Question & Dancer: OCD & Family, Romanticizing Mental Illness, and What to Expect in OCD Remission

question-and-dancerI’m an artist not an expert, one who is learning to embrace questions more than answers.

These are some questions I got last month. Ask yours here.

How do you explain OCD to your family? Especially when you’re not sure whether or not your family has mental illness?

First I’ll say that I think that it’s up to each individual to determine whether or not they’d like to share– and how much. With OCD, many of our obsessions are taboo, which– quite honestly– makes the idea of sharing seem terrifying. I hear from a lot of younger sufferers too, who are under their parents’ roof and parents’ health insurance, which complicates treatment.

I heard from so many teens with HOCD that I wrote this post in 2015 so that they could share it with their parents and not have to say a word themselves. I’d be happy to write a general OCD one, if you guys think that would help.

As for me? I gave my mother a copy of Kissing Doorknobs by Terry Spencer Hesser– a copy in which I had underlined all the quotes that resonated with me. At that time, it was the best I could do to explain what I was experiencing. These days, I’m more articulate– but I have lived for longer with my diagnosis, been through treatment, and come out shame-free. I know many aren’t there yet.

Is HOCD a physical illness as well as mental?

Briefly, yes.

Hi, does OCD make you want to confess something even when it’s not true?

I have Pure-O, and confession was one of my biggest compulsions. I would confess to bad thoughts, things I thought might be sinful, anything that my OCD took and throttled me with. And yes, sometimes those were things that I didn’t even need to apologize for. But the anxiety would grow so intense that the only “release” was to confess. I got a lot of weird looks in those days.

Here is the thing: if you (like most people with OCD) can understand when you’re thinking or doing something off (you know it is not quite logical, even if you have created a weird sort of logic for it; or if you know it is something that the general public would not care about or confess), then don’t. This is fighting back against your OCD with the tools of exposure therapy. It will, for a time, feel like the anxiety will go so high that things will never be okay again, but that is the lie of OCD. The anxiety will diminish, and you will be okay. Stay in the cold pool long enough to adjust, and eventually the water will not feel cold anymore. But this can only happen by staying in the pool.

I read your post about OCD and creativity. Could those two ideas be linked to intelligence?

Great question. You’re likely referring either to this post or to this one.

Research has shown that high IQ is correlated with anxiety. Anecdotally, many people with OCD are also very creative (did you know popular YA authors John Green and Maggie Stiefvater both have OCD, along with unpopular YA author Jackie Lea Sommers? ;-))

HOWEVER, OCD is not something to be embraced. I know that in the past, I thought if I didn’t have OCD, I wouldn’t be as funny or quirky or creative. John Green, in a talk I once heard, shared that he also had that false understanding for a time– that his OCD was what fueled his creativity. He’s written about that here. Please read it; it’s very good.

The point is that– whether or not there is a link between OCD (bad, awful thing) and creativity and/or intelligence (good, excellent things)– we need to be careful not to romanticize mental illness or to give props to it. If you are smart or intelligent, kudos go to you, not to the disorder.

I treated my OCD in 2008, and now I am more creative, more me, more productive, more intelligent. So it wasn’t OCD that made me what I am at all. In fact, OCD was holding me back. Don’t romanticize mental illness. Treat it.

Hi…this is a weird question, but I’m worried ERP won’t work on one of my particular obsessions. I made some account on a website and now feel the compulsive urge to delete it because maybe I don’t like the username and it’s “contaminated.” But at the same time, I don’t want to delete it because I’ve invested some time into building it up (it’s a writing website, more articles you write higher rating you get)…but I’m worried if I don’t delete it, this anxious feeling will never go away!

That is a lie: the anxious feeling will go away … and possibly sooner than you’d think. ERP works great for situations such as these. You can do this.

With OCD, can it be possible that you don’t know the difference between what thoughts are even yours anymore or the OCD’s?

That is possible– and sometimes happens to me when I’m in sort of a manic state.

Most often, I can tell the difference. I know that one thing feels a bit ridiculous. And this is a hallmark of OCD (except in very young children): that people with OCD usually have some understanding that what they are obsessing about is not something that most people would worry over.

My ERP therapist taught me to look at these things through the lens of the “community standard.” That is, how would most people react in this situation? Because if my reaction is way off from that, then for ERP, I need to go with the community standard instead, even if it’s scary or hard.

When I am in the throes of an obsession, I sometimes can’t tell what the community standard is. I have literally sat down my friends or coworkers, explained the situation, asked for the standard response, and then BELIEVED IT and DONE IT, no matter how difficult. Because this too is part of exposure therapy, the very best treatment for OCD. (If you’re not familiar, you can read up on ERP at http://www.jackieleasommers.com/OCD.)

I have thoughts about death and how we will all disappear after this…and if life is meaningless or not I’m diagnosed with OCD and i had HOCD , harm ocd , etc… Is that a new theme or is that something new ?

This sounds like an existential theme of your diagnosed OCD. This was a huge part of my own experience, and what my first novel is about! See http://www.jackieleasommers.com/truest.

With your OCD, do you ever feel that you’re wearing a mask everyday?

Not anymore– but before, YES YES YES.

I used to talk about this with high school students in the midwest, and I would read this poem aloud.

I’ve been struggling with ‘Pure-O OCD’ for a while and because my compulsions are almost exclusively mental, I’m afraid I’ve been automatically engaging the negative sensations associated with the thoughts I get. Although I know the thoughts are very irrational, I can’t seem to be mindful enough to sit with the negative emotions and not have them affect my mood. Little by little, over the years the thoughts are triggered by almost any activity I’m involved in and I feel like I’m running around in a circle and not making much progress. Activities and events that are supposed to be enjoyable are viewed by my brain as hurdles and obstacles to overcome. As far as CBT goes, I tried following the 4-step method by Dr. Schwarz which help a little to put me in the right mind set but I haven’t had much sustainable success. Being a Christian, I feel like I’m wasting time giving in to the negative pull the thoughts I get have on my behavior, which in turn, rob me of valuable time spent acting as a true follower of Christ. Based on your experience with Pure O, what would you say is the best CBT method to effectively manage it? Is it ERP or mindfulness, or a combination of both? Thank you

While I know a lot of OCD sufferers who practice mindfulness, the #1 treatment recommended by all OCD experts is ERP (exposure and response prevention) therapy. Your story sounds so, so, so, so similar to my own. I went around in circles for 20 years before doing ERP. After just 12 weeks of ERP, I have had tremendous freedom, peace, joy, and spiritual growth for the last 9 years. You can do this!

I hope you’ll take the time to read my post about Post-ERP Spiritual Growth. It really summarizes all the healthy changes that came about in my life and faith after treatment. Blessings!

I feel like I might have OCD..maybe ROCD for a while, but that cleared up so I’m unsure about that. I’m 13 years old (a girl) and I think I have been dealing with hocd since the end of 6th grade (11 years old). I have been with my boyfriend for 7, almost 8 months. This hocd is getting better…I think. I always feel like there is another person in my mind telling me that I’m gay. I sometimes don’t feel as disgusted as I usually do when that happens, and that scares me even more. I wish I could tell my boyfriend, but I feel like he would think I actually am gay. Also, Recently i have the tendency to look at girls’ butts and boobs! Is this normal? Is it not hocd? It bugs me so much, and I feel so disgusted and guilty. I’ve never wanted to kiss, date, or do anything sexual with a girl. Whenever I see a girl, I think “she’s pretty.” And then I start questioning myself. And I think “is she attractive? Do u want to do stuff with her?” And soon it calms down. But it comes back as quickly as it goes. It’s so scary. I want it to go away for good. I told my dad two years ago when it wasn’t as bad. So he doesn’t know the full story. My mom knows and I told her recently. She doesn’t understand how horrible it is. I don’t want to tel her everything I question and feel because I don’t want her thinking that I am gay. Even though she would be fine with it. But I’m not. I want that therapy. I’m on medication for anxiety, but it’s not helping too much. This hocd causes me anxiety and depression. I went through a really bad period of this about a month ago, for two weeks. I wanted to die, and I’d use my nails to scratch myself. I don’t know what to do. I wish I could tell my parents, friends and boyfriend, but I don’t know what they would think. Please help me. I want an OCD free life.

Oh sweetheart, please read my answer to the first question above. I think it will help you. Consider sharing this post with your parents. ERP works; it truly does. You are thirteen and have so many exciting things ahead of you– your whole life! The earlier you treat OCD, the sooner you can get to enjoying things again. If you really feel like you can’t tell your parents about your OCD, and if you’re driven, you can treat it yourself at home, using one of the books listed in this post. Don’t give up, honey. Gosh, I can remember being in the same hell that you’ve been living in when I was your age. It feels so horrible and hopeless and exhausting. But you won’t be there forever. ERP will help. Hang in there.

Want to know more about consequences of years of compulsive behavior and thinking haunting life…even after ocd is gone

This is a really good question, one I’ve not been asked much before.

First things first, OCD is very rarely ever gone. Except in the case of a miracle, OCD is a chronic disorder that a sufferer has until death. That said, ERP therapy can subdue it to the point where it feels gone, which is just about as good as the real thing, right?

I’ve written a pretty detailed post about remission and relapses here. While I think it will answer an aspect of your question, the spirit of your question seems to be: what lingers?

For me, not much. (Thank God!) OCD has little to do with my daily life anymore. That said, there are seasons (and in fact, I’m in one right now) when it is like opening a rarely used door in my life only to find that OCD has actually been chilling out there for years, just waiting for you to reenter that old room. (For me, it’s dating. I haven’t dated in a while, and so I haven’t had to deal with the whole ROCD thing. It’s okay. I’m battling it, and I have all the confidence in the world that I can subdue it because I’ve done it successfully now for nine years.) For me, the 12 weeks of ERP therapy I underwent had a far longer-lasting influence on my thought patterns than the 20 years of obsessions and compulsions that came before. It is that powerful. Learn more about ERP at http://www.jackieleasommers.com/OCD.

Thanks for all the questions, folks! If you have questions for me about anything (but especially faith, creativity, and mental illness), add yours here.

As I said, I’m an artist not an expert. I will leave you with these, some of my favorite questions in one of my favorite poems, “Questions about Angels.” Click here to hear Billy Collins himself read it. (P.S. It starts with questions, ends with a dancer.)

 

Dear Diary: Salt, Sickness, & NOT YOU AGAIN

A (not so) little update for you:

Salt Novel

Oh my gosh, I finally finished revising my synopsis and am ready to dive into revisions! This took me a lot longer than I expected, but that was foolish of me: why would completely reorganizing/restructuring a novel, reconfiguring motives, and solving problems of fictional people be considered a weekend project? Ha! While I still have a few things to iron out, the majority of it is sorted out, on paper, color-coded. It looks gorgeous. (Okay, only to me.) I feel so excited about these changes– especially because I haven’t started trying them and failing yet. 🙂

Sickness

I’m getting better! I was down for the count for a stretch, but I’m bouncing back finally. Has anyone else been sick? Sounds like it’s been going around. I got so much extra sleep this past week, and it felt incredible. I even had some of those naps where it feels like you were out for about three years. Mmm!!

Online Dating

… is so weird. And I think, in general, a lot of men are pretty confident (and wrong) about what they think women want. That’s all. For now.

ROCD

One thing that really surprised me with the whole online dating thing: my OCD has come out to play again. Ugh. I have lived as close to OCD-free as is possible since 2008, when I went through exposure therapy to treat it. In a lot of ways, OCD has felt like a part of my past, something I experienced a lifetime ago. Then, guys started talking to me.

It’s crazy how fast OCD/ROCD symptoms blasted back into my life. I was not prepared for it.

But, and maybe this is a little embarrassing to admit … I haven’t really been in the world of dating during my remission. ROCD hasn’t come up because, well, it hasn’t come up. You know? So, now I’m talking to this cute guy, and I’m a WRECK. Thankfully, I was able to recognize it as OCD, and now I’m re-learning how to love the uncertainty. Again.

Sigh.

🙂

Wrists

Months ago, I posted a cry for help in regard to my RSI. One reader (thank you, Ash!!) commented with the name of a book by Pete Egoscue, Pain Free at Your PC.

This is changing everything for me. I’m sooooo grateful. Right away, in reading the book it became apparent that I needed to be symmetrical, and I knew that I wasn’t. (My left leg has been shorter than my right since I was in middle school.) I got a heel lift from my chiropractor, and that was the beginning of the changes. I’ve also been doing Egoscue’s exercises a couple times a week. I feel better than I have in years.

Creative Goals

Salt Novel, coming together.
Book a week, check!
Blog every week, done.
Learn something new every day? I am, but I have sadly not been recording everything.
Yes Novel … it’ll come.

And you?

Drop me a line– I’d love to hear from you!

 

 

Question & Dancer: Compulsions, Doubt, & HOCD

question-and-dancerI’m an artist not an expert, one who is learning to embrace questions more than answers.

These are some questions I got last month. Ask yours here.

Donnann asked: How do i deal with intrusive thoughts in the form of questions which sometimes i feel like i need to answer? They give me anxiety not finding an answer either by googling or asking reassurance.

Hi friend, asking reassurance (of friends, strangers, Google, the internet, etc.) is, in this case, a compulsion. Compulsions will never be the solution for an OCD sufferer. In the moment, it might feel good, but it is not a lasting solution. I’ve shared a metaphor before about OCD as an arsonist, setting fires in various corners of our brains. Compulsions are short-sighted in that they try to put out individual fires. It is impossible to keep up this way because while you are putting out one fire, OCD the Arsonist is setting another three. Exposure and Response Prevention (ERP) therapy, on the other hand, goes after the arsonist itself. Compulsions are band-aids; ERP is surgery.

Aurora asked: Is it common for HOCD sufferers to begin questioning whether they really have OCD?

Incredibly common, and not just with HOCD. I think that just about every person who has OCD of any stripe has, at one point or another (or a thousand points), wondered if he or she really does have OCD. Remember, OCD is called the “doubting disease.” It lives up to its name in the fullest sense, even down to a diagnosis. I know that, even when I was diagnosed with OCD and then read a book about it in which I saw myself over and over in the examples, I still faced that question. Everyone I know who has OCD has had this same concern. You are not alone!

Susan asked: What do you do when in church and the bad thoughts come?Also how do you stop ruminating?

This is not going to be a popular answer, but here it is: you let the bad thoughts come. You let them just be thoughts and don’t assign any special value to them. You let them exist and you do not fight them. OCD feeds off resistance. When we quit resisting, it gets bored with us. You learn how to do this in a healthy way via Exposure and Response Prevention (ERP) therapy. Just twelve weeks of ERP set me free after 20 years in bondage to OCD. After I learned to stop resisting and to not give bad thoughts too much value, they quit coming as often. In the first 18 months after doing ERP, I had no obsessions or compulsions. In the years since, I do very little ruminating (maybe one or two obsessive relapses each year, no more than a couple hours each). Compared to my nearly constant ruminating for two decades, this is peace and freedom.

Briana asked: Am I ever going to find someone?

Briana, you and me both, girl. I’m window shopping on eHarmony. How about you?

Halima asked: What have I done to deserve this?

Nothing, dear one. Illness sometimes just is what it is. That said, as one of deep Christian faith, I do have lots of thoughts on this. But I don’t believe it is a punishment at all.

Halima asked: How do you manage your OCD in different times of the day when the feelings of doubt and uncertainty are the most crippling?

It has been nearly nine years since I underwent the ERP therapy that changed my life. I very rarely experience that high-intensity, crippling doubt anymore, even though I was well acquainted with it for two decades. When I do have these attacks, I go back to my ERP toolbox: I accept the thoughts, I do not assign special value to them, I refuse to succumb to compulsions, I assess what the community standard is (or ask friends if I cannot tell this myself), and then I go forward with that standard. I make this sound so easy, and I know (believe me, I know!) that this is not easy, not at the beginning. In exposure therapy, you are trained how to do this, and your brain is actually re-wired so that you are able to do this. The brain actually physically changes. That might sound scary, but for me, it has allowed me to be the very best version of myself in all ways: I am more curious, more thoughtful, more productive, more creative. ERP did not erase my questions. It gave me the tools and strength to approach them in a productive way. Before I would just chase questions around and around and around, like a dog chasing its tail.

I also think naps are awesome. 🙂

Anonymous asked: What if you do see a major loss of attraction to the gender you’ve always been attracted to but don’t see a spike in false attractions to the same sex?

This sounds like so many HOCD stories I have heard over the years. The answer is still the same: exposure therapy. I invite you to read more about this from Hannah and Mae, a couple of former HOCD sufferers who each went through ERP:

Interview with a Former HOCD Sufferer
Another Interview with a Former HOCD Sufferer
A Third Interview with a Former HOCD Sufferer
A Fourth Interview with a Former HOCD Sufferer
Q&A with Former HOCD Sufferer

HOCD Story: Meet Mae, Part One

HOCD Story: Meet Mae, Part Two

Anonymous asked: Hocd or never was? – I was diagnosed OCD about 7 years ago. Had many OCD behaviours, fear of aids, terrified I’d commit a crime and would be arrested, checking I haven’t hit someone with my car, checking food, washing my hands and lips because I felt dirty or was too close to something I deemed dirty. My biggest one is hocd. I was treated for it and had good success, thoughts were still there but I coped. But since starting uni and wanting a career as a beauty therapist it’s come back big time. I have a recurring obsession about a past friend who I still sometimes see that I’m attracted to her. It will kind of rotate friends and aquaintanxes until they’re spent and then come back to her as a ‘failsafe’ as my mum calls it. But recently, I foolishly looked for reassurance on a message board, and found a post that said after therapy for hocd you might find out your gay and apparently that’s ok. Now I’m terrified to do my ERP/CBT homework. I’m also thinking it keeps resurfacing because I’m actually attracted to women and must accept it. I sometimes don’t feel disgusted anymore and not anxious and that makes me even worse. I’m just so scared that I will turn out gay, have to leave my boyfriend give up on my future family with him. I’m so scared sometimes I feel not scared anymore. I’m so lacking sleep right now. I’ve referred myself to a therapist again, but I’m terrified he or she will reveal I’m gay. I’m so afraid, please help? I read your interview with a former hocd sufferer and pray that can be me soon.

This is a very common fear for people going through ERP/CBT– that it will actually “reveal” something about them, whether that is related to their sexual identity, their “life of crime,” their “evil nature,” etc. It’s important to remember that OCD goes after the things that are most important to us, the things we deeply value. That is what makes it so hard to do ERP. If OCD went after things we didn’t care about, it wouldn’t cause that anxiety and all the questions. Stop assigning special value to these thoughts (“it must keep resurfacing because it’s actually true”); it keeps resurfacing because you have OCD and your sexual orientation is of utmost importance to you, that’s all. I’ve talked to MANY HOCD sufferers, and I’ve never heard one of them say they wish they hadn’t done exposure therapy. I am doing my best not to offer reassurances in this response (I don’t cater to compulsions!), but it’s hard! I will just say that I don’t think you can go wrong with ERP.

Thanks for all the questions, folks! If you have questions for me about anything (but especially faith, creativity, and mental illness), add yours here.

As I said, I’m an artist not an expert. I will leave you with these, some of my favorite questions in one of my favorite poems, “Questions about Angels.” Click here to hear Billy Collins himself read it. (P.S. It starts with questions, ends with a dancer.)

 

 

 

Supplements, Nutrition, & OCD: Guest Post by Leah Adair

Leah is on the board of OCD Twin Cities with me, and she’s got the loveliest heart! She is a tremendous encourager, and she also knows more about natural ways to treat OCD than anyone I know. Leah herself has undergone ERP, and I know that she would never argue to replace ERP with the following … these are meant to complement exposure therapy.

With that said, here’s Leah!

xoxo Jackie

***

Jackie asked me to share a little bit about my experience with supplements/nutrition and treating OCD. I am not a doctor, dietitian, or a nutritionist. I am someone who suffers with OCD and I’ve done a lot of research on ways to treat it.


When the beast of OCD first began, I researched all of the possible ways that I could fight it/defeat it.


An interesting fact is that our gut is our second brain. 90% of what we feed into our body transfers to our brain. Fascinating, right?


I started taking a variety of different supplements that have been proven to help with OCD and also anxiety/depression.


I’ve been on meds combined with supplements and I’ve also done strictly supplements. It’s important to find what works for you. It’s also important to talk with your doctor or psychiatrist if you are planning to make any major changes. I had two sessions with a certified dietitian to help me understand supplements.


Nutrition:


It’s crucial to try to eat a healthy fat, protein, and carb at every meal. Carbs = fruit and vegetables. I’ve found that limiting dairy, gluten, and sugar has helped decrease anxiety quite a bit. I still LOVE pizza, , but I definitely feel a difference when I don’t eat a balanced meal.


Healthy fat is so important.
Think: BUTTER!!!  Our brains store fat and we are often lacking healthy fats in our diet. Examples of healthy fat: avocado, dark chocolate (who can argue with eating more chocolate!), eggs, olive oil/olives, fish, nuts, chia seeds, coconuts/coconut oil.


Exercise:


It’s super important to be active. When our bodies are moving, they produce endorphins which trigger a positive feeling equal to that of morphine (with out the addictive component). If exercise seems daunting to you, start small. Walk around the block or do a short video online.


This article highlights 13 reasons exercise benefits our mental health.


Supplements that help OCD:


My top 3 recommendations paired with medication are fish oil, a probiotic, and a multivitamin.


Fish oil: Fish oil helps support serotonin and build it into our bodies. It might sound like it would taste gross, but you don’t even notice the fish taste. I would highly recommend getting the “burp-less” kind. When I forget to take fish oil, I notice that my mood is much lower.


Probiotic: Probiotics are anti-inflammatory microbes that affect the gut in a positive way. Remember when I said our gut is our second brain? Probiotics have some similar effects to an SSRI. Probiotics can be purchased at Walgreens, CVS, or Target. They can also be purchased online. I get mine (with free shipping!) from www.nutrikey.net


Vitamin D: Vitamin D is what we receive from exposure to sunlight. Unless you are a lifeguard, work in construction, or some other job where you are exposed to the sun for several hours each day, you are lacking Vitamin D. This is especially important if you live in a colder climate. I actually take  take 3000 IU’s a day which is 3 tiny capsules. This article is by the Journal of Internal Medicine and highlights they ways that Vitamin D helps fight depression.


Multi-vitamin: It’s important for take a good quality multivitamin. Multi-vitamins have a lot of key nutrients that help our bodies beyond just mental health. Look for a multivitamin that has B vitamins and magnesium/calcium, like this.


5-HTP: I took this for awhile instead of an SSRI. It helps raise serotonin levels in the brain. 5-HTP is the closest natural alternative to an SSRI.


NAC:  I know of a few people with OCD who swear by NAC combined with an SSRI.  I do not take NAC, but I’m definitely considering it. It’s an amino acid/antioxidant. It significantly reduces glutamate which is a major neurotransmitter that leads to over stimulation. Here is an article from the International OCD Foundation on the benefits of NAC.


Inositol: Inositol is able to cross the blood/brain barrier and provide relief from over firing nerves, the stress reaction of over taxed, hyperactive minds. The multivitamin that I take has a small amount of Inositol in it. Inositol is in the B vitamin family. This can be purchased in powder form or capsules. Learn more here.


I hope this was helpful. Be kind and patient with yourself in this journey. It can take time to find the right combination that works for you.

Dear Diary

Dear Diary,

I love the writing rhythm I’m in right now. It feels good to sit down nearly every night and hammer through something. It’s been quite varied: some nights I will sweep through two chapters and others I will spend all evening on just 250 words. It all feels good. I am just now running into the part of my story that I have the least experience with; I am trying to tap into raw emotions over situations I’ve never been in. It’s intimidating, to say the least. But I keep rotating between my desk and my prayer journal.

I just binge-watched Stranger Things on Netflix and quite enjoyed it. (And I don’t even enjoy being scared … but I do love a good psychological thriller.)

Waiting for my copy of Melina Marchetta’s new book Tell the Truth, Shame the Devil to arrive. In the meantime, I re-read Saving Francesca and its companion novel The Piper’s Son. (P.S. Salt Novel, my current work-in-progress, was born out of The Piper’s Son + a “what if.”)

Jacob Wetterling’s remains were found on a farm in Paynesville, MN. His abduction hit way too close to home for those of us who grew up in central Minnesota, and this has been a question that people my age have had for most of our lives. I remember when he was abducted in 1989. I was seven years old, and St. Joseph, where he was taken, is only about 20 miles from where I lived. Paynesville, where he was found nearly 27 years later, is about the same distance. The man who led them to the body was living in Annandale, just 11 miles from my parents’ house. This case has changed both MN and national laws, and while it is a heartbreaking ending to this decades-long mystery, I hope it will somehow bring the family some closure.

I am sleeping much better (and with NO sleep aids)! The insomnia doctor I’ve been meeting with is the kindest, gentlest, sweetest man. I am so grateful for the way he has thoughtfully pursued answers to my long-standing issues with sleep.

Work has been insanely busy– due in part to the last-minute closing of another private school in Minnesota (we ended up with maybe 8 or so of their students transferring to UNW and registering late) and in part to the implementation of new software in my office. But I feel good. I feel like I’m doing some of my best recruiting I’ve done in years. I am overflowing with creative ideas. It’s like a dam burst.

I’m thinking ahead to next month– which includes OCD Awareness Week– and planning to meet with the OCD Twin Cities team to plan a special event for it. (Anyone have ideas?)

My parents’ dog had puppies! Five purebred German shepherds– four chubby dark-colored male pups and one little all-white girl pup. In all our batches of puppies over the years (to different dogs), we’ve never had a purebred white shepherd before!

puppies

Well, I’d better get back to the manuscript. It’s being fussy.

Love,
Jackie

P.S. What’s going on in your worlds? I always love to hear from you, friends.

 

 

Shattering Stigma as Book Advocates [Guest Post at It Starts at Midnight]

Today, I’m honored to be over on my lovely friend Shannon’s blog, talking about the power of book advocates to break the stigma of mental illness.

ShatteringStigmas-2-e1472245713311It begins:

My young adult novel Truest, which came out last year with HarperCollins, features a teenager with a depersonalization disorder that makes her question whether real life is actually real—or if she is just dreaming it all. To me, it’s a compelling concept, sparking thoughts around philosophy, reality, and the nature of existence, not to mention mental illness and depression. Although I’m not a doctor or psychologist, I still felt qualified to write this story. Why? Because I dealt with solipsism syndrome myself.

To read the rest, click here! Thanks for taking the extra time to hop over and read my thoughts.

 

 

Why Meds?

A blog reader emailed me and asked, “If you are okay with sharing this, could you tell me why you chose to stay on your medication after ERP?”

My response:

For me, meds are a chemical tool to slow my serotonin reabsorption. ERP is a physical tool in that it rewires the brain and a mental tool in that it gives me a new mindset toward uncertainty. I’m grateful for ALL my tools. 🙂

 Also in my toolbox: prayer, deep friendships in which I can be vulnerable, essential oils when needed, Ativan when needed, talk therapy for non-OCD anxiety, and self-care (i.e. naps and ice cream).


 What I’m trying to say is that God has given me an extensive amount of assistance. Some tools only come with privilege or money (having insurance and a paycheck to pay for meds and therapy … and ice cream, ha!); some from transparency (I have the greatest friends); all are sheer grace.


I’m at a stage of my life and faith where my hands are open to all the grace I can get.

HOCD Q&A with Hannah!

Well, folks, she’s back … the lovely Ms. Hannah, a former HOCD sufferer who has been featured on my blog in four previous interviews. I recommend you read them first so that you can be properly introduced to her and her story.

Interview #1white blank picture in the room
Interview #2
Interview #3
Interview #4

I keep an anonymous survey open year-round for people to submit HOCD questions, and when a number have gathered, I do another interview. The first question, however, was an anonymous comment on a blog post about Mae, another HOCD sufferer, who wrote, “I went to the gym a lot and if I thought a woman’s butt was hot, I was supposed to just appreciate her beauty and not doing anything else with the thought.”

Anonymous asks: What did she mean when she said that she appreciated women for their beauty? Did she mean sexually or just like “Oh they’re really pretty I want to be them”? I’m trying to do self ERP so I just want to make sure.

Hannah: I can’t speak for Mae, but for me, the exposure of “just appreciating a woman’s beauty” would not be the equivalent of “I want to be them.” It would be just what it says and nothing more– “That woman is beautiful. I like beauty.” There might be sexual feelings or arousal there as well, but that’s part of ERP too. The important thing is to let the thought just be a thought.

Anonymous asks: I’m a girl and I think I have HOCD, is it normal to picture having a husband and being calm about it then starting to picture having a wife and suddenly get anxiety over it? Thank you

Hannah: It’s normal if you have untreated HOCD! Now, after ERP, that thought wouldn’t give me anxiety. Honestly, I probably wouldn’t have that thought anymore. It would be more likely for me to find myself physically attracted to a woman, but I don’t think in terms of “Oh, I wonder if I’m actually gay” anymore. ERP wiped that out of my brain– paradoxically, it did this by making me okay with the thoughts I hated and the uncertainty. Once I let uncertainty have its own way, it quit bothering me. I wasn’t a slave to it anymore; bored with me, it moved on.

Anonymous asks: Is it normal to feel LESS anxious about the intrusive thoughts after months?
Hannah: Three different answers to this question, Anon.
1) If you are not treating the HOCD with exposure therapy: yes, sure. The anxiety often advances and retreated for me in all my OCD themes, not just HOCD. But until I did ERP, things would just come back later– and worse.
2) If you are treating HOCD with exposure therapy: yes, that’s the goal. For me it took about three months of daily exposures before the anxiety went away.
3) If you not treating the HOCD and you’re less anxious about your intrusive thoughts but you’re actually sort of worried about that (i.e. you think you might just be growing accustomed to your “new” orientation*+), that’s also pretty common for people with HOCD. They sometimes start losing attraction to the gender they are typically attracted to. Problem here is … you’re probably not actually less anxious here. The fact that you asked the question at all reveals that there is still anxiety around the subject for you.
*I used apostrophes around “new” because although I definitely acknowledge gender fluidity, I don’t think the situation around HOCD means the same thing.
+Remember that HOCD afflicts both straight and gay people. OCD doesn’t discriminate.

Anonymous asks: why?

Hannah: I don’t know, honey. Depends on your worldview how you answer this one. I like to think that pain has a purpose and that those of us who suffer from mental illnesses will one day understand what the purpose was. Even if we don’t ever find out, I still believe that.

Anonymous asks: When you imagined “same-sex scenarios” in your head, did you actually think you enjoyed them?
Hannah: Yes and no. I mean, clearly, my response was tremendous anxiety, so no. But the anxiety came because I … thought? … I enjoyed them. OCD is a fucker.

Anonymous asks: I’m really young to have HOCD and I don’t want to tell anyone. I feel like I’m straight and I have always been attracted to the opposite gender. But now I’m scared what if I stop liking them?

Hannah: You poor dear! I was also young when HOCD first attacked me– 8th grade. What is that, 14? Everything that you write in your short three sentences indicates HOCD though. Jackie wrote a post that young people (or really anyone) with HOCD can share with their parents or loved ones so that the responsibility of explaining the disorder and what they need to treat it doesn’t rest on the sufferer. She’ll probably link it. [Jackie interjects: here it is!]

Anonymous asks: Hi, I read your articles and found myself in every word.After getting to know about HOCD I had a more peaceful like very peaceful week, but now the feeling are coming back and they start seeming so real. Could it be more than HOCD?
Hannah: Thanks for reading my other interviews! It’s so nice to know they are helping people! As I said in an answer above, OCD themes come and go, and the intensity comes and goes too, at least for me. I can’t tell you how many times (especially when I was younger) I thought I had “solved” my problems. Unfortunately, what would happen is that the problem would rear its ugly head a few weeks or a month later. OR a new– usually worse– issue or theme would begin. But when I did ERP therapy, that cycle stopped.
Anonymous asks: I feel very uncomfortable around lesbians and hay people because of my hocd. And part of me thinks that they are trying to make me one of them, a lesbian, by saying things like “you could go good with a girl” and it freaks me out! How do you control something like that? I hate my hocd and I’m %100 sure I have it. It doesn’t control me as much as when I first got it but I still get those nasty thoughts. These people are also a bad influence, how do I keep myself away from them?
Hannah: So, a couple thoughts here. I’m not sure if you meant that gay and lesbian people are a bad influence or if you just meant that the people you’re surrounded by are a bad influence. I hope the latter. Homosexual people are usually pretty awesome. Sure, there might be a bad apple in the bunch, but that’s going to happen with straight people too. That said, if the group of people you’re hanging around with are really, truly a bad influence on you, you need to speak up or duck out. The reason that I think you might mean that is that you said that they say things that freak you out and that you can’t control. Take the person aside and politely tell them, “It bothers me when you say X.” If you can’t say that to them, they are not very good friends. If you do have HOCD and one of your compulsions is avoidance of gay friends, then your exposure is to make sure you spend time with them. In general, the phrase “how do I keep myself away from X?” is not helpful in treating OCD of any stripe. In exposure therapy, you … well, expose yourself to X.
Anonymous asks: hey hannah im a fourteen year old girl whos been constantly worrying about her sexuality for about a year and a half now. one thing i can’t get over and i always revert back to is how when i was younger about 10 i would have lesbian fantasies before i would go to sleep. i dont think i ever wanted to do that with a girl however i would enjoy the fantasies. i cant seem to get over this and it doesnt seem to be a similar trait amongst straight people. could you please help
Hannah: Hi dearie! Oh how I can relate to being fourteen and dealing with HOCD! My heart goes out to you. Here is my honest-to-goodness thought: you wrote, “it doesnt seem to be a similar trait amongst straight people”; in reality, I think it’s probably pretty common and just not widely talked about. There is a scale that shows a person more about their sexual orientation, and it takes into account so many factors– past, present, future, as well as sexual attraction, sexual behavior, and sexual fantasies, those three being very different, and others. In other words, homosexual fantasies do not equal homosexual orientation.  I thought the scale was fascinating. THAT SAID, I DO NOT RECOMMEND THAT PEOPLE SUFFERING FROM HOCD GO TAKE THIS. YOU HAVE A DISORDER THAT CAN SKEW THE RESULTS OF THIS QUIZ AND WHICH WILL MAKE TAKING THE QUIZ MISERABLE. Please do not Google it. If you Google it, baby puppies will die. And angels will not get their wings. Instead, do exposure and response prevention therapy. It can change your life. It changed mine.
Anonymous asks: More than a month ago, I suffered from HOCD. Then my mom showed me a website that talked about HOCD, which matched my condition. At first, I thought I was in denial! That website relieved me for a month and a half, until now. Well, two weeks ago, HOCD came back again. It comes and goes. I don’t know why. Sometimes, I feel totally heterosexual, while other times, I have doubts. It’s strange. Is this actually HOCD? Thanks!
Hannah: Neither Jackie nor I can diagnose you– you need to see a professional for that– but everything you are describing (including the “it comes and goes” and “I have doubts” and the fact that you were “relieved”) sounds like HOCD. Read up about HOCD and try ERP. Since you have already talked to your mom about this, it sounds like you two have a good, safe, close relationship. Explain to her about ERP therapy (and if you don’t know about it, go to http://www.jackieleasommers.com/OCD and read, read, read!) and ask her to help you meet with an ERP specialist.
Anonymous asks: I always have the impulse to look at girls butts and boobs and check if I’m “turned on”,did you have that problem when you had HOCD?
Hannah: Absolutely. I think this is probably THE most common compulsion for those of us with HOCD. In exposure therapy, you will need to stop the checking. It might sound impossible on the front end, but so many people suffering from HOCD and other types of OCD have done this successfully and now lead happy lives.
Anymous asks: Hey, your probably not gonna answer since this was a long time, but I have liked boys my whole entire life. I was always and happy and confindent with my sexuality. Im scared for my future especially since I am young and I want a husband and kids one day. I constantly look at people blogs, forums, support group pages because I feel relief im not alone and helps calm me down. I dont hang out with my friends or go outside anymore. I know deeply im gay. This fear all started when I was watching tv and saw 2 of the same-sex kissing and then the thought “am I gay” and started to panic. I cry almost everyday because i just dont want tl be gay ever. Anyways I did have intrusive thoughts like “your gay” every single day but I just let it be there. I don’t have intrusive thoughts anymore but it’s like im still scared to be gay. Im not bothered by the thoughts anymore which scare me. I still don’t want to talk to my friends or go outside, because when I went to instagram and saw a girl that was pretty and I had this feeling in my chest I don’t know what it is but I started to have a pabic attack. Then I would constantly ask myself ” wouldn’t I have liked girls when i was younger” or ” All my life I never liked girls and I only liked boys so why am I so worried. I don’t wanna be gay. But. Anyways I’ll start asking my questions. Is it possible to just become gay by a thought? …
Hannah: No.
 … Does it mean im gay because my intrusive thoughts are almost gone but im still worried to be gay? …
Hannah: No.
… I used to like this boy but now I don’t feel as attracted to him like before. I feel like my attraction for boys is gone. Does that mean I turning gay. …
Hannah: No.
… Thank you if you do answer and btw I am 15 years old and a girl. Sorry if I have grammar mistakes. I just don’t want to be who I was before hocd. I don’t want to be scared to go outside or go on some social media because I might see a girl. Please help.
Hannah: The best help for HOCD is exposure and response prevention (ERP) therapy. Every OCD expert will tell you the same (note: I am not an OCD expert, but I still agree!). Take deep breaths and learn as much as you can about ERP. Then either find an ERP therapist or get a book written by an OCD expert that will guide you through doing ERP on your own. Jackie will link resources below.
Thanks, everyone! Great questions! Keep ’em coming!
Hey guys. Jackie here again. I want to thank all of you who posted such good questions, and I especially want to thank Hannah for generously taking the time to answer them all. As Hannah mentioned, resources follow. The very last link two links are for alternative ways to do ERP without meeting with a therapist.

Up/Down

Hey peeps, hope you had a lovely Independence Day weekend! I sure did. I was able to rest and read, plus I put in lots of hours of writing.

I’ve had a lot of UPs lately:

I feel good about my novel outline. I’ve been enjoying writing and doing it regularly. Work is going great. I actually had an amazing and productive day yesterday that reminded me how much I love my job. My friends are so lovely, and so is my family. I had a heart-to-heart with my daddy. My coworkers are so fun and smart and terrific. My fingernails are a pretty pink.

I’ve had a couple DOWNs too:

There is a mouse somewhere in my house who is smarter than my EIGHT traps. There was a storm last night in which my city got three inches of rain in 45 minutes, and some of the rain found its way into my basement. I was not exactly loving homeownership last night, but thankfully, my roomie knew what to do. I have at least one morning each week where I wake up in a depressive funk that is unexplainable except for brain chemistry.

But that’s life, right? I’m feeling good and grateful, and I feel full of ideas and drive (usually) and feel like a sponge with all that I am learning (book research FTW!). I have a long way to go toward my ultimate goals (writing/health/work/etc.), but I’m on the road.

Wave as I drive past!