dare to take off your mask

Here is an article I recently wrote for the student newspaper at the university where I work …

I have obsessive-compulsive disorder.

It is my distinct pleasure to share this with others because I have learned how much freedom there is to gain by sharing my real self.

Years ago, I harbored my secret, held it tight in my fists, knowing that if I released it to the world, I could never go back to “the way things were.”  It would create an unalterable “before” and “after,” and I wasn’t sure I was ready for people’s avoidance (at best) or condescension (at worst).

Instead, what happened was that a long-time friend told me that he too struggled with OCD.  He was so ashamed of it that he hadn’t even told his own family.  Then someone else told me about her struggles with an eating disorder.  Left and right, people started removing their masks.  The more vulnerable I made myself, the more vulnerable others were willing to be with me, and this honesty worked as a glue between our hearts.

Honest sharing from one person draws out honest sharing from others.  In other words, freedom begets freedom.

Frederick Buechner has this amazing quote, which reads, I have come to believe that by and large the human family all has the same secrets, which are both very telling and very important to tell.  They are telling in the sense that they tell what is perhaps the central paradox of our condition—that what we hunger for perhaps more than anything else is to be known in our full humanness, and yet that is often just what we also fear more than anything else.”

For years, I thought I was some kind of anomaly.  I’m not.  I’m just a girl living in a fallen world, and I stand alongside a world of brothers and sisters in Christ who share my same hunger to be fully known and fully loved.

Community matters.  Northwestern, open up your hearts and lives to one another this year.  These early weeks of the semester are exciting ones; I am thrilled when I think of all the possibilities and opportunities stretching out before the student body this year.  Be the kind of grace-filled community that welcomes vulnerability with open arms.  Love each other with the wild love of Jesus Christ, a love that encourages freedom, a self-sacrificing love.

OCD.  These days, I drop those three little letters into conversation pretty much any chance I get.  I am not ashamed of it or nervous to tell people I am an obsessive-compulsive.  I am only hoping that my newfound freedom will beget freedom.

OCD Awareness Week

This is OCD Awareness Week.  It is my great hope that this blog is chipping away at the misunderstandings about obsessive-compulsive disorder.  These are truths I know:

* OCD is a thief.
*
Obsessive-compulsives are not alone or crazy.
* Although there is currently no known cure for OCD, there is an incredibly effective treatment for it– and tools that keep it well in-check!
* The general public still doesn’t understand OCD, which is much more than just being a “neat freak.”
* Obsessive-compulsives are some of the bravest and most compassionate people I know.

Care to add some truths?  Leave a comment!

hearing your story on someone else’s lips

The week after OCD Awareness Week, I am going to be a part of a breakout chapel service at the university where I work.  (I am employed by Northwestern College, the most wonderful Christian college in the world … as an alumnus, I’m a little biased.  Ha!)  I am going to be interviewed by one of the campus therapists, and I am just so eager to tell my story.

I think one of the most helpful things for OCs is to hear their own story on someone else’s lips.

It makes us feel less alone.

I remember my first conversation with another obsessive-compulsive.  I was sitting on a dock underneath a sky of summer stars, and as we talked, it was like shrugging off a giant sheath that had separated me from everyone else.  I was not alone; this person had the same experiences.

And when I read Kissing Doorknobs by Terri Spencer Hesser, it was like reading my own biography.  It stole power from OCD, just reading that, because it showed me how not creative the disorder is … sure, it has a variety of manifestations, but at their core, they are really very similar.

And that is what I am hoping will happen for someone in the audience on October 17th.  For that person to say, That sounds just like me!  I am not an anomoly.

end of an era

Last week, I ventured to the Fairview Medical Center at the University of Minnesota to see my beloved psychiatrist Dr. Suck Won Kim for the last time before his retirement.  Dr. Kim is a skinny Korean man with salt-and-pepper eyebrows and sharply combed hair.  I met him first in 2008 when, after years of failed prescriptions, my old psychiatrist essentially threw in the towel and referred me to Dr. Kim, a national expert on OCD who has seen over 3,000 OCD patients.

The first time I met with Dr. Kim, he asked me about what meds I had tried.  And when I had told him, he resolutely said, “No more of that.  You are done with that.”  And he started me on Effexor XR, which I am on to this very day.  Dr. Kim spoke with such confidence that I had felt confident.  I remember thinking, I think this might actually work this time.

But Dr. Kim wasn’t done after he wrote out the prescription.  He turned to me and said, “Cognitive-behavioral therapy.  Tell me, have you heard of it?”

I had.  Horror stories.

“It’s the best treatment there is for OCD.  I’d like you to call Chris Donahue and get an appointment.”

“Okay.”

“It will be hell,” said Dr. Kim, telling me what to expect.

And it was– but it set me free from the reign of OCD.  And that is why I was feeling sentimental as I sat in the office of this OCD genius for the last time, feeling cheesy but needing to tell him that he was one of my heroes.

feels like another life

Date: Wed, 27 September 2007
From: Jackie
To: Eir

please pray for me, honey.

i’m nervous again that i’m not saved. or that i did something in the wrong order.

it feels silly to me, but also serious, if that makes sense.

i need to relax.  any Truth you want to speak to me would be great and welcomed.

love you muchly,
jackie lea

 

From: Eir
Sent: Wed 3/28/2007 12:13 AM
To: Sommers, Jackie L

honey,   “For I am convinced that neither death nor life, neither angels nor demons, neither the present nor the future, nor any powers, neither height nor depth, nor anything else in all creation, will be able to separate us from the love of God that is in Christ Jesus our Lord.”   LORD GOD! I thank You that You are a God who is DETERMINED and that salvation is YOUR doing, not ours. Please help Jackie to rest in Your character, God! We can NOT do anything to make you not look at us and still want us to belong to You.   I love you, jls! I see SO MUCH spiritual fruit in your life! I believe FOR you that you are saved and belong to a God who has chosen you as HIS and transformed you.   GOODNIGHT!

Medical or Spiritual?

Discovered a website this weekend that is very disturbing to me as a Christian obsessive-compulsive.

At GreatBibleStudy.com, you can read quotes like the following:

Obsessive Compulsive Disorder, commonly referred to as OCD, is not a mental disorder or disease… it is a spiritually rooted bondage in the person’s mind that needs to be uprooted.

Obsessive Compulsive Disorder (OCD) is basically demonic torment brought on by a person’s bondages to fear and shame.

These ‘voices’ or compulsive thoughts are NOT caused because of a chemical imbalance (which the secular world cannot explain anyways); they are there because of a spiritual bondage in the person’s life.

Now, don’t get me wrong!  I believe that obsessive-compulsive disorder has entered into this world due to SIN, yes, but to negate that OCD is caused by a chemical imbalance seems ridiculous to me.  As a Christian, I view ALL of life through a spiritual lens, but these quotes seem like the equivalent of saying, “Diabetes is not a problem with the pancreas– it’s a spiritual issue!!!”  To say that diabetes is not connected to the pancreas’s inability to produce insuliin would be silly, just as saying that OCD is not connected to a chemical inbalance (our bodies absorb serotonin too quickly … that’s why we take SSRIs [selective serotonin reuptake inhibitors … they SLOW DOWN the reuptake/reabsorbtion of serotonin]).

All issues are spiritual issues, but that does not mean that they are NOT also medical issues.  God is also the Author of Science and the Creator of our bodies.  To not combine the spiritual with the scientific is short-sighted, I believe.

What are your thoughts on these quotes?  I’d especially love to hear from obsessive-compulsive believers!

This is a repost of an earlier entry.

obsessive-compulsive since age seven

My OCD struck at age seven.  Strep-throat-gone-to-hell and all of the sudden curse words were running through my head as if I were some foul-mouthed sailor, when the truth of the matter was that I was a shy (Yes, really!  Hard to believe now!) girl from a conservative home, who would have never DARED to utter those phrases outloud.

I began to worry that I would lie if I gave my opinion, so for a while, my answer to everything was “I don’t know.”  Favorite color?

I don’t know.

Did I like my teacher?

I don’t know.

Should we do this or that?

I don’t know.

Ridiculous.

I have this image in my head of running to find my mom under the clothesline, smacking my fist against my forehead, and confessing.  My poor mom.

I wish we’d known then.  It would be another fifteen years before my OCD would even be named, but I’ve wondered what life would have been like had we caught it back in the summer of 1989.  Drat you, internet, for coming along too late!

Every once in a while I google things like “my daughter is attacked by bad thoughts” or “my daughter has bad thoughts” or “my daughter keeps confessing” to see how quickly the trail leads to OCD.

My heart breaks for the obsessive-compulsive children out there, wild minds racing, hearts terrified, robbed of childhood.

Parents can look for the following possible signs of OCD:

  • repetitive confession
  • constantly seeking reassurance
  • raw, chapped hands from constant washing
  • unusually high rate of soap or paper towel usage
  • high, unexplained utility bills
  • a sudden drop in test grades
  • unproductive hours spent doing homework
  • holes erased through test papers and homework
  • requests for family members to repeat strange phrases or keep answering the same question
  • a persistent fear of illness
  • a dramatic increase in laundry
  • an exceptionally long amount of time spent getting ready for bed
  • a continual fear that something terrible will happen to someone
  • constant checks of the health of family members
  • reluctance to leave the house at the same time as other family members

I waited fifteen years to be diagnosed.  Just take your kiddo to the psychiatrist.*

*I’m not mad at you, Momma. 🙂  How could we have known?  You’re my favorite.

A Night to Believe 2012, Part One

I am so excited to announce that I will be reading an excerpt from my novel, Lights All Around, at “A Night to Believe” next month, culminating OCD Awareness Week!  I emailed today with Michael from the International OCD Foundation, and they are purchasing my flight to Boston and two nights in the Sheraton.  I am beyond thrilled to attend and SO excited to share part of my story with the OCD community.

Thank you to everyone who voted for my submission!  I will update again after the event … which I am nervous about (a little) … reading the excerpt will be an exposure in and of itself.  Nothing like ERPT right in front of a crowd, eh?  🙂  I think I am up to it.

Is anyone else from the blogosphere going to be at this event?  I’d love to meet you, if so!

CBT advocacy

I am a huge, huge, HUGE proponent of cognitive-behavioral therapy (also known more specifically as exposure and response prevention therapy), which gave me back my life.

I wrote a story called Lights All Around— fiction that sings the praises of CBT.  Even though I had already experienced CBT, it wasn’t until I fictionalized my experiences that I felt like I really understood what exactly went on during therapy, the reprogramming of my brain.  The scenes that I am hoping to share during OCD Awareness Week detail the moments when CBT and its premise finally clicked.

If you haven’t voted for my entry “Tipping Point” yet, will you take 3 seconds to do so right now?  Just go to http://www.ocfoundation.org/awarenessweek!  I appreciate you!!  (Which 2-3 friends could you ask to vote for me today?  I’d be so grateful!)

“Tipping Point,” my entry

If you like what you read below, then please mosey over to http://www.ocfoundation.org/awarenessweek to vote for my entry!  Voting closes on September 7th, so please don’t wait!!

That Saturday, I went to cognitive-behavioral therapy like a disgruntled cobra, noticeably agitated, ready to strike.  I shifted uncomfortably with each of Dr. Foster’s normal questions and answered in short, sharp responses like a fence made of spikes.  “Is there something wrong?” Dr. Foster asked, setting down his legal pad on the coffee table between us.  He folded his hands in his lap, and I despised him.

“Yes,” I said, my face on fire.  “I can see where this is going, and I don’t think I can do it.  And if I can’t do it, if I’m going to fail anyway, then I want to stop now.”  I crossed my arms across my chest; then, realizing it probably made me look childish, clasped my hands in my lap instead.

He leaned back in his seat.  “Where do you think this is going?”

“You’re going to ask me to swear at the Holy Spirit.”  I could not meet his eye.  My mind raced as it recited its usual mantra—Father God, I love You; Father God, I love You—my talisman against blasphemy.

“Maybe,” he said.  “But not this week.  Can we focus on this week first and cross other bridges when we come to them?”

I snorted out a shock of air.  My right leg began to shake, which thoroughly annoyed me.  “What’s the point if, in the end, I can’t finish the job?”

“You don’t know that,” said Dr. Foster quietly.

“I know that,” I countered as my voice climbed higher.  “I’ve considered it, and there is no way I can do that.”

“I think you should just focus on your current assignment.”

“I can’t,” I said.  Didn’t he understand that there was no point to torture if the end result was not healing?  “All I can think about is that this is the next step.”

“Well,” said Dr. Foster, leaning forward, “I’m not actually sure we’ll need to get to that point.”  I looked at him, sideways, warily.  “I’m not.  I’m seeing how things go.”  I swallowed.  Outside his window, the sunlight battled hard behind the cloudy sky but couldn’t break through.  “For now, when you have your intrusive thoughts, I’m asking you to try to embrace them.”

I can’t,” I repeated.  “I can’t think—that—toward the Holy Spirit.  I really can’t … and I think that might be the community standard in my church.”  I was using his own terminology as a spear, frantically poking holes.  What had I been thinking, attempting CBT in the first place, which was shaping up to be the equivalent of toying with an afterlife toggle?

“Then,” he said, “what I want you to try is this.  When you have an intrusive thought, I want you to think, ‘My OCD is making me think’—he held out his hands—“‘this’—whatever it is.  And name it.  Say it in your head.  It’s a step removed from what I’d like you to be doing, but it might work for you to approach it that way.”

I doubt it.  I pressed my lips together, still sitting rigidly.

“Can you try that this week, Neely?  Creeping toward it?”

“I don’t know.”  My voice was like ice shards.

He pointed to one of his wooden coasters, which was sitting on the coffee table between us.  Just like the others, it also had a quotation etched into the wood, this one from from Antoine de Saint Exupéry: “What saves a man is to take a step.  Then another step.”

“What saves a man is grace,” I spat.

For the briefest moment, the corners of Dr. Jonathan Foster’s mouth hinted at a slight grin, but a second later, I thought I must have imagined it.  Except for his eyes.  His eyes looked at me as if he had a secret, as if I’d said something funny.

I hated him in that moment.  My face burned with anger as I stood up to leave.  “I’m not listening to that thing again,” I said.  “CBT has been the biggest mistake of my life.”

“Neely,” he said to my back, “I hope you’ll come back next week.  I’ll leave you on the schedule.”  I did not turn around, and Dr. Foster did not get up from his chair.  I felt only the tiniest pinprick of pleasure knowing that I’d staged a coup.  Resentment piled like an avalanche behind me as I closed the door sharply on a room of awkward, advancing silence.

 

I stopped at my best friend Charlotte’s studio apartment to explain why Dr. Foster was the worst person alive and the exact wrong person for his job.  “I mean, how is someone supposed to confront her biggest battles, her deepest fears, if Dr. Foster cannot even be sympathetic for one minute?  I just want my talk therapist again!  I want her to tut-tut and to pray for me and tell me stories about her babchi and to tell me what’s true and what’s not.”

I seethed about the quote on the coaster and about my rebuttal that men are saved by grace.  “And then,” I said, “he didn’t smile, but he almost looked like he wanted to!  And I just about had a meltdown!  It was like he wanted to laugh at me.”

Charlotte offered her own knowing smile.  “Neely,” she said, “he probably did want to!  He had a lot more self-restraint than I would have.  My gosh.”

“What—what do you mean?”

“You argued with him that we are saved by grace—you!  When your OCD has blinded you to grace!  It was like an atheist saying, ‘Let’s pray’!  Honey, come on, give the man a break.  It was a completely ironic thing for you to say in that moment.  Can you see that?”

I wanted to argue, but I was just so worn out.  I exhaled deeply.  “I still don’t like him.”

“That’s fine,” she said.  “And as your best friend, I will dislike him on principle.”

“Thank you.”

“But,” she said, “if this heals you, I will officially revoke all dislike and fall at his feet in gratitude.”

I couldn’t even crack a smile.  “Char, it can’t.  I’ve already failed.  I’m not even doing it right.”  I put my head in my hands, frustrated.  “I’m supposed to be approaching my blasphemous thoughts head-on, and I refuse.  I’m wasting my time, going through torture for no reason, and I’m just done.”

“Well, hold on now,” she said.  “You say ‘head-on,’ but Dr. Doom said you could side-step, right?  What’s that look like?”

I sighed again.  “It’s where I say—or think, I guess—‘My OCD is making me think blah.’  Fill in the blah with whatever bad thought it is.  Probably cursing at the Spirit.”  Father God, I love You.  Father God, I love You.  Father God, I love You.

            “So why not do it?” she said, glancing at her textbooks.

I ogled at her.  “What?”

“Why not do it?” she repeated, this time looking at me.

“Because it’s blasphemous; because it’s sinful; because it’s unforgivable.  It will condemn me to hell.”  I half expected her to blink her eyes as if coming out of a trance.

“You’re not actually saying those things, though,” she pointed out.  “It’s like, well, let me think … it’s like if I were to say to you, ‘I heard a woman at the mall say, “God is not good.”’  I didn’t actually say God is not good.  I was telling you that a woman at the mall said it.  But at the same time, I was able to say it out loud.”  I continued to stare at her.  “You know?  It wasn’t my personal opinion or even a statement to God, just an observation.”

An observation.  I let the idea roll over my brain.  “It sounds risky.”

“Which is the point, right?”

 

Charlotte had taken most of the venom out of me.  I kept thinking of her summation—how the side-stepping of CBT wasn’t stating a personal opinion or even a statement to God, how it was nothing more than making an observation—and of Dr. Foster, his hands held out, palms up, as if in offering.  “My OCD is making me think this,” he’d said.  “Name it.  Say it in your head.”

But the concept still unnerved me.

Mr. and Mrs. Cook, the newlyweds, invited me over for dinner on Sunday evening.  Stella—her curls somehow managed into a Swiss braid—attacked me with a bear hug that made it seem more like her honeymoon had been two months and not just two weeks.  “Gosh, I’ve missed you!” she wailed.

While we ate dinner, my mind kept flitting back to what Charlotte had said—what Dr. Foster had said as well, only Charlotte so much better.  It’s just an observation.  I ran the idea by the Cooks.  “Okay, this is random.  Help me to think of this right,” I said to them while AJ passed around a plate of baked potatoes.  “If Person A says to you, ‘Person B said you’re an idiot,’ which one do you get mad at?”

“How did Person A say it?” asked Stella, thoughtfully twirling a green bean on her fork, not at all thrown off guard by the arbitrary inquiry.

“Softly, pained, regretfully.”

“Then I get mad at Person B,” she elected.

“You don’t shoot the messenger,” added AJ, looking a little confused.

“Neely has OCD,” Stella said, as if those three words explained everything.

            I am the messenger.  OCD is the one with the message.  The statement—the blasphemy—it’s not mine.  It’s not my opinion.  I am only making an observation about what OCD thinks.  The separation sounded spectacular.

“So—the wedding.  How do you think it went?” I asked, changing subjects.

“Ah, I think this is the part where you two go to the couch to talk, and I stay here to do dishes alone,” said AJ.

“Isn’t he the best?” said Stella, getting up from her seat, then leaning over and giving him a kiss on the cheek.

“The best,” I said, and Stella put her arm through mine and dragged me out of the kitchen into the living room.  It looked like a whole new house since AJ had moved in.  His furniture had replaced hers.  The bookshelves that had been full of Jolie Brightman and Edna St. Vincent Millay were now overcrowded with graphic design books on typography and design theory.  A new large abstract painting hung above the fireplace mantel—a chaotic mix of what looked like various colored bulls-eyes.  The most noticeable difference came when we sat down and a cat the color of ashes jumped up onto Stella’s lap, as if he’d been waiting for her.

“Henry,” explained Stella.  “AJ’s brother took care of him while we were up north and brought him over here last night.  We thought it would take him a while to adjust to living in a new place, but, well …”  She nodded toward her lap, where Henry sat purring as Stella stroked him.  She nodded toward the painting above the mantel.  “What do you think?” she asked.  “My feminist club girls from college got it for us.  It was purchased from an artist who mixes her own colors, applies paint to her breast, and strokes the canvas with it.”

“You’re joking,” I said.

Stella’s eyes were merry like Santa’s.  “I’m not.”  We both laughed.

“You’re married,” I said, a little in awe.  “You’re roommates with a boy.”

“Yucky,” she said, wrinkling her nose, which pushed the bridge of her pink glasses up.  Then she laughed and hit me lightly on the shoulder.  She reached up into her hair and started pulling out bobby pins, letting her curls fall to her shoulders.  Henry looked affronted that the petting had stopped.  “Oh relax, will you?” she said to him.

I sighed.  “I can’t believe you’ve only been gone two weeks.  Behavior therapy has been awful,” I said surprised at my composure.  It shocked me every time that life could return to normalcy.

I explained to her my fear that CBT was a waste if I couldn’t finish it.  “So, Dr. Foster wants me to side-step,” I said.  “That’s why I was asking tonight about shooting the messenger.”

She nodded.  “That makes sense.  So, you’re supposed to say what?”

“That OCD is making me think … whatever.”

“Totally.  Yes.  And this will heal you?”

“That’s the goal.  I’m not convinced.”

“You’ve got to do it, Neels.  I know you can.  This is a great way ‘out’—I can totally see where you wouldn’t want to actually curse toward the Holy Spirit—but if your head is attempting to do that all the time anyway, then just reporting that inclination to God doesn’t seem like a stretch.”

Reporting … I liked her word choice.  It seemed so passive, so mild.  So opposite of blaspheming.  Confidence was building in me.  I couldn’t describe it exactly, but it felt a little like adding weights to the soles of my shoes, as if it would take more than a breeze to topple me.

I am the messenger.  OCD has the message.  I am only making an observation.  I am reporting an inclination. 

The statements kept repeating themselves in my mind, over and over.  And they were making sense.  It all seemed so logical, so black and white.  For the first time in years, I felt like a person with a disorder, a person oppressed, a victim instead of a monster.

After I was home from the Cook household, I went into my bedroom, lay down on my bed, put my earbuds in my ears to listen to the horrid audio track that Dr. Foster had recorded for my exposures.  My hands were shaking, and my face felt tight, as if I would never be able to wrench my jaw open again.  My shoulders were tense and felt thick as slabs of beef.

“Okay,” said Dr. Foster’s voice.  “You wake up and immediately you have a blasphemous

thought.  Something that relates to the Holy Spirit, and you’re thinking something horrible and disrespectful toward the Holy Spirit.  And you don’t do anything about it.”  A familiar cadence, a recognized tone by now.

My chest was as tight as a drum, my heart racing like an executioner’s drumroll.  It was that familiar feeling of alarm.  I stared at the ceiling, my heart thumping in my chest, and when the thought came, I altered it slightly.  Very slowly, as if I were watching each individual letter be typed on the ceiling, I thought, My OCD … is making me think … “fuck You” toward the Holy Spirit.  I swallowed hard.  Had it been wrong?  Was it unforgivable?  God, don’t shoot the messenger.

Dr. Foster’s voice droned on.  “You don’t say a prayer; you actually say, ‘I’m gonna take that risk.’  You say, ‘Fuck it.  I don’t care.’  And this stays with you the rest of the morning and sets the tone for your day.”  My OCD…  is making me think … “fuck You, Holy Spirit.”  The room was silent, still, the bed beneath me warm and soft.  The statement—thought as a message from OCD—was the very one that I’d been frantically trying to avoid for years and years.

The audio track continued, but it was in the background for me.  Was I going to hell?  I reminded myself that I didn’t really say it or think it, but that OCD was inspiring it in me.  I felt threatened; the panic remained.  I continued to stare at the ceiling until the track ended.  OCD has the message.  The blasphemy is not mine.

But I fell asleep a lot more easily than I’d have guessed—and my dreams were not troubling, not even memorable.