joy in sorrow

I grew up hearing that happiness was situational but that joy was not: that joy was this solid rock you stood on, and it never moved, even when everything else around you was crashing down.  I was supposed to feel a deep-seated joy, even when I wasn’t happy.  I knew this.  I tried to make it be true, tried to convince others that it was.

But for much of my life, if you were to strip away all the smiles and masks, I was resting on an uncomfortable bedrock of deep sorrow, bondage, and fear– and oceans below, barely visible, there was a flickering hope.  I smiled often– sometimes it was fake, sometimes it was real.  There were moments of joy, real instances where it flashed so bright that I couldn’t see the ugliness around me.

It’s different now.

I have what I always wanted while growing up, and it is incredible.  Even when I am feeling low, depressed, frustrated with friends or with my writing life, or even deeply saddened, I am grounded like an anchor to JOY.  I have a permanent seat inside it, and from that seat, I can experience the whole wide range of other emotions, but I don’t move from the chair.

I believe that anyone who loves Jesus Christ can have this be true.  In my early life, the problem was that I was convinced by a lie: I believed that my future was not secure in my Savior.  Obsessive-compulsive disorder robbed me of that truth.  Cognitive-behavioral therapy restored it.

What is at your core today?  Are you standing immovable on joy, or something else?  Why is that?

 

as CBT started to work

On Tuesday, the sky was ominously green as Sophie and I walked through the parking lot and into Target; it a way, it reminded me of the sky the night that Trapper called it quits.  Once we were inside, the tornado siren began to blare, muted by the walls of the store.

Stella and AJ Cook were in the produce section, checking for a fresh cantaloupe.  “Hey,” I said.  “Do you know what’s going on outside?”

“My mom just called,” said Stella.  “She said a tornado’s coming through Fridley.”

“Excuse me,” said a red-and-khaki worker to our quad.  “We’re asking everyone to move to the back of the store, away from any windows, for the next fifteen minutes.  There’s a tornado warning.”

Sophie, Stella, and I looked at each other; AJ looked toward the doors.  “I suppose we’d better listen,” he said.  And so it was decided.

We left our shopping carts by the fruit and headed for the back of the store, choosing an aisle of rugs and runners.  I sat down on the bottom shelf.  Sophie sat beside me, and AJ and Stella sat on the shelf opposite us.  Target employees were milling back and forth, talking into their walkies like police at the scene of a crime.  The atmosphere was dry, ready.  “I hope that everyone in the store tonight sings a song together before this is all over,” I said.  “It just seems right.”  AJ sat with his long legs sprawled into the aisle; Stella, beside him, had her knees pulled up to her chest and her chin resting on them.  “This feels like the perfect setting for a movie,” I said.  I nodded at AJ and Stella.  “You two are the Young Couple in Love.  You know, like in Armageddon or Poseidon.  The young folks so in love when it’s tested by tragedy.”

AJ laughed and dramatically grabbed Stella and shook her.  “You stay with me!” he roared.  “I’m not gonna lose you!”

“Exactly,” I said, laughing with the others.

An attractive male Target worker in thick black-rimmed glasses marched resolutely through our aisle, between our two groups.  I watched him as he walked to the end of the row and turned right.  “Someone should fall in love with a Target employee by the end of the movie,” I said.

“Sophie,” suggested AJ.

I scowled at him.  “Thanks a lot, AJ.”

“Or you,” he said, shrugging with upturned palms.  “Whoever.”

I sighed and leaned my head back against a black shag rug.  “No, it’s okay.  I will play the part of the Frustrated Writer.  The tragedy will be what shakes my character free of writer’s block, and the whole movie will be narrated by me, by what I write in the book.”

“Oooh, I like this!” said AJ.  “I dig!”

“We should probably have a dramatic scene where someone loses a phone call,” said Sophie.  “Stella’s mom calls back, and over the phone, she’ll hear her mom be … lifted away.”

“Yeah,” I said.  “Then Stella will go berserk, screaming all over the place and trying to run out of the doors, but AJ will hold her back.”

“I’ll have to wrestle with her!” he said.  “I’ll have to slap her to get her to focus.  It will all be so gripping.”  He grinned at Stella while she rolled her eyes.

“We’ll call it The Target Zone,” I suggested.  “Target TwisterBullseye Funnel?”

We continued to create an epic tornado-meets-Target screenplay while the muffled siren blared on.  And so we effectively entertained ourselves while danger swirled by outside, passing over our building as if we had blood on the doorposts.  The thought crossed my mind that this sort of thing—this Passover of danger—was becoming my new “normal.”  After only fifteen or twenty minutes, the sirens stopped, and the Target workers let us get back to shopping.  So we returned to our carts by the fruit, said goodbye to Stella and AJ, and eventually left Target.

“No singing, screaming, death, or romance,” I said to Sophie.  “All in all, a boring night.”  We both laughed, and it sounded like tiny bells ringing in the dark.

OCD shared experiences

Last Wednesday, I was interviewed about my OCD in front of a group of around 100 students at the college where I work.  It was such a blessing to be able to share with them.  We talked about wanting to keep OCD a secret, about how OCD affected my relationships, about cognitive-behavioral therapy, about how long it took for me to find relief.

Afterward, I had a small group of students who hung around to ask questions and to connect with me.  One girl was crying, telling me her older sister had OCD and she hoped that her sister could “come as far” as I had.  Another told me that she had never had the chance to meet someone who struggled the same way as she did.  Another asked some great, probing questions about CBT.  Two days later, I had a mom email me and tell me that her daughter had come to my chapel talk and told her how great it was to hear from someone else who’d been diagnosed with scrupolosity.  I’ve scheduled or am scheduling several coffee dates with these newfound obsessive-compulsive friends.

The mom wrote:
I could tell it meant a lot to her the other night to hear that someone she knows, and is successful and enjoying her career, and has remained faithful amidst all the doubts scrupulosity brings is living an abundant life.  You are the first person she’s met that truly struggles as she does; someone who understands better than any councelor or psychologist or psychiatrist  OR MOM WHO HAD READ EVERY BOOK SHE CAN GET HER HANDS ON TO HELP HER DAUGHTER.

It’s sad, but it’s also true.  No one really gets an obsessive-compulsive like another obsessive-compulsive.  I am so grateful for every opportunity I have to connect with someone else who GETS IT.  We haved lived a nightmare together– while others only hear about it second-hand.  OCs truly share a unique experience of pain, struggle, and attack.

I hope that these new OCs I’ve connected with will also one day share my story of victory.  Please Jesus.

A Night to Believe 2012, Part Two

I am writing this post from the Starbucks located in the lobby of the Boston Sheraton Hotel, having had an incredible weekend.  My friend Cindy joined me in Boston, and I was sooooo blessed by her company; together, we explored Boston and Cambridge, including adventures like eating White Trash cheese dip at Bukowski Tavern, incredible treats at Georgetown Cupcake, and my first experience on the subway!

But Saturday night was certainly the highlight.  First of all, the International OCD Foundation has incredible staff members, and they made this whole experience so simple for me– booking my flight and hotel, picking me up from the airport (someone was there with a “J. Sommers” sign!!), and giving me plenty of time to explore the city.  Jeff Bell, spokesperson for the foundation and founder of the Adversity 2 Advocacy Alliance, was the emcee of the event, and he sat down with me on Saturday morning and asked fascinating questions about my OCD and my writing, putting me totally at ease about the on-stage interview that would come that evening.

The event began with a cocktail hour, and then the award ceremony began.  Jeff Bell is an absolute all-star, and he discussed the theme of OCD awareness week, which was “Dare to believe … together we can beat OCD,” hitting hard on the DARE, the BELIEVE, and the TOGETHER.  I cannot tell you how impressed I was with this man– I can’t wait to learn more about his A2A Alliance.  He has also written a book, which I’d like to read and review on this site soon.

After that, I was the first to share.  I read an excerpt of my novel, and people laughed in all the right places.  It was an incredible audience, a vocal one, so you knew when they were totally jiving with you.  Love that.  Then Jeff interviewed me on the stage about my experiences.  The only question he asked me that I didn’t expect was “Do you ever worry that people will think your fictional story is actually your true story?” and I said, “No, I don’t worry about that because I’m not ashamed of my OCD.  Neely has a lot of the same experiences as I’ve had … except she has a much better love life,” which made the audience laugh.  We also talked about cognitive-behavioral therapy and about how it is simultaneously horrible/incredible and how someone will know he/she is ready for it “when the hell you’re in becomes worse than the hell you’ll have to go through.”  It’s true.

Next up was Jenn Cullen from Washington, DC, who wrote a children’s story called Ranger Ben Discovers the Mysterious Mr. OCD, this wonderful story to help children with OCD feel empowered to tackle their disorder.  She wrote it for her son Ben, who was diagnosed with OCD at age 5.  He is 13 now, and he joined her on the stage.  Very, very cool.

Then we watched a film trailer for Englander Claire Watkinson’s in-process documentary called Living with Me and My OCD.  Claire is so talented, and I am so excited to follow the progress of her documentary!

Vincent Christoffersen from New Zealand finished off the evening with his song called “Till I’m Down,” which I completely adored.  Vincent is 21, looks 15, and has the maturity of a 30-year-old.  He had wonderful stage presence and everyone LOVED him!

They also presented an IOCDF Hero Award to Denis Asselin of Walking with Nathaniel.  Denis’s son Nathaniel suffered from intense body dysmorphic disorder, on the OCD spectrum, and took his own life in 2011.  Denis made a 500-mile pilgrimage from Cheyney, PA, to Boston, MA, for BDD awareness and research.  It took everything in me not to weep as he spoke.

Afterward I met him and was very impressed by his humility.  I also met Michael Jenike, professor of psychiatry at Harvard Medical School (by the way, I just looked him up, and his CV is 92 pages long!  Intense!), and a slew of people who thanked me for my story.  It was a wonderful, well-planned event, and I enjoyed being in a group of OCs and awareness advocates, and it only made me want to do MORE.  I want to just scream from the rooftops about CBT, and I want to help the general public to understand more about OCD (unfortunately, it still believes primarily that OCs are just “neat freaks”).

This whole Boston trip was an incredible adventure, and I want to thank everyone who voted for me in the creative expression contest.  I loved-loved-LOVED this entire experience, and I am so grateful to you for making it possible for me.

On a sidenote, I really want to go to the IOCDF annual conference in Atlanta when it rolls around next year … anyone want to join me??? 🙂

more thoughts on solipsism syndrome

Solipsism syndrome is a psychological state wherein a person feels that the world is not “real.”  It is only marginally related to the philosophical idea of solipsism (only knowing that you yourself exist and having no way to know with certainty that anyone else does).

All of this intrigues me because I myself went through a period of time where I was very detached from real life.  In fact, for a time, I honestly wondered if people were really demons who wanted to somehow trick me into hell.  There was a part of me that knew it was completely ludicrous.  But I couldn’t let go of the idea that I was somehow stuck in my own personal Truman Show hell.  I was withdrawn from everyone, living in fear and distrust, sadness and loneliness.

In my completely unprofessional and completely personal opinion, solipsism syndrome has a large connection to Pure O OCD.  I am writing a story about a young lady with solipsism syndrome, and to me, it just SCREAMS, “Pure O!” over and over.

To me, the key to putting both OCD and solipsism syndrome under one’s foot is learning to embrace uncertainty. 

It sounds so simple, but it’s incredibly hard to do.  Cognitive-behavioral therapy was the tool in my life that helped me to do this.

OCD Awareness Week

This is OCD Awareness Week.  It is my great hope that this blog is chipping away at the misunderstandings about obsessive-compulsive disorder.  These are truths I know:

* OCD is a thief.
*
Obsessive-compulsives are not alone or crazy.
* Although there is currently no known cure for OCD, there is an incredibly effective treatment for it– and tools that keep it well in-check!
* The general public still doesn’t understand OCD, which is much more than just being a “neat freak.”
* Obsessive-compulsives are some of the bravest and most compassionate people I know.

Care to add some truths?  Leave a comment!

end of an era

Last week, I ventured to the Fairview Medical Center at the University of Minnesota to see my beloved psychiatrist Dr. Suck Won Kim for the last time before his retirement.  Dr. Kim is a skinny Korean man with salt-and-pepper eyebrows and sharply combed hair.  I met him first in 2008 when, after years of failed prescriptions, my old psychiatrist essentially threw in the towel and referred me to Dr. Kim, a national expert on OCD who has seen over 3,000 OCD patients.

The first time I met with Dr. Kim, he asked me about what meds I had tried.  And when I had told him, he resolutely said, “No more of that.  You are done with that.”  And he started me on Effexor XR, which I am on to this very day.  Dr. Kim spoke with such confidence that I had felt confident.  I remember thinking, I think this might actually work this time.

But Dr. Kim wasn’t done after he wrote out the prescription.  He turned to me and said, “Cognitive-behavioral therapy.  Tell me, have you heard of it?”

I had.  Horror stories.

“It’s the best treatment there is for OCD.  I’d like you to call Chris Donahue and get an appointment.”

“Okay.”

“It will be hell,” said Dr. Kim, telling me what to expect.

And it was– but it set me free from the reign of OCD.  And that is why I was feeling sentimental as I sat in the office of this OCD genius for the last time, feeling cheesy but needing to tell him that he was one of my heroes.

A Night to Believe 2012, Part One

I am so excited to announce that I will be reading an excerpt from my novel, Lights All Around, at “A Night to Believe” next month, culminating OCD Awareness Week!  I emailed today with Michael from the International OCD Foundation, and they are purchasing my flight to Boston and two nights in the Sheraton.  I am beyond thrilled to attend and SO excited to share part of my story with the OCD community.

Thank you to everyone who voted for my submission!  I will update again after the event … which I am nervous about (a little) … reading the excerpt will be an exposure in and of itself.  Nothing like ERPT right in front of a crowd, eh?  🙂  I think I am up to it.

Is anyone else from the blogosphere going to be at this event?  I’d love to meet you, if so!

CBT advocacy

I am a huge, huge, HUGE proponent of cognitive-behavioral therapy (also known more specifically as exposure and response prevention therapy), which gave me back my life.

I wrote a story called Lights All Around— fiction that sings the praises of CBT.  Even though I had already experienced CBT, it wasn’t until I fictionalized my experiences that I felt like I really understood what exactly went on during therapy, the reprogramming of my brain.  The scenes that I am hoping to share during OCD Awareness Week detail the moments when CBT and its premise finally clicked.

If you haven’t voted for my entry “Tipping Point” yet, will you take 3 seconds to do so right now?  Just go to http://www.ocfoundation.org/awarenessweek!  I appreciate you!!  (Which 2-3 friends could you ask to vote for me today?  I’d be so grateful!)