end of an era

Last week, I ventured to the Fairview Medical Center at the University of Minnesota to see my beloved psychiatrist Dr. Suck Won Kim for the last time before his retirement.  Dr. Kim is a skinny Korean man with salt-and-pepper eyebrows and sharply combed hair.  I met him first in 2008 when, after years of failed prescriptions, my old psychiatrist essentially threw in the towel and referred me to Dr. Kim, a national expert on OCD who has seen over 3,000 OCD patients.

The first time I met with Dr. Kim, he asked me about what meds I had tried.  And when I had told him, he resolutely said, “No more of that.  You are done with that.”  And he started me on Effexor XR, which I am on to this very day.  Dr. Kim spoke with such confidence that I had felt confident.  I remember thinking, I think this might actually work this time.

But Dr. Kim wasn’t done after he wrote out the prescription.  He turned to me and said, “Cognitive-behavioral therapy.  Tell me, have you heard of it?”

I had.  Horror stories.

“It’s the best treatment there is for OCD.  I’d like you to call Chris Donahue and get an appointment.”

“Okay.”

“It will be hell,” said Dr. Kim, telling me what to expect.

And it was– but it set me free from the reign of OCD.  And that is why I was feeling sentimental as I sat in the office of this OCD genius for the last time, feeling cheesy but needing to tell him that he was one of my heroes.

feels like another life

Date: Wed, 27 September 2007
From: Jackie
To: Eir

please pray for me, honey.

i’m nervous again that i’m not saved. or that i did something in the wrong order.

it feels silly to me, but also serious, if that makes sense.

i need to relax.  any Truth you want to speak to me would be great and welcomed.

love you muchly,
jackie lea

 

From: Eir
Sent: Wed 3/28/2007 12:13 AM
To: Sommers, Jackie L

honey,   “For I am convinced that neither death nor life, neither angels nor demons, neither the present nor the future, nor any powers, neither height nor depth, nor anything else in all creation, will be able to separate us from the love of God that is in Christ Jesus our Lord.”   LORD GOD! I thank You that You are a God who is DETERMINED and that salvation is YOUR doing, not ours. Please help Jackie to rest in Your character, God! We can NOT do anything to make you not look at us and still want us to belong to You.   I love you, jls! I see SO MUCH spiritual fruit in your life! I believe FOR you that you are saved and belong to a God who has chosen you as HIS and transformed you.   GOODNIGHT!

A Night to Believe 2012, Part One

I am so excited to announce that I will be reading an excerpt from my novel, Lights All Around, at “A Night to Believe” next month, culminating OCD Awareness Week!  I emailed today with Michael from the International OCD Foundation, and they are purchasing my flight to Boston and two nights in the Sheraton.  I am beyond thrilled to attend and SO excited to share part of my story with the OCD community.

Thank you to everyone who voted for my submission!  I will update again after the event … which I am nervous about (a little) … reading the excerpt will be an exposure in and of itself.  Nothing like ERPT right in front of a crowd, eh?  🙂  I think I am up to it.

Is anyone else from the blogosphere going to be at this event?  I’d love to meet you, if so!

back to summer camp

So, I know that on June 1st I said I would not be returning to my beloved camp this summer, but plans changed.  A few weeks ago, my friend Aaron sent me a text asking if I would be willing to serve as a counselor for Last Chance camp over Labor Day weekend.  Since my heart had felt the absence of time up there, it was pretty easy to twist my arm.  My roommate Desiree and friend Ashley went up too, as well as my brother and a TON of great friends.  It was fun to look around at the other counselors and see so many wonderful camp friends– there is just something special about the people you’ve spent time with under the pines in northern Minnesota.  If you don’t know what I mean by that, I’m sorry for you. 🙂

Anyway, it was a wonderful weekend, even though I forgot all my OCD meds.  Stupid, stupid, stupid!  I took Benadryl at night so that I could sleep without my Risperdal, but in the afternoons (when there were no planned activities), I could feel my spirits sag.  But I survived.  And laughed a LOT, so much that I lost my voice for a day.  Kinda love that.

In other news, I have continued to apply for writing contests and stuff, and I found out that I won a week-long writing retreat in December.  I’ll get to spend a week in this arts retreat house, focusing strictly on my novel, and I can’t wait!

More news: I discovered the band Mew last week.  They are from Denmark.  I like them a lot.  I have been reading a bunch and buying books faster than I can consume them (but what else is new?).

Life feels really good right now.  I feel like God is unleashing blessings on me, and I am praying that I will praise Him regardless of any of it.  My primary goal in life remains to stay connected to my Savior at all costs.  I am so glad that He is a pursuing God.

Okay, off to write some more!  Some book reviews coming up soon!

What about you?  What have you been up to lately??

“Tipping Point,” my entry

If you like what you read below, then please mosey over to http://www.ocfoundation.org/awarenessweek to vote for my entry!  Voting closes on September 7th, so please don’t wait!!

That Saturday, I went to cognitive-behavioral therapy like a disgruntled cobra, noticeably agitated, ready to strike.  I shifted uncomfortably with each of Dr. Foster’s normal questions and answered in short, sharp responses like a fence made of spikes.  “Is there something wrong?” Dr. Foster asked, setting down his legal pad on the coffee table between us.  He folded his hands in his lap, and I despised him.

“Yes,” I said, my face on fire.  “I can see where this is going, and I don’t think I can do it.  And if I can’t do it, if I’m going to fail anyway, then I want to stop now.”  I crossed my arms across my chest; then, realizing it probably made me look childish, clasped my hands in my lap instead.

He leaned back in his seat.  “Where do you think this is going?”

“You’re going to ask me to swear at the Holy Spirit.”  I could not meet his eye.  My mind raced as it recited its usual mantra—Father God, I love You; Father God, I love You—my talisman against blasphemy.

“Maybe,” he said.  “But not this week.  Can we focus on this week first and cross other bridges when we come to them?”

I snorted out a shock of air.  My right leg began to shake, which thoroughly annoyed me.  “What’s the point if, in the end, I can’t finish the job?”

“You don’t know that,” said Dr. Foster quietly.

“I know that,” I countered as my voice climbed higher.  “I’ve considered it, and there is no way I can do that.”

“I think you should just focus on your current assignment.”

“I can’t,” I said.  Didn’t he understand that there was no point to torture if the end result was not healing?  “All I can think about is that this is the next step.”

“Well,” said Dr. Foster, leaning forward, “I’m not actually sure we’ll need to get to that point.”  I looked at him, sideways, warily.  “I’m not.  I’m seeing how things go.”  I swallowed.  Outside his window, the sunlight battled hard behind the cloudy sky but couldn’t break through.  “For now, when you have your intrusive thoughts, I’m asking you to try to embrace them.”

I can’t,” I repeated.  “I can’t think—that—toward the Holy Spirit.  I really can’t … and I think that might be the community standard in my church.”  I was using his own terminology as a spear, frantically poking holes.  What had I been thinking, attempting CBT in the first place, which was shaping up to be the equivalent of toying with an afterlife toggle?

“Then,” he said, “what I want you to try is this.  When you have an intrusive thought, I want you to think, ‘My OCD is making me think’—he held out his hands—“‘this’—whatever it is.  And name it.  Say it in your head.  It’s a step removed from what I’d like you to be doing, but it might work for you to approach it that way.”

I doubt it.  I pressed my lips together, still sitting rigidly.

“Can you try that this week, Neely?  Creeping toward it?”

“I don’t know.”  My voice was like ice shards.

He pointed to one of his wooden coasters, which was sitting on the coffee table between us.  Just like the others, it also had a quotation etched into the wood, this one from from Antoine de Saint Exupéry: “What saves a man is to take a step.  Then another step.”

“What saves a man is grace,” I spat.

For the briefest moment, the corners of Dr. Jonathan Foster’s mouth hinted at a slight grin, but a second later, I thought I must have imagined it.  Except for his eyes.  His eyes looked at me as if he had a secret, as if I’d said something funny.

I hated him in that moment.  My face burned with anger as I stood up to leave.  “I’m not listening to that thing again,” I said.  “CBT has been the biggest mistake of my life.”

“Neely,” he said to my back, “I hope you’ll come back next week.  I’ll leave you on the schedule.”  I did not turn around, and Dr. Foster did not get up from his chair.  I felt only the tiniest pinprick of pleasure knowing that I’d staged a coup.  Resentment piled like an avalanche behind me as I closed the door sharply on a room of awkward, advancing silence.

 

I stopped at my best friend Charlotte’s studio apartment to explain why Dr. Foster was the worst person alive and the exact wrong person for his job.  “I mean, how is someone supposed to confront her biggest battles, her deepest fears, if Dr. Foster cannot even be sympathetic for one minute?  I just want my talk therapist again!  I want her to tut-tut and to pray for me and tell me stories about her babchi and to tell me what’s true and what’s not.”

I seethed about the quote on the coaster and about my rebuttal that men are saved by grace.  “And then,” I said, “he didn’t smile, but he almost looked like he wanted to!  And I just about had a meltdown!  It was like he wanted to laugh at me.”

Charlotte offered her own knowing smile.  “Neely,” she said, “he probably did want to!  He had a lot more self-restraint than I would have.  My gosh.”

“What—what do you mean?”

“You argued with him that we are saved by grace—you!  When your OCD has blinded you to grace!  It was like an atheist saying, ‘Let’s pray’!  Honey, come on, give the man a break.  It was a completely ironic thing for you to say in that moment.  Can you see that?”

I wanted to argue, but I was just so worn out.  I exhaled deeply.  “I still don’t like him.”

“That’s fine,” she said.  “And as your best friend, I will dislike him on principle.”

“Thank you.”

“But,” she said, “if this heals you, I will officially revoke all dislike and fall at his feet in gratitude.”

I couldn’t even crack a smile.  “Char, it can’t.  I’ve already failed.  I’m not even doing it right.”  I put my head in my hands, frustrated.  “I’m supposed to be approaching my blasphemous thoughts head-on, and I refuse.  I’m wasting my time, going through torture for no reason, and I’m just done.”

“Well, hold on now,” she said.  “You say ‘head-on,’ but Dr. Doom said you could side-step, right?  What’s that look like?”

I sighed again.  “It’s where I say—or think, I guess—‘My OCD is making me think blah.’  Fill in the blah with whatever bad thought it is.  Probably cursing at the Spirit.”  Father God, I love You.  Father God, I love You.  Father God, I love You.

            “So why not do it?” she said, glancing at her textbooks.

I ogled at her.  “What?”

“Why not do it?” she repeated, this time looking at me.

“Because it’s blasphemous; because it’s sinful; because it’s unforgivable.  It will condemn me to hell.”  I half expected her to blink her eyes as if coming out of a trance.

“You’re not actually saying those things, though,” she pointed out.  “It’s like, well, let me think … it’s like if I were to say to you, ‘I heard a woman at the mall say, “God is not good.”’  I didn’t actually say God is not good.  I was telling you that a woman at the mall said it.  But at the same time, I was able to say it out loud.”  I continued to stare at her.  “You know?  It wasn’t my personal opinion or even a statement to God, just an observation.”

An observation.  I let the idea roll over my brain.  “It sounds risky.”

“Which is the point, right?”

 

Charlotte had taken most of the venom out of me.  I kept thinking of her summation—how the side-stepping of CBT wasn’t stating a personal opinion or even a statement to God, how it was nothing more than making an observation—and of Dr. Foster, his hands held out, palms up, as if in offering.  “My OCD is making me think this,” he’d said.  “Name it.  Say it in your head.”

But the concept still unnerved me.

Mr. and Mrs. Cook, the newlyweds, invited me over for dinner on Sunday evening.  Stella—her curls somehow managed into a Swiss braid—attacked me with a bear hug that made it seem more like her honeymoon had been two months and not just two weeks.  “Gosh, I’ve missed you!” she wailed.

While we ate dinner, my mind kept flitting back to what Charlotte had said—what Dr. Foster had said as well, only Charlotte so much better.  It’s just an observation.  I ran the idea by the Cooks.  “Okay, this is random.  Help me to think of this right,” I said to them while AJ passed around a plate of baked potatoes.  “If Person A says to you, ‘Person B said you’re an idiot,’ which one do you get mad at?”

“How did Person A say it?” asked Stella, thoughtfully twirling a green bean on her fork, not at all thrown off guard by the arbitrary inquiry.

“Softly, pained, regretfully.”

“Then I get mad at Person B,” she elected.

“You don’t shoot the messenger,” added AJ, looking a little confused.

“Neely has OCD,” Stella said, as if those three words explained everything.

            I am the messenger.  OCD is the one with the message.  The statement—the blasphemy—it’s not mine.  It’s not my opinion.  I am only making an observation about what OCD thinks.  The separation sounded spectacular.

“So—the wedding.  How do you think it went?” I asked, changing subjects.

“Ah, I think this is the part where you two go to the couch to talk, and I stay here to do dishes alone,” said AJ.

“Isn’t he the best?” said Stella, getting up from her seat, then leaning over and giving him a kiss on the cheek.

“The best,” I said, and Stella put her arm through mine and dragged me out of the kitchen into the living room.  It looked like a whole new house since AJ had moved in.  His furniture had replaced hers.  The bookshelves that had been full of Jolie Brightman and Edna St. Vincent Millay were now overcrowded with graphic design books on typography and design theory.  A new large abstract painting hung above the fireplace mantel—a chaotic mix of what looked like various colored bulls-eyes.  The most noticeable difference came when we sat down and a cat the color of ashes jumped up onto Stella’s lap, as if he’d been waiting for her.

“Henry,” explained Stella.  “AJ’s brother took care of him while we were up north and brought him over here last night.  We thought it would take him a while to adjust to living in a new place, but, well …”  She nodded toward her lap, where Henry sat purring as Stella stroked him.  She nodded toward the painting above the mantel.  “What do you think?” she asked.  “My feminist club girls from college got it for us.  It was purchased from an artist who mixes her own colors, applies paint to her breast, and strokes the canvas with it.”

“You’re joking,” I said.

Stella’s eyes were merry like Santa’s.  “I’m not.”  We both laughed.

“You’re married,” I said, a little in awe.  “You’re roommates with a boy.”

“Yucky,” she said, wrinkling her nose, which pushed the bridge of her pink glasses up.  Then she laughed and hit me lightly on the shoulder.  She reached up into her hair and started pulling out bobby pins, letting her curls fall to her shoulders.  Henry looked affronted that the petting had stopped.  “Oh relax, will you?” she said to him.

I sighed.  “I can’t believe you’ve only been gone two weeks.  Behavior therapy has been awful,” I said surprised at my composure.  It shocked me every time that life could return to normalcy.

I explained to her my fear that CBT was a waste if I couldn’t finish it.  “So, Dr. Foster wants me to side-step,” I said.  “That’s why I was asking tonight about shooting the messenger.”

She nodded.  “That makes sense.  So, you’re supposed to say what?”

“That OCD is making me think … whatever.”

“Totally.  Yes.  And this will heal you?”

“That’s the goal.  I’m not convinced.”

“You’ve got to do it, Neels.  I know you can.  This is a great way ‘out’—I can totally see where you wouldn’t want to actually curse toward the Holy Spirit—but if your head is attempting to do that all the time anyway, then just reporting that inclination to God doesn’t seem like a stretch.”

Reporting … I liked her word choice.  It seemed so passive, so mild.  So opposite of blaspheming.  Confidence was building in me.  I couldn’t describe it exactly, but it felt a little like adding weights to the soles of my shoes, as if it would take more than a breeze to topple me.

I am the messenger.  OCD has the message.  I am only making an observation.  I am reporting an inclination. 

The statements kept repeating themselves in my mind, over and over.  And they were making sense.  It all seemed so logical, so black and white.  For the first time in years, I felt like a person with a disorder, a person oppressed, a victim instead of a monster.

After I was home from the Cook household, I went into my bedroom, lay down on my bed, put my earbuds in my ears to listen to the horrid audio track that Dr. Foster had recorded for my exposures.  My hands were shaking, and my face felt tight, as if I would never be able to wrench my jaw open again.  My shoulders were tense and felt thick as slabs of beef.

“Okay,” said Dr. Foster’s voice.  “You wake up and immediately you have a blasphemous

thought.  Something that relates to the Holy Spirit, and you’re thinking something horrible and disrespectful toward the Holy Spirit.  And you don’t do anything about it.”  A familiar cadence, a recognized tone by now.

My chest was as tight as a drum, my heart racing like an executioner’s drumroll.  It was that familiar feeling of alarm.  I stared at the ceiling, my heart thumping in my chest, and when the thought came, I altered it slightly.  Very slowly, as if I were watching each individual letter be typed on the ceiling, I thought, My OCD … is making me think … “fuck You” toward the Holy Spirit.  I swallowed hard.  Had it been wrong?  Was it unforgivable?  God, don’t shoot the messenger.

Dr. Foster’s voice droned on.  “You don’t say a prayer; you actually say, ‘I’m gonna take that risk.’  You say, ‘Fuck it.  I don’t care.’  And this stays with you the rest of the morning and sets the tone for your day.”  My OCD…  is making me think … “fuck You, Holy Spirit.”  The room was silent, still, the bed beneath me warm and soft.  The statement—thought as a message from OCD—was the very one that I’d been frantically trying to avoid for years and years.

The audio track continued, but it was in the background for me.  Was I going to hell?  I reminded myself that I didn’t really say it or think it, but that OCD was inspiring it in me.  I felt threatened; the panic remained.  I continued to stare at the ceiling until the track ended.  OCD has the message.  The blasphemy is not mine.

But I fell asleep a lot more easily than I’d have guessed—and my dreams were not troubling, not even memorable.

OCD Awareness Contest Finalist!!!

OH MY GOODNESS!  Friends, I just found out that I am a finalist in this year’s OCD Awareness Week contest!  Will you please vote for my entry “Tipping Point” at the following website so that I can win a trip to BOSTON to read it?!!!  I would DIE OF DELIGHT!  You can vote here: http://www.ocfoundation.org/awarenessweek/

Just click on the vote link, and make sure you vote for me– share this will your friends please!  I have been an OCD awareness advocate for years, and this would be a dream come true for me– to combine writing AND my advocacy in one event!  PLEASE VOTE AND ASK OTHERS TO VOTE TOO!

slavery and freedom

Last Thursday and Friday, I attended the Global Leadership Summit through a satellite site, and it was incredible.  This was my second year attending, and both last year and this year were phenomenal.  Essentially, the Willow Creek Association pulls together a knock-out faculty of world-class leaders to speak; it’s like being smacked upside the head (in incredible ways) each hour.

On Friday, Pranitha Timothy of International Justice Mission spoke about human trafficking and about her work with IJM to rescue many from slavery.  It stirred my blood.  It always does, to hear stories about slavery and freedom.  I want my life to matter, want to do something important for the Kingdom.  I could almost picture myself going into dangerous situations to pull children out of slavery and get them safely back into school.

On Saturday, I met with a college student whom I have known for about a year and a half, a young man who is living in his own personal OCD hell and is ready to break out of it by pursuing cognitive-behavioral therapy.  We sat together, discussing OCD and how hard it was and how no one understands– but also CBT and how it can give him the tools to step from darkness into light.  I told him that in just a short time, he could be free from OCD’s reign, and I realized …

I am an advocate for those in slavery seeking freedom.

I may not be rushing into workhouses to confront slave-owners or holding children in the midst of a chaotic rescue, but I am a CBT advocate, telling obsessive-compulsives over and over and over again that this is the way to freedom.

I still plan to support IJM financially (and you can too at http://www.ijm.org/give), but I realized that my personal rescue missions will look a little different.

eternal life

Price: “Eternal life is not a substance, it is a Person, and it is enjoyed by knowing the Person.  It is knowing God and knowing Christ.”

I remember reading this in college and having something click inside of me.  It’s not about Heaven.  It’s about JESUS.  Which is why my favorite verse is now John 17:3, which says, “And this is eternal life, that they know you the only true God, and Jesus Christ whom you have sent.”

It reminds me that my eternal life has already begun, since I know Jesus now and will continue to know him forever.

For someone who has religious-themed OCD and scrupulosity, this is like a rock beneath my feet.

trusting the creative process

Trusting the whatta?

The creative process.  I don’t know anyone (except for maybe Addie Zierman) who writes lovely first drafts, and that is just fine.  Freewrite, feedback, re-write, repeat: for me at least, this is the model of the creative process.  And every time I get to the “repeat” part, the draft is better.  If you can boil writing into a formula, that’s what mine looks like.  And then one magical day, the “feedback” part says, “Um, I like it as is,” and you’re done (until some agent tells you otherwise).

It’s bizarre.  Writing– this strange, mystical, spiritual experience– is somehow, for me, whittled into show up and write and then do it again.  After enough times, this clunky, staggering, unrealistic, forced, ridiculous draft turns into a piece of art.  I’m amazed by it.

I have not been writing fiction for long.  Fewer than five years actually.  So I am still in the dating stage with the creative process, still a little unsure that it will really work, uncertain that this formula really does add up.  I’ve spent the last four and half years watching it work (consistently!), and yet I still find myself doubting it.

Then I write another draft, and it is that much better than the last one, and I think in wonder, “It really is working!”

Just like any other relationship, I am learning to trust the creative process.  Show up, put in the effort, don’t get too attached, receive criticism, edit, edit, edit, edit, edit … and it will work.

I am posting this reminder TO MYSELF:

Jackie, KEEP GOING.  Write and keep an open dialogue with those who care about your project.  It will come together.  If it has come this far in 8 months, think of where it will be a year from now!  The creative process WORKS.  It can handle your doubt as long as you keep showing up.

Will you please leave me an encouraging comment?  I could sure use one right now.

an audiobook controversy

I am a fan.  A huge fan.

I travel a fair amount for work to exotic places like South Dakota.  (JK– I love South Dakota, but exotic it is not.)  In any case, when you pair a long car ride alone with obsessive-compulsive disorder, you get nothing but trouble.  I learned early on that if I didn’t give my mind something to chew on during those drives, then I would be submitting myself to OCD attacks.

I read Perelandra by C.S. Lewis while driving 75 MPH down I-29 from Watertown to Sioux Falls.  And when I say read, I mean read, my eyes flickering every two seconds between the page on my steering wheel and out the windshield.  I know, I know– it’s terrible, and it was so dangerous, and I could have killed myself or someone else.  Praise God I didn’t.

But in the end, my office awarded me the “FOR GOODNESS SAKES, GET A RADIO” award, and I started using audiobooks, the safer and legal version of reading while driving.  Over the years, I have collected a small library of audiobooks, which I listen to rather often since I like to re-read.

Now, here is my question, and maybe you in the blogosphere can help settle a disagreement between my co-worker and myself: is listening to an audiobook the same thing as reading?

I say YES.  Sure, it’s a different format of reading, but it’s still reading.  I think it is fair for me to listen to an audiobook and then tell a friend, “I just read such-and-such book.”  That seems obvious to me.

I cannot understand why my co-worker Josh disagrees.  He said it’s not the same thing.  I don’t understand why it wouldn’t be.  It’s still a BOOK, isn’t it?  How then would you describe your interaction with it?  “I just listened to such-and-such book”?  And if so, what is the difference between saying that and that you read it?

I fear this post is very inarticulate, but maybe one of you readers can help put my thoughts (or Josh’s) into words.  Help?