nOCD, an ERP App/Hero

If you’ve spent time around this blog, you know that I wrestled my life and freedom back from the clutches of obsessive-compulsive disorder in 2008. (Read more about my story at jackieleasommers.com/OCD).

From the onset of my symptoms to my diagnosis: 15 years.
From my diagnosis to appropriate treatment (ERP): 5 years.
From treatment to freedom: 12 weeks. (<–Read that again please.)

Exposure and response prevention (ERP) therapy is powerful, friends.

On average, it takes OCD sufferers 14-17 years to get the correct diagnosis and treatment. This is not okay. 

So many OCD sufferers cannot afford treatment. In some countries, ERP therapy is simply not available. In fact, in some countries, the stigma associated with having a brain disorder like OCD is so strong that sufferers would not dare admit to needing help. This is not okay. 

The creators of the nOCD app felt the same way. One contacted me and said, “Our goal is to reduce the time it takes for people with OCD to get effective treatment (from decades to minutes).” He said, “One thing advocacy has shown me is the need for OCD treatment in other countries! There are people in Bangladesh, India, etc that have literally nobody! My team is actually building a 24/7 support community within nOCD to combat this issue.”

The app is FREE and, I-hope-I-hope-I-hope, going to change the world.

Some of the very best things about this app:

nocd.jpg

Right now it’s available for iPhones, but this fall, the Android version will come out. Please check it out here. And be sure to tell me what you think!

xoxo Jackie

Question & Dancer: When OCD Makes You Doubt You Have OCD [& More]

question-and-dancerI’m an artist not an expert, one who is learning to embrace questions more than answers.

These are some questions I got last month. Ask yours here.

 

Is it normal to become hypersensitive to the looks of your same sex with the onset of HOCD? even if you’ve known and seen the person before they just appear a lot more attractive now? Is that a symptom of a. change in sexuality or another Possible HOCD Symptom?

This is very common. Many (most?) with HOCD will be hypersensitive in this way; some seek out opportunities to “check” their reaction to the same sex (if the person with OCD is straight– obviously, this would be the opposite if the person with OCD identifies as a homosexual person) while some avoid that gender entirely. Both checking and avoidance are compulsions. Follow my HOCD tag here.


I am 54 years old recently my ocd has become worse for last 6 months since i changed my job and because of ocd anxiety i am not able to work at present. My ocd is mostly god related i have to pray and touch god photos everytime i pass through them and think i have not prayed prope rly and become anxious. Also there are lots of thoughts coming and going in my head always about touching god photos etc and i am not satisfied with my praying i tried medicines and they made my condition worst,Please help me Sir

Exposure and response prevention (ERP) therapy is the very best treatment for ANY form of OCD, including this. My OCD was also related to my faith; I suffered for 20 years before just 12 weeks of ERP gave me back my life (and a growing relationship with my God). Lots of resources available for you at www.jackieleasommers.com/OCD!

Is it normal to feel no attraction or interest in romantic relationships when suffering with HOCD, even when recovering (reduced obsessions and compulsions, but the feeling of not knowing your sexuality and not being attracted to the gender you always have been attracted to?

I hear this all the time!

Hi Jackie, I have been suffering from hocd for a while now. One of my biggest problems besides the intrusive thoughts and fear I can’t shake off is the EXTREME SADNESS I have. I feel like I get sucked into this dark hole where I can’t get rid of feeling hopeless and sad. I lose all motivation to do my homework and just feel angry at god. Have you ever felt this way? If so, what did you do to help yourself?

Hi friend, sounds like you might be dealing with depression in addition to OCD. The same thing happened to me. Sometimes the depression is a result of the OCD– treating the OCD effectively will “remove” the source. But sometimes that’s not the case; in such a case, it can be more important to deal with the depression first in order for the sufferer to gather strength to fight the OCD. An OCD specialist can help you with this. Perhaps this is a personal preference, but I always recommend treating depression with medication. Depression is a chemical issue, so I fight back with chemicals, often an SSRI. For those who can’t afford a prescription, the supplement 5-HTP is the closest natural alternative to an SSRI.

Hi Jackie, Did you ever feel like your ocd would never end? As a current hocd sufferer, I feel a lot that it’s never going to be over. I question and doubt even the most logic of facts I’ve been told to use in order to help cope with the intrusive thoughts. Everyday it’s a new “what if” question and it makes me terrified and sad.

Yes yes yes yes yes. This was actually one of the biggest horrors of my OCD: the fear that it would always be that way, that it would never end. I’ve written a post specifically about this.

Hi! I have one question: could HOCD bounce to another theme even though I’ve been dealing with it for two months and eventually couple of weeks ago, it wasn’t as severe as it was for the first month? Sometimes I feel like my attraction men is back (I’m a girl) but I still react negatively when HOCD thoughts come up. HOCD targets my insecurities as well.

Theme hopping is pretty normal, at least it was for me. I would spend maybe three or four months obsessing about something until it was basically like my brain would collapse— maybe it was the mental equivalent to the body passing out from pain. It would quickly find something new. It always would. That’s why we don’t treat the theme– we treat OCD.

a week ago I was still dealing with HOCD, but while putting my niece down for a nap, I had a sexual intrusive image of her followed by “should I…?” ever since then my mind has been obsessing about this nonstop. I know what I am capable of and would never harm a child. I can’t stop googling, crying and asking for reassurance. What should I do? Does this sound like POCD?

Indeed it does! And, if you read the answer just above this one, you will see that often OCD hops from theme to theme until it is effectively treated with exposure therapy. ERP is always the best course of action; many more details and resources at

www.jackieleasommers.com/OCD. You are absolutely correct in knowing that you would never harm a child. You wouldn’t. In fact, if you were that kind of person, you would not be “googling, crying and asking for reassurance.” I am not worried about you being a pedophile. I only want you to be treated for OCD, friend. You can do this.

I think I have had HOCD for about 6 months now, and my attraction still hasn’t come back for men. However, before I would get major spikes when reading coming out stories, and reading online forums would say something along the lines of HOCD is just a cover up for those in the closet. I no longer feel major spikes when reading this material though. Is my mind is coming to terms with being gay?

HOCD is a theme of OCD, an anxiety disorder; homosexuality is a sexual orientation. They are not the same thing at all. The first is an illness; treat it with exposure therapy.

In general, are our thoughts representative of our true selves?

Not when someone has OCD.

I’m so scared and tired. I don’t know how long I can take this.

Don’t give up. But do seek treatment. I remember being in your shoes– exactly those shoes. Exhausted, terrified, living either at a fever-pitch of anxiety or else at a low flat-line of depression. But I got rid of those shoes in 2008. I will never walk in them again. 

Is it possible that you can develop mental illness like OCD, even though you might not have issues with OCD in the past? I also have another question: do you think people who second guess whether or not they OCD take longer to seek treatment or even a diagnosis? Plus, could cultural and community surroundings prolong getting help?

I’m not sure if I have any friend with OCD who would say that they have had it from birth– or at least, that it hadn’t manifested itself from birth. For many of us, there is some sort of trigger that kicks into gear at some point. Mine began at age seven.

And yes, statistics estimate that it takes 14-17 years from the onset of OCD symptoms until someone is correctly diagnosed and effectively treated. For me, it took twenty.

I think that number is affected by pride, doubt, how few people (even therapists!) know to direct an OCD sufferer to exposure therapy, and how difficult exposure therapy is. In addition, cultural and familial stigma also prevent people from getting treated.

I know a family– the most incredible, amazing family– in Michigan. When their pre-teen daughter exhibited symptoms (obsessions and compulsions), the parents immediately sought help, learned about OCD and ERP, and got their daughter into an intense ERP program at the Mayo Clinic. I praise God that my beautiful young friend M didn’t have to suffer for 17 years before all that happened. I praise God for parents like R and D.

I realized one of my compulsions is ruminating, but its so hard to catch myself ruminating until Ive ruminated for a good hour. Ive tried to catch myself early but I’m wondering if you have any tricks to stop it from happening? Its hard because rumination just happens immediately after a scary thought&I dont even realize I’m doing it until its too late (rumination also decreases my anxiety)

I had some compulsions that were auto-responses, and the trick my ERP therapist offered to me to stop it didn’t seem like it would work. Except it did work. When I realized what I was doing I would say, “NO!”– interrupt my thoughts this way– “I don’t need to do XYZ right now.” Sometimes I would have to do that multiples times just in the course of a minute. But it worked. My auto-responses eventually stopped.

I feel so alone in this (HOCD), i feel like i’ve lost all identity and sense of self. I’m getting treatment- its not the best, (I am a student so i cant afford much) but i don’t feel much better. I don’t know what to do, i feel so lost

I am so sorry you feel this way, but you are still fighting. You are looking out for yourself and keep seeking help, and I am proud of you. When you say you’re getting treatment, are you referring to exposure therapy (ERP)? If not, that is what you need to do. Talk therapy is not helpful in treating OCD. ERP, on the other hand, can be done on your own.

I believe I am suffering from HOCD but I am terrified to go to a therapist for them to tell me I am gay. I have a wonderful girlfriend that I do not want to leave and do not want to do anything sexual with men. However I’m scared that I am somehow lying to myself although I’ve been perfectly straight my whole life. Any advice for me?

Yes, read one of these books and see if you can identify yourself. If so, then do the exercises. Listen to yourself: you love your girlfriend and don’t want to do anything sexual with men … yet you are concerned. That is HOCD, friend. (And yes, you will feel a short flood of relief from my saying so … but you will begin to doubt it again soon. That will continue to happen until you treat it with ERP.)

Stop Obsessing by Edna Foa

Amazon | B&N | Fishpond

Freedom from Obsessive-Compulsive Disorder by Jonathan Grayson

Amazon | B&N | Fishpond

The OCD Workbook by Bruce Hyman and Cherlene Pedrick

Amazon | B&N | Fishpond

Obsessive-Compulsive Disorders: A Complete Guide to Getting Well and Staying Well by Fred Penzel

Amazon | B&N | Fishpond

Hey, I have a question for you, Jackie (I love your website, by the way; it’s insightful and it’s helped me a lot in recent months). Is this guy a charlatan, or is this actually good advice for someone suffering with HOCD looking to use ERP as treatment? https://www.youtube.com/watch?v=kJ7RfcRrXS8 I’d love to hear your thoughts. Thank you!! 🙂

Not a charlatan. His steps were basically think about your fear (Exposure) and feel the discomfort (Response Prevention). This is what ERP therapy is. His later steps talk about doing this again and again until it no longer is so upsetting. This is how ERP happens. You can see all these details in the story of my own experience with ERP. Even more details here.

This is regarding HOCD. I was wondering if it is possible to have wondered if you are gay in your childhood. I started freaking out about my sexuality around 8th grade. I am 20 now… still freaking out and still unsure of what I am. I’m scared to be gay and I was wondering if HOCD makes you looks into your past for evidence of being gay and actually believing it?

This can and does happen with HOCD. This happened to Hannah, who has been interviewed on my blog several times. Her HOCD kicked in in junior high as well.

Interview with a Former HOCD Sufferer
Another Interview with a Former HOCD Sufferer
A Third Interview with a Former HOCD Sufferer
A Fourth Interview with a Former HOCD Sufferer
Q&A with Former HOCD Sufferer

I have had Hocd in and off for three years and I often doubt that i have it. I often find that I have fairly bad spikes and want reassurance… what is the best way to stop yourself from compulsively confessing or seeking reassurance?

I am assuming that you have read all the other responses above and so you will now know about ERP therapy. I recommend finding a group of supporters who will help hold you accountable– my friends knew exactly what my main compulsions were (mine also were confession and seeking reassurance), and they knew that they should not “aid and abet.” Remember that when you perform compulsions, you are actually siding with OCD and against yourself.

Thanks for all the questions, folks! If you have questions for me about anything (but especially faith, creativity, and mental illness), add yours here.

As I said, I’m an artist not an expert. I will leave you with these, some of my favorite questions in one of my favorite poems, “Questions about Angels.” Click here to hear Billy Collins himself read it. (P.S. It starts with questions, ends with a dancer.)

Question & Dancer: What is “Normal” with OCD?

question-and-dancerI’m an artist not an expert, one who is learning to embrace questions more than answers.

These are some questions I got last month. Ask yours here.

My question is this.. I have hocd but whatever I do it just seems like I get afraid or concerned when a guy comes around me.. it’s like sometimes I look just to check if im attracted to them.. and it’s annoying because the action is becoming involuntary and it’s scary because people read what you send them .. and people are starting to think that I’m gay! And thats very false! What should I do to combat that?

Exposure and response prevention (ERP) therapy, which I’ve written about extensively on this blog: check out http://www.jackieleasommers.com/OCD, friend. Educate yourself on ERP; then seek out an ERP specialist or track down one of the books I recommend so that you can do ERP on your own. Either way, ERP is the solution.

Please read here about Self-Directed ERP.

i’ve met we a psychologist- but she doest seem to have any experience with HOCD and thus has not really been catching it’s symptoms/mentioned it, she does think i have an anxiety disorder and excessive worry- but not specifically anything on OCD. Note she is relatively inexperienced psychologist, as i’m a student and needed to find someone low cost. Not the psychologist has little experience as i’m a student and need a low cost specialist. She has mentioned CBT and ERP as helping methods though. so, what i wanted to ask is form what i have described do i sound like i have HOCD or an i in denial. I am not trying to seek reassurance but guidance, I don’t have anyone to turn to (from a very backwards society in asia) – should i be looking for an OCD specialist or a general psychologist to help me come to term with who i am?

Hi dear! You need an OCD specialist, specifically an ERP specialist. If you can’t afford to meet with one in person, then definitely track down a book (I list four on my website) that will guide you through doing ERP on your own! And kudos to you for being ultra-aware of seeking reassurance. That is one of the primary compulsions for many who suffer from HOCD– the more you are aware of it and resist it, the better! Click here to read more about the Problem with Reassurance.

Hi Jackie. I was wondering if you have any strategies to just letting the thoughts be thoughts in your head. On the web (when I looking for reassurance yes I know its sooooo bad but I can’t help it), people say to let those intrusive thoughts wonder in your mind, but do I just sit there and think nothing as those thoughts wreak havoc on my emotions? Do I just try to calmly breathe through it when my heart is beating super hard? It’s also so hard to not check for reassurance online! How did you have the strength to not reassure yourself? What did you say or think to yourself to prevent it? (I can’t afford a diagnosis, much less ERP so I’m scared that my HOCD may be actually be in denial, but I do know that I’ve had many obessions and compulsions in the past and when the professor talked about OCD, my first thought was THATS ME but then it’s also never been severe to the point where it has disrupted too much of my life. I would just cry myself to sleep most of the time when I’m obsessing)

When I read questions like this, it takes me back to specific memories– horrible, manic ones where I could not calm down, could not do much of anything except to cry and ask for reassurance. It feels so helpless and hopeless in those moments, but I promise it’s not! First of all, since you can’t afford an ERP therapist, please track down one of the books I recommend on my site so that it can guide you through ERP at home. For me, I had a set amount of time when I was intentionally practicing ERP– for me, it was about 40 minutes, twice a day (total of 80 minutes). In the grand scheme of the day, that’s under an hour and a half of putting myself through these exercises (which sometimes felt like torture). Although I did try to avoid compulsions throughout the day, it was only during these 80 minutes that I was specifically triggering myself (exposure) and resisting compulsions (response prevention). It is hard. Don’t let anyone tell you differently. It’s hard and exhausting and feels masochistic. But for me– and for many others– it worked. And it was worth 80 minutes a day for 12 weeks in order to experience this freedom– I’m coming up on nine years of it.

Hi! I’ve been having what I (hope)think is HOCD for two months now and it’s been an intense hell for me. I’ve always been confident that I’m straight and I’ve even intensely championed for gay rights and everything. I used to read articles about gay people and watch videos about people coming out and be fine. But now I avoid all of those and even romance novels because I’m basically terrified of being aroused for the wrong reasons (like if I read a love scene from a guy’s point of view that means I want to do that to a woman when I dont!??!?!?!?). I’ve been trying to do self-ERP and I’ve read that I’m suppose to embrace those “you are gay” “you are turned on because you actually want to do that to a woman” thoughts and the arousal that comes with it. My question is, if I embrace these thoughts for 10-12 weeks, will I really be healed? I JUST WANT THIS HOCD THING TO END.

I don’t think I or anyone can guarantee that 12 weeks of ERP will work for you. But it is an evidence-based treatment, meaning that the statistics of ERP working are in your favor. One thing I can almost for sure guarantee is that if you don’t do ERP, then your OCD will not go away on its own. I suppose it’s possible; miracles do happen. But, for 99% of us in the OCD community, we had to do the hard work of ERP.

Hi Jackie! I’m doing self-ERP for my HOCD right now and although I feel like it would be best with a therapist, I can’t afford it 😦 (maybe one day!) But anyways, my question is that I know when I’m doing ERP, I’m suppose to accept and AGREE with those thoughts of “Yes, you’re probably a lesbian” (gosh it was hard to even type that), but when I’m not doing ERP, do I still have to agree with my intrusive thoughts or should I just let it float around in my head? I know for my past OCD fears (earthquake, breast cancer, blackholes, intersex, death, etc) I would just stop checking and doing my compulsions and would let the thought float around in my head (never did ERP for those things) and a couple hellish months later it would disappear, but HOCD is taking my anxiety to another level (especially since I’m 20 and never been in a relationship with a guy because I’m soooooo shy so now my HOCD is using it as ammunition). Also when I have those OCD-free moments, can I go back to thinking about my crush and the imaginary life we may have one day (wow I’m so weird, I can’t believe I confessed this on the internet) or is that counter-productive to my ERP?

No, I don’t think that’s counter-productive to your ERP. That’s the goal! But during the moments where you are doing your ERP exercises, then yes– you will want to be all in: experiencing the anxiety completely, resisting the compulsions as completely as you’re able. One thing that you wrote specifically interests me: “I would just stop checking and doing my compulsions and would let the thought float around in my head (never did ERP for those things)” … this sounds like it was ERP, friend. Letting thoughts come and not doing compulsions to alleviate the anxiety … that is what ERP is. You can do this.

Hi Jackie, I’ve recently stumbled upon your blog because I am suffering from hocd. I’ve been dealing with it for around 9 months now. I feel so lost because it’s the worst time to really be dealing with all of this. I am a sophomore in high school and all around me people are questioning their sexualites or coming out etc. I line up with all hocd symptoms and anxiety runs in my family. The intrusive thoughts just popped out of no where one afternoon. All my life I’ve liked boys! I talked to my therapist about ERP but she’s not a specialist and I’m scared to even try it. My psychiatrist prescribed medicine that ended up making me worse. Like you I am an avid Christian, but I have always been doubtful and indecisive with everything. I FEEL SO LOST. I’ve lost my hope and feel like nothing is gonna work. I have a hard time believing this could be a disorder. I feel like I should just accept my intrusive thoughts are real but that just depresses me further. What do you think?

Hi honey. If your intrusive thoughts were real, I don’t think they would be intrusive or cause this intense anxiety. For a short time, just suspend your concern that you are dealing with anything other than OCD and tell yourself, “Yes, it IS OCD, and I will treat it.” There is no harm to doing ERP even if you didn’t actually have OCD. Be kind to yourself: accept your self-diagnosis at least for three months while you do ERP on your own with a book to guide you. “Doubtful,” “indecisive,” “so lost,” “lost my hope and feel like nothing is gonna work” … all of these described ME. For nearly 20 years, this is how I would have categorized myself. And, for whatever it’s worth, my sophomore year of high school was HELL, one of the worst and hardest years of my entire life, as I dealt with all of this while undiagnosed. When I was your age, I still faced another 12 years of clawing my way through this alone before I found and did ERP. Please don’t wait as long as I did.

These three questions all reminded me of each other:

1. I have been diagnosed with OCD (HOCD) and have been doing CBT and ERP. I feel as though I am getting better and the intensity of my obsessions and compulsions has reduced but I have this strange feeling of sowmhing not being right and as whole as it use to be? My attraction and desire for relationships and such seems very reduced. It just doesn’t seem to feel or come authentically – is that normal?

2. Is it normal to feel no attraction or interest in romantic relationships when suffering with HOCD, even when recovering (reduced obsessions and compulsions, but the feeling of not knowing your sexuality and not being attracted to the gender you always have been attracted to?

3. Is it normal to become hypersensitive to the looks of your same sex with the onset of HOCD? even if you’ve known and seen the person before they just appear a lot more attractive now? Is that a symptom of a change in sexuality or another Possible HOCD Symptom?

Yes, my dear ones, all of this is normal for someone with HOCD. Please don’t give up. ERP can help.

Hi Jackie, Did you ever feel like your hocd would never end? As a current hocd sufferer, I feel a lot that it’s never going to be over. I question and doubt even the most logic of facts I’ve been told to use in order to help cope with the intrusive thoughts. Everyday it’s a new “what if” question and it makes me terrified and sad.

Hello sweetie, YES. I felt that way about all of my OCD themes … that things would always be this way and that, to me, was probably the scariest thing about it. We can go through any pain so long as we see an end in sight, don’t you think? But OCD lies to us, makes us believe there is no end in sight, and that robs us of hope and joy. Please read this blog post I wrote back in 2014: THINGS WILL NEVER BE OKAY AGAIN [& other lies I sometimes still believe].

I am 54 years old recently my ocd has become worse for last 6 months since i changed my job and because of ocd anxiety i am not able to work at present. My ocd is mostly god related i have to pray and touch god photos everytime i pass through them and think i have not prayed properly and become anxious. Also there are lots of thoughts coming and going in my head always about touching god photos etc and i am not satisfied with my praying i tried medicines and they made my condition worst,Please help me Sir

Hello friend, have you heard of ERP therapy? My OCD was also based primarily around religious obsessions; I battled this for 20 years before undergoing ERP, and just 12 weeks of ERP therapy snapped my OCD in half. The last nine years have been so peaceful, so free. Here are a few posts that might help:

OCD & Christianity
(or other religious scrupulosity)
OCD, ERP, and Christianity
I’m a Christian and Take Meds!
Unashamed of my OCD
Is the thought from OCD … or God?

God’s Sovereignty, OCD, the Cross, & His Purposes
Is Mental Illness a Spiritual Issue?
Is ERP Sinful?
OCD & Faith (or Lack Thereof): a Double Interview

Hi Jackie, I have been suffering from hocd for a while now. One of my biggest problems besides the intrusive thoughts and fear I can’t shake off is the EXTREME SADNESS I have. I feel like I get sucked into this dark hole where I can’t get rid of feeling hopeless and sad. I lose all motivation to do my homework and just feel angry at god. Have you ever felt this way? If so, what did you do to help yourself?

My gosh, YES. 100% yes. I am guessing that you have depression comorbid (alongside) OCD, as I did. For me, the OCD was the root issue and what was causing the depression, so when I treated the OCD, the depression alleviated as well. I talk about my anger at God a little bit in this post. Ultimately, I got so sad and felt so lost that I hit rock bottom– and God was there. He looked like a Korean psychiatrist who gave me hope, a prescription, and a phone number for a local ERP therapist.

Hi Jackie, I finally realized my problem is OCD. My question is, do people with this “doubting disease” have the capacity to have faith? I’m so worried I might lose faith altogether, because of what’s wrong with me.

Yes, absolutely! In Yes Novel (my work in progress that has been temporarily set aside), the main character has this interaction with his professor:

He nodded, headed toward the door. But before he left, he turned around and asked, “What you teach us in class, do you really believe it?”

Dr. Morgant pursed his lips thoughtfully. “On my worst days and my best days, yes. But not every day. There’s only one thing in I believe every day.”

“Doubt,” said Asa, as his teacher said, “Faith.”

“Same thing,” said Dr. Morgant with a smile.

Anne Lamott has said it best:

I have a lot of faith. But I am also afraid a lot, and have no real certainty about anything. I remembered something Father Tom had told me–that the opposite of faith is not doubt, but certainty. Certainty is missing the point entirely. Faith includes noticing the mess, the emptiness and discomfort, and letting it be there until some light returns.

Thanks for all the questions, folks! If you have questions for me about anything (but especially faith, creativity, and mental illness), add yours here.

As I said, I’m an artist not an expert. I will leave you with these, some of my favorite questions in one of my favorite poems, “Questions about Angels.” Click here to hear Billy Collins himself read it. (P.S. It starts with questions, ends with a dancer.)