Did God give me OCD?

Q: But who are you, O man, to answer back to God? Will what is molded say to its molder, “Why have you made me like this?” — Romans 9:20 (ESV)

A: Thanks for asking.  I’m Jackie Sommers.  I guess you could call me a sass-pot. 

Why do we get OCD?  Is it a punishment from God?  Is it a result of the fall of mankind?  Is it completely arbitrary?  Bad karma?  Simply genetic?  Strep throat gone awry?

I believe that my OCD is indeed from God, given to me for three reasons:
1) To drive me to Him.  The times that I have known most intensely my desperate need for Christ have been some of my most OCD-riddled seasons of life.  When I am given something impossible to handle, then I have to turn to Someone bigger who can take it from my weak hands.
2) So that I would use it to glorify Him.  I wrote a novel about an obsessive-compulsive, a book written for the Lord, to use my talents to honor Him.  I think it’s a beautiful picture of redemption to see the way God allowed me to turn my history of OCD into a creative and beautiful result.
2) To help others who are suffering.  Simply put, I would not be able to sympathize with other sufferers in the same way had I not crawled out of those same trenches.  God was with me every step of the way, and I know that it was He who guided me to cognitive-behavioral therapy, of which I am now a strong advocate.

So, what do you think?  Is OCD from God– or is it something else?  Would love to hear your thoughts!

solipsism syndrome, anyone?

Solipsism syndrome is a condition where a person believes that everything she is experiencing is a dream, is inside her head.  She believes that reality is not real.  She believes that others either don’t exist or that their existence can never be proven.

I have been doing a lot of research on SS lately (for a story I am writing, not because I have been feeling this way), and it is fascinating.

In my wildest OCD days, this idea would sometimes come to me in one variation or another.  Some days I would wonder if everything I had “experienced” up until that point was actually a very intricate dream– and when I finally woke up, I would only be a toddler.

I would imagine that everyone who truly entertains ideas like these must either be Pure O or an astronaut.  But what do I know?

Solipsism syndrome is hard to argue with– the solipsist will always win any debate, because in the end, she can simply dismiss you– since, of course, you don’t really exist.  People affected by this obviously become very withdrawn and experience incredible loneliness.  Some people probably think of this idea and can easily dismiss it (it doesn’t feel like I’m living a dream, so I’m just not going to worry about it), but obsessive-compulsives don’t work like that.  We hold on.  We strangle thoughts.  Or let them strangle us.

So, blogging community, here are my questions for you:
* Have you ever experienced anything like this?  What was it like for you?
* What helped you to feel less alone?
* Care to share some experiences?

Because SS is not recognized as a psychiatric disorder by the American Psychiatric Association, I am relying on human experiences for much of my research!

 

Who is Jackie Lea Sommers?

I know my dear friend Ashley loves my blog– but she also knows and loves ME.  She suggested the other day that I let my blog followers in on who I am.  Sounds like a marvelous idea.

The details: Jackie Lea Sommers, 30 years old, as single as a girl can be.  I live in a suburb of Minneapolis, Minnesota, and I grew up in a small town of ~700 people.  I’m the recruitment manager at Northwestern College, the most wonderful Christian university in the world.  I’m also a proud alumna.  My degree is in English-writing.

 

I live with Desiree.  She is a math geek.  We are like yin and yang in that way.

 

My family includes my dad and mom, my sister Kristin, my brother Kevin, and Kevin’s girlfriend Samantha (who is essentially a part of our family!).

 

I am passionate about a handful of things: Jesus Christ, people, and writing & literature. 

Jesus: my REASON FOR LIFE, my gravity, my Rescuer.  Jesus is the lens through which the rest of my life makes sense.  I am so proud of my Savior, so proud of the cross.

People: so many wonderful people in my life … camp friends, college friends, favorite students at Northwestern, kiddos I’ve met through years of youth ministry, plus Emma, Ava, and Elsie, my littlest loves.

Writing/literature: I love to read, but I LOVE to write.  I finished my first novel this January, after working on it for nearly four years.  It’s a story about a girl with OCD, and it draws heavily on my own experience with OCD.  And now I am working on my second novel!  Favorite books:

yes, I really do have a wardrobe in my living room that functions as a life-size diorama of Narnia … nerd alert!

Chronicles of Narnia by C.S. Lewis, Peace Like a River by Leif Enger (whom I had lunch with this month!), The Book Thief by Markus Zusak, all poetry by Billy Collins, and (new!) The Fault in Our Stars by John Green.

What else would you like to know about me?

 

medication is scary, part two

It took me approximately five years to get on the right medication.

Over the course of the five years, I experienced the following:

* rapid weight gain (30 pounds in one month)

* deep lethargy, during which air felt stale and I had to nap for 2+ hours every day after work

* mind vomit (a phrase I coined, meaning that taking the medication exacerbated my OCD, sending me into frenetic, panicked obsessions)

* a visible tremor

* drymouth, as stanch as if I were eating Saltines and peanut butter

* dizziness and vision loss, usually paired together (One time I had a whole conversation with someone without telling him I couldn’t actually see him … I hope I appeared to be looking him in the eyes.  The dizziness/vision loss combo happened so often that I actually got used to it, could continue walking across my apartment without even slowing my step.)

* Jello-legs, so terrible that I had to lean against the stairwell wall as I descended from my second-floor apartment

* excessive sweating

* lactation (you think I’m kidding, but I’m not)

* a spasm of pain in my back that once DROPPED me to the floor like I’d been tackled from behind

* an allergic reaction that nearly killed me (please, PLEASE do not take new meds unless you have Benadryl in your home!)

And then along came Dr. Suck-Won Kim, my sweet, wonderful expert psychiatrist, who got me onto my perfect dosage of Prozac, Effexor XR, and Risperdal.

And want to know what?

It was all worth it.

freedom begets freedom

When I first decided to “go public” with my OCD, I was sincerely terrified.  I think it was 2006, and I was asked to share my testimony with the campers at a week of 9th and 10th grade Bible camp.  My family and closest friends knew about my OCD, but it was hush-hush among everyone else.  The night I publicly told a group of people about my OCD, I was so scared that I thought I was going to throw up or fall apart.  There is no going back.  Once you tell people this, you can’t make them forget you’ve said it.  They will always treat you differently, look at you differently.  You will lose friends tonight.

Instead, what happened was that a long-time friend ended up sharing with me that he too struggled with obsessive-compulsive disorder.  He was so ashamed of it that he hadn’t even told his own family.

Honest sharing from one person draws out honest sharing from others.

In other words, freedom begets freedom.

I have seen the truth of this over the last six years.  The more vocal I am about OCD, the more people seem to come out of the woodwork: I struggle with that too; my friend is an OC and I don’t know what to say; I never knew that it was OCD until you described it that way.  They want to know the next step, they want to know there is hope, that they are not alone.

And they are certainly not alone.

“OCD is the fourth most common mental disorder, and is diagnosed nearly as often as asthma and diabetes mellitus. In the United States, one in 50 adults suffers from OCD.” (Wikipedia)

But we find one another by saying it outloud.  OCD.  I have OCD.

And then there is the response: I have it too.

And we begin to steal back power and control.

These days, I drop those three little letters into conversation pretty much any chance I get.  I am not ashamed of it or nervous to tell people I am an OC.  I am only hoping that my freedom will beget freedom.

I have OCD.  What about you?

like finding a friend

Well, I did it.  I finished writing my first novel.  It took me just short of four years to write, rewrite, revise, rewrite, edit, polish, and complete my book, Lights All Around.  (You were wondering about the blog title, weren’t you?)

Lights All Around is a story about 26-year-old Neely Jane Richter, an obsessive-compulsive undergoing cognitive-behavioral therapy, and my own 20-year struggle with OCD informed my writing.  While I hope that this book will be helpful for non-OCs to understand OCD, I have always intended that the primary audience be those who struggle with OCD themselves.

OCD can be incredibly alienating, and I want my story to be like finding a friend.

In fact, that is exactly how I felt when I first read the book Kissing Doorknobs by Terry Spencer Hesser.

This book, although intended for a young adult audience, was HUGE in my life.  Reading it and identifying with Tara, the protagonist, was like finally having someone put into words what I’d been experiencing for years.  I recommend this book to OCs and everyone who loves an OC.

I guess what I am trying to say is that I hope my story will do the same.  It’s intended to be a companion.  I hope you understand what I mean.

 

 

Christmas isn’t fun for everyone

My roommate is a Christmas fanatic– every year, she chooses one day after Thanksgiving where we pause everything else to put on some Christmas music, drink hot cocoa, and decorate our apartment.  Every Christmas decoration in the entire apartment belongs to her.  Well, time out, I guess we each paid half for our little four-foot tree.

Desiree has this entire Willow Tree nativity set, as seen below.

Can you picture her as a senior in high school, eagerly opening up each element of the scene?  It makes me laugh– but in a good way!  Des is the sweetest girl ever, and this is a great metaphor of each of us.  Des is “steady eddie”– not that she doesn’t have her own issues to deal with– but she is strong and caring and clean and a good cook.  And then there’s me, a tornado who is still learning how to take care of herself.

Christmas is an interesting time for me– to be honest, I am learning to enjoy it.  Growing up, it was a very difficult time of the year for me.  Picture Minnesota in the winter: it gets dark so early, there’s usually piles of snow, and the temperature is below freezing– sometimes dangerously below.  It’s like a dream location for seasonal depression.

And then, with OCD stacked on top of it, pretty much everything about Christmas was a trigger: my mind would race with thoughts of whether I believed in God, and if He was real, if He had saved me.

There is an image of me that we still have somewhere at my parents’ house– me, hovering somewhere around 17-20 years old, with this look at the camera.  I can remember exactly what I was thinking in it.  I was looking at the camera and asking my future self, Are you okay yet?  I hope you don’t feel this way still.

These days, I can answer my past self, I am better.  I am healthier.  And no, most days I do not feel that way.

Praise GOD!  Thank You, Jesus, for cognitive-behavioral therapy.

So tonight I’m thinking about different kinds of folks– I know there are some– actually, MANY– who are like Des, yearly filled with holiday cheer, basking in the glow of the Christmas lights, huddled comfortably around the tree and the nativity scene.  But there are others who spend their holidays the way I did– filled with doubt (laced with the tiniest bit of hope), depression, confusion, and sickness– and all while feeling that instead, they really ought to be happy.

If you are in the second camp, I hear you.  I’ve been there.  This prayer is for you:

Jesus, I celebrate You– I celebrate Your marvelous incarnation, the Word becoming flesh.  Tonight, Lord, I lift up to You all those who are burdened with heavy, laboring hearts this season– whether from depression, anxiety, mental illness, or internal crisis.  YOU ARE STRONG ENOUGH TO HOLD US ALL.  Just as that first Christmas was the initiation of Your inexplicably great rescue plan, I pray that this Christmas will be the start of Your new rescue mission in the lives of these sufferers.  You are Love.  You are Truth.  You are the mighty redeemer.  I entrust my heart to You and ask that You would hold those for whom I’m praying– in a way that is felt.  Amen.

I boast in the cross.

I give the credit for my rescue from OCD to Jesus Christ alone, and I believe that CBT and medicine and doctors were the tools He used.

Tonight I listened to a sermon online given by John Piper of Bethlehem Baptist Church, right here in Minneapolis.  He was talking about something that won’t make sense to some:

“[F]or redeemed sinners, every good thing–[and] indeed every bad thing that God turns for good–was obtained for us by the cross of Christ. Apart from the death of Christ, sinners get nothing but judgment. Apart from the cross of Christ, there is only condemnation. Therefore, everything that you enjoy in Christ–everything you boast in, everything you exult in–is owing to the death of Christ. And all your exultation in other things is to be an exultation in the cross where all your blessings were purchased for you at the cost of Christ’s life.”

Essentially, if I follow the path of blessings back to its source, there I will find the cross–the death–of Jesus Christ.  Because the death of Christ was an act of grace, an act of rescue.

I am grateful and blessed and pleased to be free from the clutches of obsessive-compulsive disorder.  In doing so, I am exulting in the cross of Jesus.

As Piper said, “[Being dead to the world] means that every legitimate pleasure in the world becomes a blood-bought evidence of Christ’s Calvary love and an occasion of boasting in the cross.”

how CBT helps me to see clearly

OCD-related blogs I have been reading:

http://www.pureocanuck.blogspot.com/
http://www.lollyshope.com/
http://ocdtalk.wordpress.com/

The other day, there was a post on Lolly’s Hope that seriously could have been written by me, only a couple years ago.  It told how she was nervous that she’d been rude to the secretary at the doctor’s office and was wondering if she should call back and apologize.  OCD induces such confessions and apologies that are not necessary, simply because the obsession causes such PANIC, and the confession/apology temporarily alleviates that panic.  Your heart will be racing, as well as your mind, believing that things must be solved NOW and that you are going to feel this terrible panicky sensation UNTIL things are solved.  That’s why most of us give in right away.  Heck, I’m the girl who emailed Caribou corporate because my barista gave me a 10-cent discount and I felt guilty as all get-out.  Ridiculous, right?

Yes.

I’ve been reading things from people at all different stages– people who have never heard of CBT/ERP (cognitive-behavioral therapy/exposure and response prevention), people who are undergoing it now, and people like myself– who have gone through that hell, survived it, and are HAPPY on the other side!

I can see clearly now that I’ve undergone CBT.  I am a huge proponent of it as THE BEST TREATMENT THERE IS FOR OCD.  Yes, it is one of the most difficult things I have ever done, but God has given me my life back through it.  It was all worth it.  And the eyesight of my head and heart is 20/20 again!!!

 

 

 

 

 

 

 

 

 

 

 

 

 

Image credit: See Clearly

I am thankful for …

Jesus Christ’s death and resurrection

chocolate               internet       dear friends                                 

                 mom, dad, sister, brother                      Risperdal

             goals               Northwestern College        Harry Potter

C.S. Lewis           cognitive-behavioral therapy          

           freedom in its various forms            life            hope

the joy of writing     hilarious co-workers      YouTube             

NARNIA                     laughter        inside jokes                        

        attractive men who love Jesus            

soundtracks           cologne               Minnesota         

                                       small towns and big cities           

spring                     summer               fall            (gulp) winter

         awkwardness             youth ministry        babies            

sarcasm                Trinity City Church                   etsy              

conversation              silliness         dorkiness             

books                     audiobooks          

God’s rescuing me from hell and OCD