A Detailed Post about ERP

ERPI have written many times about Exposure and Response Prevention therapy, and lately, many people have been contacting me for more details about it, especially how they can do ERP on their own from home.

GIANT DISCLAIMER:
I AM NOT A THERAPIST.  NOT EVEN CLOSE.  

I am an obsessive-compulsive 31-year-old female who successfully underwent a twelve-week ERP experience four and a half years ago.  I say “successfully” because at the end of the twelve weeks, I then spent the next year and a half without obsessions or compulsions.  (Can you even imagine?  It sounds like a different life, right?  It was.)  In the three years after that, I have only had a handful of obsessive bouts (probably fewer than five), which I have been able to manage well with my ERP tools and which didn’t last longer than one day.  You can gauge for yourself if that sounds like success to you.  For me, it has been like happy freedom after spending twenty years in slavery to OCD.

With all of that said, I’m going to give my very best advice in this post.

SKIP TALK THERAPY AND PURSUE EXPOSURE AND RESPONSE PREVENTION THERAPY.  Talk therapy (where you spend an hour with a therapist discussing your problems) can actually, in some cases, perpetuate your OCD, especially if your compulsions include confession and seeking reassurance.  Your talk therapy sessions will essentially become one-hour opportunities for you to confess to your therapist and seek reassurance from him or her.  That is the opposite of what you want to do.

FIND A COGNITIVE-BEHAVIORAL THERAPIST WHO IS SKILLED IN ERP.
Begin by asking him or her questions about the techniques they use to treat OCD.  If the therapist doesn’t mention cognitive-behavioral therapy or exposure and response prevention therapy, keep looking.  You don’t want to waste your time spinning your wheels with someone who doesn’t know how to do exposure therapy.

WHAT WILL USUALLY HAPPEN IN ERP:
Your therapist will begin by asking lots of questions to get a real understanding of your OCD.  Remember, there are several different kinds of OCD, and in order for your therapist to really mold your treatment plan around you as an individual, he is going to need to ask for lots of details.  If it seems like he is zoned in on what will cause you the most anxiety, you’re probably right.  In ERP, your therapist is looking to trigger your anxiety and then prevent you from doing anything to alleviate that anxiety.  (Good times!)

You will probably create a fear hierarchy, a list of various things that would cause you intense anxiety.  Then you’ll probably start with the least scary item and work your way up to the top.  The top item on your fear hierarchy will probably seem IMPOSSIBLE.  Continue anyway.  By the time you actually get to that item, ERP may have already re-wired your brain enough to be able to handle it.  I need to repeat: focus on the item you’re at, even though the temptation is to stress about the next, scarier item.  Your therapist is not going to force you to do anything, and it’s going to be a better experience for you if you simply focus on each individual day and what you have to do that day.

Your exposures will be specific to you, though, in general, if you have contamination fears, you will probably have to interact with things that you deem unclean (in fact, probably with things that really are!).  If your OCD is more concerned with order, you may be asked to sit with things out of place.  If you have HOCD, you may be asked to read LGBT literature or to look at scantily-clad members of your same gender.  If you have harm thoughts or other anxieties that you’re not able to actually expose yourself to, you’ll likely need to do imaginal exposures, which may involve writing graphic stories and then reading them or possibly recording the story and listening to it on repeat.

If you’re doing this on your own (and are not guided by a therapist), I recommend doing the recording.  It was more anxiety-inducing for me to listen to a recording than it was for me to quickly read over the story I had written.  Make the story bad– the worst things you can imagine.  And perhaps opt to use lots of details: instead of just using large, blanket statements like “I am thinking a blasphemous thought, and I will go to hell for it,” try “I think of cursing God, and I know I will go to hell, where I will be lost and alone forever.”  Describe it.

The first time you do your exposure, keep track of your anxiety level, 0-100, where 0 is no anxiety at all and 100 meant you were clawing at the ceiling.  Then, every time you do your exposure, rate your anxiety level at the beginning, middle, and end of it.  Keep doing that exposure until your anxiety level is half of what it was when you first started.  Then, you can probably move on to a higher, scarier exposure on your fear hierarchy.

If your exposure (when you start it) is not causing you much anxiety, then chances are you have something a little off.  You’ll need to talk to your therapist or think through your exposure to see if you’re hitting the nail exactly on its head.  (I read a story once where the OC thought her obsession was one thing, say, worrying that she would hurt her child, but the exposures weren’t causing intense anxiety, so she and her therapist took a closer look at it, and together they realized that her actual, larger fear was that she would never know if she would hurt her child … similar but a little different, enough that they changed her exposure to fit better.)  If you have been doing your exposure for a while and the anxiety levels are dropping, then that is a good thing, my friend.  That means that ERP is re-wiring your brain correctly.

Keep all your anxiety ratings in one place so that you have a visual representation of how ERP is working as you watch the anxiety levels drop.  It may be a while before you start seeing a downward movement.  That’s okay.  Keep going.  In my experience, my anxiety levels didn’t start to drop until about week ten.  After that, they plummeted quickly.

ERP is a scary experience, so I do recommend paying the money to see a therapist IF you can afford it and IF the person is well-trained in exposure therapy.  If you decide to create your own ERP experience, buy a book that will guide you, such as Stop Obsessing! by Edna Foa or Freedom from Obsessive-Compulsive Disorder by Jonathan Grayson.  Talk to your friends and family ahead of time and spell out for them what your compulsions are, asking them to not aid you in these, even when it is difficult.  It may be helpful for you to tell them that aiding your compulsions is akin to them being on Team OCD instead of Team You.

Many people choose to pair ERP with medication.  I did.

I spent fifteen years with OCD before I was diagnosed, then another five before I began ERP.  That was twenty years that OCD stole from me, so when I began ERP, I essentially knew it was my last hope, short of some supernatural miracle.  You might not be mentally in that place yet, ready to put your nose to the grindstone and make it happen.  You’ll know when you’re ready.  Just know this: most obsessive-compulsives I talk to who have gone through ERP say their big regret is not pursuing ERP sooner.  ERP is hard … but it is not (not-not-NOT) harder than living daily life with OCD.

And what is happening while you go through these exposures?  I meant it when I said that your brain is being re-wired.  In this therapy, the brain changes, allowing an obsessive-compulsive more room to live with uncertainty (the root of it all).

ERP gave me back my life.  I am happy again, have joy again, love life.  I no longer fight a daily battle with my own mind.

Related posts:
OCD, ERP, & Christianity
ERP & Imaginal Exposures
Preparing for ERP Therapy
Medication vs. Exposure Therapy
All About CBT

Medication vs. Exposure Therapy

meds vs erpI have always been honest about my personal experience with OCD on this blog.  Faithful readers are well aware of my mama-bear protective instincts in regard to my medication.  I take Prozac, Effexor XR, and Risperdal each day and am utterly unapologetic about it.

That said, I completely understand that others have their own reasons (personal, medical, or otherwise) for avoiding medication, and that is perfectly fine by me (so long as no one tries to rob me of my meds, haha!).

People sometimes ask, Is it possible for me to treat my OCD and avoid medication all together?

While the answer varies from person to person, the best response I can give is that YES, it has been done with ERP (exposure and response prevention therapy) alone.  In fact, were I pushed to choose between my three daily doses of meds or my 12 weeks of ERP, it would be one of the easiest decisions of my life to choose ERP.

Every person is different.  I have an obsessive-compulsive friend who treats her OCD with only meds– she has never undergone ERP.  The son of one of my blogger friends uses only his tools gained from ERP– no meds.  Then there’s me, a girl who wants(/needs?) a full arsenal to treat her disorder.

So, what will it be for you?

The best treatment is ERP, hands down.  Start there.  See how you do.  If you can find an OCD specialist whom you trust, you may try to fold meds into the mix if you find that you need them.  It’s (unfortunately) a trial-and-error kind of thing.

Will you be okay without meds?  Maybe.  You’ll have to discover that for yourself.
Has it been done before?  Absolutely.

Hope that is helpful!

Narnia and Uncertainty

In my lowest OCD years, uncertainty appeared to be my enemy, and I attempted to avoid it at all costs.

It was a losing fight since we cannot. avoid. uncertainty.

Now that I’ve switched teams and am an official cheerleader for uncertainty, I notice it in the positive sense now.  No longer the terrifying stranger, creeping around the corners, I now see it as the exciting flash of risk stealing a smile my way.

“I know what it is,” said Peter; “it’s a beaver.  I saw the tail.”

“It wants us to go to it,” said Susan, “and it is warning us not to make a noise.”

“I know,” said Peter.  “The question is, are we to go to it or not?  What do you think, Lu?”

“I think it’s a nice beaver,” said Lucy.

“Yes, but how do we know?” said Edmund.

“Shan’t we have to risk it?” said Susan.  “I mean, it’s no good just standing here and I feel I want some dinner.”

For twenty years, I feared uncertainty.  And Susan was right: it was no good just standing there.

P.S. The risk was worth it, and dinner was great.

beavers

Just One Dose

I had such a hard day recently– my anxiety levels were higher than usual (“usual” being not too bad for the last four years– thanks, ERP!).  I felt this strange depression, a strong desire to sleep, and a hovering sadness that wouldn’t lift.  My blood pressure felt through the roof, and the stress took a very physical toll on my body: by the time I crawled into bed for the night, my shoulders felt like cement blocks and my arms were throbbing with pain.

I realized that– while racing out the door that morning– I had not taken my Effexor XR or my Prozac.

Just one dose missed, and it was so terribly evident.

I have acknowledged that I may be on medication for the rest of my life, and I’m okay with it.  In fact, I’m quite protective over my right to take medication.

I read this awesome related post on the OCD Foundation’s blog recently.  And it turned out that Alison, the blogger, lives in Minneapolis … so we got coffee.*  Love my OCD community!

* And since then, we’ve accepted new roles at the Twin Cities affiliate of the International OCD Foundation (I’ll be the communications director)  … and have an event planned in Minneapolis for OCD awareness week!  Exciting!

prozac morning

In the Moment: the Flipside

I have blogged before about talking to people when they’re in the midst of an obsession.  Other people.  In their obsessions.

Tonight, that’s me.

It feels surreal, friends.  I am reading over my own words of hope and trying to take comfort in the fact that I have tasted freedom and that, while it has slipped from my hands tonight, it has not left the room.  I feel (mostly) confident that I’ll corner it soon and snatch it back.

My OCD has been so well-controlled for the past four years that I’ve almost forgotten what these moments feel like.  It is different to remember the trench from the ledge above.  It is strange and sad and scary to remember the trench from inside it.

I hate it.

I had some intrusive thoughts tonight– blasphemous thoughts.  They don’t come very often anymore, and when they do, I am usually able to use the tools I’ve learned in ERP to walk myself calmly back out of the storm.  But tonight, there was a hitch, a pause, this tiny moment that started to grow.  I wonder if I’m going to hell.

Stop, I tell myself.  You can’t know.  You might go to hell, but it’s not likely.  Not when you love Christ the way that you do, not when you’ve devoted your entire life to him.

But maybe, I think.

I also think, No way.  Can. Not. Go. Back.  I won’t.  I can’t live that way anymore.

Talked to Mom on the phone.  She said, “You sound like you’re somewhere else.  Your mind is occupied.”  It is.

I feel this weird disconnect from reality.  I haven’t let myself slip into hysteria or full-on terror yet.  Just trying to tiptoe past it.

If I was smart, I’d put in a load of laundry and go listen to my ugly old ERP recording.

I think I will.  Wish me luck.

P.S. I’m glad I can be honest on this blog.  And with four years of freedom under my belt, I have such high hopes that it will be back in the morning.  I’m sorry for those of you who can hardly imagine such an easy out.

Will Treatment Change Me?

I recently had coffee with a lovely young college graduate, a writer who has been dealing with intense anxiety, anxiety that has latched onto her faith and forced her into a position of crisis.  We talked about medication and therapy, about how there is nothing to be ashamed of, about how even scripture can be twisted and used against us.

Then she said, “The way my mind goes so quickly?  That’s why I think I can write.  I’m scared that if I start taking medication, I’ll lose that.”

That’s a fear I could definitely relate to!

I told her, “I think just as quickly now as I did before treatment– only now, it’s productive.  Before, my brain was spinning its wheels.  I was thinking in circles, thinking all the time but never really getting anywhere.  Now I can think productively.  I can focus on things that are important.

“I still think deeply– in fact, more deeply in some areas, since I’m no longer terrified of thoughts.”

So, did treatment change me?

Yes, but for the better.

arms

Christian Culture’s (Sad) Response to Mental Illness

It’s in the Title: Mental Illness is an Illness

Salads and sandwiches and a shared mental illness, all of it on the tiny table between us.

“There is help for OCD,” I told her.  “The most effective treatment is cognitive-behavioral therapy.  Between that and my medication, I got my life back.  I know you can too.”  (The evangelical zeal I have for this particular therapy reminds me of the way I love Jesus: both took me from darkness into light, both make me want to throw parades in their honor.)

“Oh, I don’t know,” said my friend, poking at her salad with a fork, sounding hesitant.  “I think before I take any extreme methods, I want to just pray about it more.  I know that God can bring me through this.”

I wanted to say, But you have been praying about this for years!  I also believe God can bring you through this—and I am telling you how.

There is a pervasive and unhealthy attitude in the Christian culture toward mental illness.  Many believe that one should be able to “pray away” a disorder.  Some think that mental illness is, quite simply, spiritual warfare; some think it’s the result of unresolved sin issues.  One of my friends has said before that a real Christian can’t be clinically depressed.  I saw a Facebook status once that read, “Depression is a choice.”

These sentiments light a fire in me, especially for the way that they marginalize a group of people that are often already more susceptible to guilt.  I know that in my OCD hey-day, I felt continual guilt and severe shame; for someone to intimate to me that these feelings were the appropriate ones would only mean that my Christian brothers and sisters were siding with my disorder—and against me.

Mental illnesses are just that: illnesses. 

friendsGod and Satan can work through them just the same way as they could through, say, cancer or diabetes.  All issues are spiritual issues, simply because we are spiritual beings, but it is not helpful to label a chemical issue with a giant term like spiritual warfare.  To say that a Christian cannot be depressed is like saying a real Christian can’t get the flu.  To say that depression is a choice is like saying strep throat is a choice.

If you break a bone, do you get it set in a cast?  If you learn you’re diabetic, do you take insulin?  If cancer steps into your body, do you pursue chemotherapy?

The answer is usually yes.  Yes—and pray.  (Don’t get me wrong: I’m all for prayer!  And for medical innovation!)

That is why I am unashamed of my OCD, my depression.  Instead, I am proud of my God for seeing me through a therapy as difficult as CBT and for being my strength through five years of side effects in the search for the right medication.

Unfortunately, my friend left the sandwich shop that evening feeling obligated to “pray away” a spiritual flaw instead of feeling empowered to fight illness, in spite of my best efforts.  My voice is being drowned out by the multitude of louder voices of the Christian culture, a culture that should be supporting this demographic, not alienating it.

OCD, ERP, and Christianity

ocd and christianityI often hear from obsessive-compulsive Christians asking, “If my OCD is centered around my faith, will ERP still work even if my therapist is not a Christian?”

I’ve written elsewhere about how OCD is an arsonist, setting fires (obsessions) in our minds and how our compulsions are like shortsidedly trying to put out the fires instead of going for the arsonist directly.  You don’t need a Christian cognitive-behavioral therapist.  You just need someone who knows ERP and knows it well.  In other words, you need an OCD assassin.

If you are obsessing about the unforgivable sin or something else faith-related, you don’t need a great theologian to dialogue with you about it.  (In fact, chances are that you’ve already discussed this with all your Christian friends and maybe even a respected pastor.)  After that conversation with the theologian, you’re probably just going to start obsessing again, either about the same thing or something else.  You need someone who can take out the OCD, and yes, I mean “take out” in a sniper kind of way.

“But I’m worried that ERP is just going to cover up my real issues.  I don’t want to just forget about these things.  I want to solve them.”

First of all, you’re misunderstanding ERP.  It doesn’t sweep issues under a rug.  It’s not like you’re brainwashed into believing that life is now perfect.  Not at all!  It rewires your brain so that you can think the way “normal” people do– less circularly.

Secondly, you’re misunderstanding life and faith.  These things aren’t “solvable”– at least, not generally.  Sure, you might be the one person in a million who has God audibly speak to you one day– but probably not.  Life is full of uncertainty.  It’s a FACT.  And faith is about TRUSTING God even in uncertainty.

You need to get it out of your head that you will ever be rid of uncertainty in this life.

Back to the original question …

Your ERP therapist is not going to talk you through theological issues.  That’s not his/her job, and actually, it would be counterproductive to what ERP is all about.

If you can find an incredible cognitive-behavioral therapist who is also a follower of Christ, then yes, by all means, go to that person!  But if healing and health are your goals, then your first order of business is finding someone who knows how to do Exposure and Response Prevention.  You are looking for an OCD assassin, not someone to have tea and Bible study with.

Thoughts?  Further questions?