although this might seem like the time for the family (or even a talk therapist) to “talk it out,” that is the equivalent of putting out fires while the arsonist is still at large. ERP therapy takes out the arsonist.

There are lots of additional resources to help you understand OCD, ERP, and your options at jackieleasommers.com/OCD.

Thank you for being a trusted person for my blog reader.

Best,
Jackie Lea Sommers

P.S. I suffered from various themes of OCD for twenty years. Just twelve weeks of ERP therapy brought my life back under my control. It really works.

P.P.S. As always, a reminder: I’m not a therapist or medical professional– I just have OCD and know a lot about it.